thank you thank you thank  you ...ill keep u posted

CAHsupport@yahoogroups.com wrote:

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There are 2 messages in this issue.

Topics in this digest:

1. Mark and Teresa...!!!! PLease respond
From: Barbara Neilson
2. Re: Mark and Teresa...!!!! PLease respond
From: "Angela Strong"


________________________________________________________________________
________________________________________________________________________

Message: 1
Date: Fri, 16 Jul 2004 13:12:46 -0400
From: Barbara Neilson
Subject: Mark and Teresa...!!!! PLease respond



Ariel,
I have not heard of this technique. I would ask your surgeon the following
questions.
1. What is the technique called?
2. How many of these surgeries has he done,(over what time period) and
what is the age of the oldest child who has had it done?
3. Can he refer you to a peer reviewed journal article where you can read
about it?
4. he has told you the positives with this technique (avoiding sensory
damage), can he tell you the risks and draw backs.
Barbara


At 11:44 AM 2004-07-16, you wrote:
>Message: 1
> Date: Thu, 15 Jul 2004 17:32:19 -0700 (PDT)
> From: "Lauren C."
>Subject: Mark and Teresa...!!!! PLease respond
>
>my name is ariel and i have a daughter in newyork that is 15 mths old and
>in aug is about to go through a clitoral reduction ...can u tell me more
>because i have a doc...who is doing it and says that he will be doing an
>alltogether different technique where he goes in thru the "back" and
>pulls it in... so thereby according to him circumventing the whole
>sensory area...is this similar to what you had done for your daughter ...?
>please reply....
>
>
>ariel : mommy of elena classical salt wasting CAH
>
>CAHsupport@yahoogroups.com wrote:



Barbara Neilson MSW, Res. Dip. S.W., RSW
Department of Social Work
Hospital for Sick Children
555 University Ave.
Toronto, Ont.
M5G 1X8

This e-mail may contain confidential and/or privileged information for the
sole use of the intended recipient. If you have received this e-mail in
error please contact the sender and delete all copies.



________________________________________________________________________
________________________________________________________________________

Message: 2
Date: Fri, 16 Jul 2004 16:03:30 -0400
From: "Angela Strong"
Subject: Re: Mark and Teresa...!!!! PLease respond

Excellent questions. I would definitely start there. When we had "our"
surgery, there was noone but the doctor to ask questions to...no support
group to gather information from so we had no idea what to ask. We were
very fortunate in that the doctors ended up being wonderful! They explained
things I didn't even realize I needed to know. Make sure you feel
comfortable with your doctor, that he/she answers any questions you have,
and that your child feels comfortable with the doctor.

Our daughters had a section from the middle removed. I'm sure the sensation
is gone for them, but at age 15 that is something they're certainly not
going to tell their mother! LOL! (They had their surgery at 13 months so
there was no asking then either.) So I'm no help to you at all. So sorry.
(Okay, I just asked and one said "I don't know"....typical 15 year old not
wanting to confess to anything and the other, more brazen than her sister
said "there is feeling there".)

Whatever you decide to do, we'll be thinking good thoughts that everything
turns out the way you hope.
Good luck with the surgery.

Angi

----- Original Message -----
From: "Barbara Neilson"
To:
Sent: Friday, July 16, 2004 1:12 PM
Subject: [CAHsupport] Mark and Teresa...!!!! PLease respond


>
>
> Ariel,
> I have not heard of this technique. I would ask your surgeon the following
> questions.
> 1. What is the technique called?
> 2. How many of these surgeries has he done,(over what time period) and
> what is the age of the oldest child who has had it done?
> 3. Can he refer you to a peer reviewed journal article where you can read
> about it?
> 4. he has told you the positives with this technique (avoiding sensory
> damage), can he tell you the risks and draw backs.
> Barbara
>
>
> At 11:44 AM 2004-07-16, you wrote:
> >Message: 1
> > Date: Thu, 15 Jul 2004 17:32:19 -0700 (PDT)
> > From: "Lauren C."
> >Subject: Mark and Teresa...!!!! PLease respond
> >
> >my name is ariel and i have a daughter in newyork that is 15 mths old and
> >in aug is about to go through a clitoral reduction ...can u tell me more
> >because i have a doc...who is doing it and says that he will be doing an
> >alltogether different technique where he goes in thru the "back" and
> >pulls it in... so thereby according to him circumventing the whole
> >sensory area...is this similar to what you had done for your daughter
...?
> >please reply....
> >
> >
> >ariel : mommy of elena classical salt wasting CAH
> >
> >CAHsupport@yahoogroups.com wrote:
>
>
>
> Barbara Neilson MSW, Res. Dip. S.W., RSW
> Department of Social Work
> Hospital for Sick Children
> 555 University Ave.
> Toronto, Ont.
> M5G 1X8
>
> This e-mail may contain confidential and/or privileged information for the
> sole use of the intended recipient. If you have received this e-mail in
> error please contact the sender and delete all copies.
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>




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