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CAHsupport · This list is dedicated to the support of family members with Congenital Adrenal Hyperplasia and related disorders. We welcome
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Mark and Teresa...!!!! PLease respond   Message List  
Reply | Forward Message #215 of 242 |
my name is ariel and i have a daughter in newyork that is 15 mths old and in aug is about to go through a clitoral reduction ...can u tell me more because i have a doc...who is doing it and says that he will be doing an alltogether different technique where he goes in thru the "back"   and pulls it in...   so thereby according to him  circumventing the whole sensory area...is this similar to what you had done for your daughter ...? please reply....
 
 
ariel  : mommy of elena   classical salt wasting CAH 

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There is 1 message in this issue.

Topics in this digest:

1. Re: Thanks
From: "Angela Strong"


________________________________________________________________________
________________________________________________________________________

Message: 1
Date: Thu, 4 Mar 2004 05:52:53 -0500
From: "Angela Strong"
Subject: Re: Thanks

When Amanda and Elizabeth had their surgeries we were in Texas and then Salt
Lake City Utah. The doctors we had were great, but they specialized in
children. Has the endocrinologist made any suggestions as far as surgeons
are concerned? You could always go for the initial consult and ask if there
were any previous patients that were willing to discuss their experiences
with you.

As far as money is concerned, I have no suggestions for you other than to
discuss it with the hospital. Many times they can set up payment options,
write off portions of the bill, etc. My dh is military and so our insurance
picked up most of the bill. You should also check with your insurance
company.

Sorry, that's the best advice I have...anyone else?

Angi


----- Original Message -----
From: "markandtcsmith"
To:
Sent: Friday, February 27, 2004 1:08 AM
Subject: [CAHsupport] Thanks


> Hello, we are so glad to have others in the same boat as us and we
> were wanting to shed a little light on the problems now that we know
> that this is a site to be trusted. Teresa has had a clitoris
> reduction and we do not recomend it to most people because the
> sensations are cut almost all the way so a lot of the pleasure is
> gone. But Teresa also needs a surgery to correct the vaginal opening
> from the size of a pencil lead to the "normal" size. If anyone out
> there knows a trustworthy doctor close to Oklahoma we would greatly
> appreciate it. Also if anyone knows any programs which to get
> finacial help for this(what we have been told could turn into a
> dangerous) problem we would be indebted for life.
>
> Mark and Teresa
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>




________________________________________________________________________
________________________________________________________________________



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Fri Jul 16, 2004 12:32 am

trinitee_child
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Message #215 of 242 |
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my name is ariel and i have a daughter in newyork that is 15 mths old and in aug is about to go through a clitoral reduction ...can u tell me more because i...
Lauren C.
trinitee_child
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Jul 16, 2004
12:32 am

Ariel, I have not heard of this technique. I would ask your surgeon the following questions. 1. What is the technique called? 2. How many of these surgeries...
Barbara Neilson
bneilbel
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Jul 16, 2004
5:14 pm

Excellent questions. I would definitely start there. When we had "our" surgery, there was noone but the doctor to ask questions to...no support group to...
Angela Strong
gyswife
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Jul 16, 2004
8:03 pm
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