Here is the response I received from the author. I thought you might all
like to see what he/she had to say!

Angi



----- Original Message -----
From: "K Dorian" <kdorian@...>
To: "Angi Strong" <jaade1@...>
Sent: Sunday, January 13, 2002 10:27 PM
Subject: Re: Research on CAH for fictional story


> Thank you very much for your response, and the
> responses of the list members that you forwarded to
> me. I'm sorry it has taken so long to get back to you;
> no sooner had I sent off my request than I was swamped
> on another project.
>
> It looks like I won't be able to do the story as
> planned; it doesn't sound possible for an infant with
> CAH to survive to adulthood without diagnoses and
> treatment. Even assuming that salt wasting was not an
> issue, adrenal crisis would be fatal for an untreated
> child.
>
> I'm still investigating, and may end up reconfiguring
> the story for a hermaphrodite, or some other medical
> condition that causes confusion regarding gender. If
> so, I will still be mentioning CAH (as part of the
> research the main character does when finally
> diagnosed), but it will not be a central part of the
> story.
>
> Again, thank you so much for your time and effort. The
> information you and your list members provided me was
> able to clear up a great deal of the confusion I had
> from contradictory information on different web sites.
>
> kdorian
>
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