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CAHsupport · This list is dedicated to the support of family members with Congenital Adrenal Hyperplasia and related disorders. We welcome
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Reply | Forward Message #21 of 242 |
Hi Ya'll!
(Oops, I just let that southern slip right in, didn't I?) Tami, you are
talking to the queen of guilt! The first eight years (until after the second
surgery for us and meeting a fantastic woman surgeon) I spent wondering what I
did that was so bad that my daughters would be burdoned with such a punishment?!
Well, I've come to the conclusion that HE (any He that you believe in will work
here) does not punish innocent children. This is just another obstacle to
overcome that will make them strong women! I occasionally still feel guilty
sometimes, but those feelings pass quicker now. (And I just pass the buck to my
husband! LOL!)
As for the meds. At first we were 8am, 4pm, and then 12 midnight. And
yes, we were religious about staying up until then. Then around 6 years old, we
moved and got a new doctor with a new theory! He said bedtime was good enough.
Don't think I didn't kiss the ground this guy walked on!!! We monitored their
bloodwork carefully for a while and there was NO effect. Now, I imagine if they
were to become ill, I would go back to every 8 hours for at least that small
amount of time. It depends on your doctor. But for the bone age, you do want
to be consistent about the meds. If you miss one, no big deal. If you
consistently miss one, BIG DEAL. (And I'm not talking about forgetting the
4:00 and taking it at 6:00. I'm talking about not taking it at all.) I am
always forgetting 4:00 and taking it later. (It was so bad that when I moved
away from my mom to here, she would call us to remind us! LOL!) So far, their
health is fine. But kids grow and their needs change. That's why our bone ages
are advanced. (This isn't terribly uncommon, so I've been told.) Anyway, my
point is, you are not a bad mom if the labs aren't perfect. They will NOT
always be perfect, that's why we see these doctors as often as we do. Take a
minute and give yourself a break. Yeah, I know, easier said than done. But
well worth the effort.
Well ladies, 4th grade homework awaits me. I could've sworn I did this
when I was 10, but whatever...! Oh yeah, I think I'm going to stop buying
hamburgers and save up for a new Suburban! LOL!

Angi








Thu Mar 4, 1999 2:40 am

jaade1@xxxxxx.xxxx
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Hi Ya'll! (Oops, I just let that southern slip right in, didn't I?) Tami, you are talking to the queen of guilt! The first eight years (until after the...
Angela Strong
jaade1@xxxxxx.xxxx
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Mar 4, 1999
2:40 am
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