Tami-
We got our first bone age at one year of age and do so every year at the
same time of year. It is my understanding from most of the people I have
"met" online that they do the same. I think waiting until she is 5 would
not let you know along the way how she is growing. There are so many things
they have to balance...17 hydroxy, renin levels, and growth. All that has
to me taken into account regularly. I would ask why he wants to wait until
5 yrs of age.
-Debbi
-----Original Message-----
From: bsashmead@... <bsashmead@...>
To: CAHsupport@onelist.com <CAHsupport@onelist.com>
Date: Wednesday, March 03, 1999 7:10 PM
Subject: [CAHsupport] (no subject)


>From: bsashmead@...
>
>Hi everyone
> Courtney is doing better with her RSV. That cough is awful sounding.
> Where can you get the "emia" numbing cream? I heard that there was a
cream out there, but I never knew the name etc...
> Erin's vein's like to hide and roll also. It makes it difficult on both
her and the lab tech. In fact, every time we get the blood drawn, we always
get the same lab worker. Poor worker. She always has a hard time. Now
she is down to giving it one try before going to get another co-worker to
try and draw the blood.
> Ok, about this bone age thing. We have not had the experince yet. We
were told that when Erin is 5 she will have it done (2 1/2 more yrs) So why
worry now? Because it is only recently that I have heard people tell me
that how well I do her meds plays out her bone age. Yes, this has distrubed
me. So if her bone age is advanced, does that mean it's my fault because I
didn't do her meds good enough?
> Erin's first dr told us to do meds right on the nose, 8 am, 4 pm, and 11
pm. But her new one said to do it in the morning, afternoon and night. How
strict are you guys when it comes to med time?
> I don't know about you guys, but I still have days when I have a hard time
dealing with the reality that my daughter has CAH - not that I don't love
her. I guess I still feel a little guilty. Today is just one of those
days. Sorry!!
> Ok I'm not going to leave on a damp note. Here is something to think
about
>1- pound for pound, hamburgers cost more than new cars
>2 - five jello flavors that flopped - celery, coffee, cola, apple, choc.
(yuck)
>3- The Eisenhower interstate system requires that one mile in every 5 must
be straight. These straight sections are usalbe as airstrips in times of
war or other emergencies.
>
>Thanks for "listening"
>Tami
>
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