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CAHsupport · This list is dedicated to the support of family members with Congenital Adrenal Hyperplasia and related disorders. We welcome
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Mark and Teresa...!!!! PLease respond   Message List  
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Mark and Teresa...!!!! PLease respond



Ariel,
I have not heard of this technique. I would ask your surgeon the following
questions.
1. What is the technique called?
2. How many of these surgeries has he done,(over what time period) and
what is the age of the oldest child who has had it done?
3. Can he refer you to a peer reviewed journal article where you can read
about it?
4. he has told you the positives with this technique (avoiding sensory
damage), can he tell you the risks and draw backs.
Barbara


At 11:44 AM 2004-07-16, you wrote:
>Message: 1
> Date: Thu, 15 Jul 2004 17:32:19 -0700 (PDT)
> From: "Lauren C." <trinitee_child@...>
>Subject: Mark and Teresa...!!!! PLease respond
>
>my name is ariel and i have a daughter in newyork that is 15 mths old and
>in aug is about to go through a clitoral reduction ...can u tell me more
>because i have a doc...who is doing it and says that he will be doing an
>alltogether different technique where he goes in thru the "back" and
>pulls it in... so thereby according to him circumventing the whole
>sensory area...is this similar to what you had done for your daughter ...?
>please reply....
>
>
>ariel : mommy of elena classical salt wasting CAH
>
>CAHsupport@yahoogroups.com wrote:



Barbara Neilson MSW, Res. Dip. S.W., RSW
Department of Social Work
Hospital for Sick Children
555 University Ave.
Toronto, Ont.
M5G 1X8

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Fri Jul 16, 2004 5:12 pm

bneilbel
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Message #217 of 242 |
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my name is ariel and i have a daughter in newyork that is 15 mths old and in aug is about to go through a clitoral reduction ...can u tell me more because i...
Lauren C.
trinitee_child
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Jul 16, 2004
12:32 am

Ariel, I have not heard of this technique. I would ask your surgeon the following questions. 1. What is the technique called? 2. How many of these surgeries...
Barbara Neilson
bneilbel
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Jul 16, 2004
5:14 pm

Excellent questions. I would definitely start there. When we had "our" surgery, there was noone but the doctor to ask questions to...no support group to...
Angela Strong
gyswife
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Jul 16, 2004
8:03 pm
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