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CAHsupport · This list is dedicated to the support of family members with Congenital Adrenal Hyperplasia and related disorders. We welcome
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Reply | Forward Message #18 of 242 |
Hi everyone
Courtney is doing better with her RSV. That cough is awful sounding.
Where can you get the "emia" numbing cream? I heard that there was a cream
out there, but I never knew the name etc...
Erin's vein's like to hide and roll also. It makes it difficult on both her
and the lab tech. In fact, every time we get the blood drawn, we always get the
same lab worker. Poor worker. She always has a hard time. Now she is down to
giving it one try before going to get another co-worker to try and draw the
blood.
Ok, about this bone age thing. We have not had the experince yet. We were
told that when Erin is 5 she will have it done (2 1/2 more yrs) So why worry
now? Because it is only recently that I have heard people tell me that how well
I do her meds plays out her bone age. Yes, this has distrubed me. So if her
bone age is advanced, does that mean it's my fault because I didn't do her meds
good enough?
Erin's first dr told us to do meds right on the nose, 8 am, 4 pm, and 11 pm.
But her new one said to do it in the morning, afternoon and night. How strict
are you guys when it comes to med time?
I don't know about you guys, but I still have days when I have a hard time
dealing with the reality that my daughter has CAH - not that I don't love her.
I guess I still feel a little guilty. Today is just one of those days. Sorry!!
Ok I'm not going to leave on a damp note. Here is something to think about
1- pound for pound, hamburgers cost more than new cars
2 - five jello flavors that flopped - celery, coffee, cola, apple, choc. (yuck)
3- The Eisenhower interstate system requires that one mile in every 5 must be
straight. These straight sections are usalbe as airstrips in times of war or
other emergencies.

Thanks for "listening"
Tami





Thu Mar 4, 1999 1:11 am

bsashmead@...
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Message #18 of 242 |
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Hi everyone Courtney is doing better with her RSV. That cough is awful sounding. Where can you get the "emia" numbing cream? I heard that there was a cream...
bsashmead@...
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Mar 4, 1999
1:11 am
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