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CAHsupport · This list is dedicated to the support of family members with Congenital Adrenal Hyperplasia and related disorders. We welcome
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Hello Friends!!!   Message List  
Reply | Forward Message #233 of 242 |
Re: Hello Friends!!!

--- In CAHsupport@yahoogroups.com, "orchid32981" <orchid32981@...>
wrote:
>
> My name is Trisha and my 1yr old daughter Maya has salt wasting CAH.
> It's so nice to find others to talk to, most people don't have a clue
> what I'm talking about when I say CAH. Nice to be a part of your
group,
> and have your support.

i went through that and the best feeling is kowing that youre not
alone, this is a crazy trip that u will not wake up from and u learn to
deal with as you go thru it...

ive been thru the ups and the downs and even the i dont knows so if u
ever feel like talking give me a ring...914 751 3321 ari, mom of
elena 3
>





Mon Mar 19, 2007 4:24 am

trinitee_child
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Message #233 of 242 |
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My name is Trisha and my 1yr old daughter Maya has salt wasting CAH. It's so nice to find others to talk to, most people don't have a clue what I'm talking...
orchid32981
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Jun 22, 2006
8:15 pm

Hi, I'm Monique. My 5 month old has LOCAH. I, too don't know what the salt-wasting form of the disease is. Welcome! Monique ... -- Monique...
Monique Burkes
monidevone
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Jun 22, 2006
8:32 pm

Hi monique nice to meet you. Rather than trying to explain salt wasters, if you go to the CARES Foundation website it explains it, but basically she looses too...
Trisha Irving
orchid32981
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Jun 22, 2006
8:49 pm

I would suggest getting with your endocrinologist asap to make sure that she is on the proper dosage and also make sure that he has had at least one case in...
Mark and Teresa Smith
markandtcsmith
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Jun 23, 2006
3:00 am

... group, ... i went through that and the best feeling is kowing that youre not alone, this is a crazy trip that u will not wake up from and u learn to deal...
Mraine
trinitee_child
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Mar 19, 2007
4:24 am
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