OK....this may be a dumb question,,,,,,

What is the difference between Precocious Puberty and an undiagnosed CAH
child who shows early signs of puberty due to the excessive androgenes?
-Debbi
-----Original Message-----
From: DTomb78532@... <DTomb78532@...>
To: CAHsupport@onelist.com <CAHsupport@onelist.com>
Date: Monday, May 03, 1999 8:40 PM
Subject: [CAHsupport] Re: Welcome to CAHsupport@onelist.com


>From: DTomb78532@...
>
>Hi Angi & CAH friends!
>
>My name is Diane I have been married for 13 years to a great guy (Denny)!
We
>have 2 beautiful children, Brandi 10.2 and Charlie 5.3.
>Charlie was diagnosed Feb. 12, 1998 with CAH. We are now all in genetic
>research to find the mutated gene(s).
>I have questioned many things with Charlie since he was born. I was
>basically told I was over reacting, paranoid, over protective mom, ect.
>Finally at his 4 year check up a new woman doctor in the group listened to
my
>concerns and started with a bone age! She called me that night from home
to
>say she made Charlie an appointment with an endo and to go to get further
>testing. I was numb from then on. As I said diagnoses of CAH came in
>February 1998 and in June (30th to be exact) he was diagnoses with CPP
>(central precocious puberty).
>
>His ped's now are very reluctant to even see him. (They did say in Sept.
>1998 how lucky we are he is still here and can't believe that it wasn't
>worse! I am in the process of changing his ped's) I have since changed his
>endo to one at Children's Hospital in Pittsburgh, PA. I was going into the
>1st endo's with more info. than he had ever given me and he told me to let
>him know what else I can find out! I had to tell him how to write the
>prescription for the solu-cortef and he wanted to take Charlie off of the
>Lupron all together because Charlie had rare complications to the Lupron
>Depot injections. (It's a very long story and I don't want to bore anyone
>with my 1st message!)
>
>It is now May 1999 and I still feel that I need more information. I am
more
>comfortable with CAH & CPP (or so I want to think.)
>
>We have had to do the stress shot and in the ER for dehydration. Charlie
has
>had a pretty tough winter but I feel confident in his endo and what we are
>doing.
>
>Charlie's last ando. test and testosterone both came back good.....he is
>suppressed finally! It took more than a year but I feel we have succeeded
in
>a small way.
>
>His last bone age was 9.64 years at cron. age of 4.8 years. We are waiting
>the results of his bone age in Jan. 1999. The hospital read it as 12.4
years
>so his doctor sent it to a special lab in Chicago, IL.
>
>I would like to thank Angi (& family) for a this list and I hope that I can
>help others with my experiences and would love to here from others. I
would
>also hope that we can get newborn testing in every state!
>
>I would like to hear if anyone else has a child with CPP also. This seems
to
>complicate CAH. I am also told by doctors that it is very rare for a child
>as young as Charlie to have CPP, it usually doesn't happen (if it is going
>to) around the age of 9/10.
>
>Thanks for the warm welcome...I'm glad we are aboard....Diane
>
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