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Copyright © 2002 Yahoo! Inc. All rights reserved. Privacy Policy - Terms of
Service - Help
----- Original Message -----
From: <CAHsupport@yahoogroups.com>
To: <CAHsupport@yahoogroups.com>
Sent: Wednesday, January 09, 2002 8:38 AM
Subject: [CAHsupport] Digest Number 79
> There are 4 messages in this issue.
>
> Topics in this digest:
>
> 1. insurance
> From: "motherofhunter" <JHmphr3@...>
> 2. Re: Digest Number 77
> From: "CARES Foundation, Inc." <Kelly@...>
> 3. Re: Re: Digest Number 77
> From: jaade1 <jaade1@...>
> 4. Re: insurance
> From: "Angi Strong" <jaade1@...>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
> Date: Tue, 08 Jan 2002 15:54:43 -0000
> From: "motherofhunter" <JHmphr3@...>
> Subject: insurance
>
> I have been running into a lot of problems lately dealing with
> insurance coverage for my daughter, she has the salt wasting form of
> cah. I was wondering if others have run into the same thing and some
> of your solutions to this. Currently she is being covered by the
> state but they want to cancel her because we make to much to qualify
> but we have been searching all different insurances and no one will
> pick her up because of her "pre-existing condition" One agent even
> went as far as to tell me that she will never be able to get
> insurance except for the state programs. I am at my wits end with
> this and would appreciate any advice you could give me. Thank you
> Jenny
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 2
> Date: Tue, 8 Jan 2002 13:06:58 -0500
> From: "CARES Foundation, Inc." <Kelly@...>
> Subject: Re: Digest Number 77
>
> Dear Angi,
> I was recently told of a female singer in the UK that was all over the
> papers where she was raised as a male, but discovered in her late teens
that
> she was a female with simple virilizing CAH. You might want to contact the
> CLIMB group in the UK for more information, http://cah.org.uk/. So your
> story is not that far-fetched.
> Some Simple Virilizers can live without going into adrenal crisis. But,
all
> CAH affected individuals should take their meds because this is a risk not
> worth taking.Genital ambiguity in females is common in both forms of
> classical CAH--SW and SV. Some adults only take hydrocortisone and self
> medicate for the salt by consuming what they feel their body needs. Others
> take meds for this purpose. It depends on what the endo recommends and
your
> individual medical needs. Any treatment protocol for CAH affected adults
> should be prescribed by an endocrinologist.
> Good luck with the story and keep us posted on your progress.
> Kelly
>
> Kelly R. Leight, Executive Director
> CARES Foundation, Inc.
> (Congenital Adrenal hyperplasia Research, Education and Support)
> P.O. Box 264
> Short Hills, New Jersey 07078
> 973-912-3895 (CARES voicemail)
> 866-227-3737 (toll free)
> URL: www.caresfoundation.org
> email: kelly@...
>
> ----- Original Message -----
> From: <CAHsupport@yahoogroups.com>
> To: <CAHsupport@yahoogroups.com>
> Sent: Monday, January 07, 2002 8:26 AM
> Subject: [CAHsupport] Digest Number 77
>
>
> > There are 2 messages in this issue.
> >
> > Topics in this digest:
> >
> > 1. Fw: Research on CAH for fictional story
> > From: "Angi Strong" <jaade1@...>
> > 2. Fw: Fw: Research on CAH for fictional story
> > From: "Angi Strong" <jaade1@...>
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> > Message: 1
> > Date: Mon, 7 Jan 2002 06:18:10 -0500
> > From: "Angi Strong" <jaade1@...>
> > Subject: Fw: Research on CAH for fictional story
> >
> >
> > ----- Original Message -----
> > From: "K Dorian" <kdorian@...>
> > To: <CAHsupport-owner@yahoogroups.com>
> > Sent: Sunday, January 06, 2002 3:08 AM
> > Subject: Research on CAH for fictional story
> >
> >
> > > Dear List Owner:
> > >
> > > I am writing because I am searching for information on
> > > CAH. Please allow me to apologize in advance if either
> > > my terminology or the basic premise of my story is
> > > inadvertently offensive.
> > >
> > > I am an amateur writer, and am considering writing a
> > > short fiction story about an individual with classic
> > > CAH. Before I do so, however, I want to make sure I
> > > have my facts correct. I have visited dozens of web
> > > sites with information on CAH, but the information is
> > > frequently contradictory, leaving me very confused.
> > >
> > > Specifically, and assuming I have my facts correct (I
> > > am still in the research stage), my story would be
> > > about a female with Classic CAH who was mis-diagnosed
> > > and raised as a male, and who discovers in "his" late
> > > teens or very early 20s that "he" is actually a
> > > female.
> > >
> > > Obviously, there are a number of factors that would
> > > make this scenario impossible, so the basic outline of
> > > the story may change. For example, some sites seem to
> > > link female genital ambiguity with the salt-losing
> > > variant; if this is correct, I would imagine it would
> > > be very unlikely for a child so misidentified to
> > > remain so and survive. Other sites link it to the
> > > non-salt losing variant, and one site even
> > > contradicted itself in successive paragraphs.
> > >
> > > I am also looking for information on living with
> > > classic CAH. Is taking cortisone the only long-term
> > > necessity? How common or rare is it to have an adrenal
> > > crisis? I am certain there are other questions I
> > > should be asking, but I'm not sure at this point what
> > > they are.
> > >
> > > Do you know of anywhere I can get this information?
> > > Would you be willing to either post an information
> > > request for me, or allow me to post such a request,
> > > with the CAH Support group at Yahoo?
> > >
> > > Thank you for your time.
> > >
> > > __________________________________________________
> > > Do You Yahoo!?
> > > Send FREE video emails in Yahoo! Mail!
> > > http://promo.yahoo.com/videomail/
> > >
> >
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> > Message: 2
> > Date: Mon, 7 Jan 2002 06:20:44 -0500
> > From: "Angi Strong" <jaade1@...>
> > Subject: Fw: Fw: Research on CAH for fictional story
> >
> > Sorry, I forgot to tell you what this is....
> > I received this and thought if anyone would like to personally respond
to
> > this email that I would just post it here for you. I'm still deciding
how
> I
> > feel about this....not that I could say anything one way or the other.
> > Maybe with some well thought out information, the author will treat this
> > subject correctly.
> >
> > Angi
> >
> > ----- Original Message -----
> > From: "Angi Strong" <jaade1@...>
> > To: <cahsupport@yahoogroups.com>
> > Sent: Monday, January 07, 2002 6:18 AM
> > Subject: [CAHsupport] Fw: Research on CAH for fictional story
> >
> >
> > >
> > > ----- Original Message -----
> > > From: "K Dorian" <kdorian@...>
> > > To: <CAHsupport-owner@yahoogroups.com>
> > > Sent: Sunday, January 06, 2002 3:08 AM
> > > Subject: Research on CAH for fictional story
> > >
> > >
> > > > Dear List Owner:
> > > >
> > > > I am writing because I am searching for information on
> > > > CAH. Please allow me to apologize in advance if either
> > > > my terminology or the basic premise of my story is
> > > > inadvertently offensive.
> > > >
> > > > I am an amateur writer, and am considering writing a
> > > > short fiction story about an individual with classic
> > > > CAH. Before I do so, however, I want to make sure I
> > > > have my facts correct. I have visited dozens of web
> > > > sites with information on CAH, but the information is
> > > > frequently contradictory, leaving me very confused.
> > > >
> > > > Specifically, and assuming I have my facts correct (I
> > > > am still in the research stage), my story would be
> > > > about a female with Classic CAH who was mis-diagnosed
> > > > and raised as a male, and who discovers in "his" late
> > > > teens or very early 20s that "he" is actually a
> > > > female.
> > > >
> > > > Obviously, there are a number of factors that would
> > > > make this scenario impossible, so the basic outline of
> > > > the story may change. For example, some sites seem to
> > > > link female genital ambiguity with the salt-losing
> > > > variant; if this is correct, I would imagine it would
> > > > be very unlikely for a child so misidentified to
> > > > remain so and survive. Other sites link it to the
> > > > non-salt losing variant, and one site even
> > > > contradicted itself in successive paragraphs.
> > > >
> > > > I am also looking for information on living with
> > > > classic CAH. Is taking cortisone the only long-term
> > > > necessity? How common or rare is it to have an adrenal
> > > > crisis? I am certain there are other questions I
> > > > should be asking, but I'm not sure at this point what
> > > > they are.
> > > >
> > > > Do you know of anywhere I can get this information?
> > > > Would you be willing to either post an information
> > > > request for me, or allow me to post such a request,
> > > > with the CAH Support group at Yahoo?
> > > >
> > > > Thank you for your time.
> > > >
> > > > __________________________________________________
> > > > Do You Yahoo!?
> > > > Send FREE video emails in Yahoo! Mail!
> > > > http://promo.yahoo.com/videomail/
> > > >
> > >
> > >
> > >
> > >
> > >
> > > Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
> > >
> > >
> >
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >
> >
> >
> >
>
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 3
> Date: Tue, 8 Jan 2002 11:37:14 -0800 (PST)
> From: jaade1 <jaade1@...>
> Subject: Re: Re: Digest Number 77
>
> I just want to repeat that this was not a request on my part. I was
simply
> forwarding an email from an author who contacted me. If you would like to
> reply to him/her, I included the forwarding address in the original email.
>
> Angi
>
>
>
>
>
> >On Tue, 8 Jan 2002 13:06:58 -0500 "CARES Foundation, Inc."
> <Kelly@...> wrote.
> >Dear Angi,
> >I was recently told of a female singer in the UK that was all over the
> >papers where she was raised as a male, but discovered in her late teens
> that
> >she was a female with simple virilizing CAH. You might want to contact
the
> >CLIMB group in the UK for more information, http://cah.org.uk/. So your
> >story is not that far-fetched.
> >Some Simple Virilizers can live without going into adrenal crisis. But,
all
> >CAH affected individuals should take their meds because this is a risk
not
> >worth taking.Genital ambiguity in females is common in both forms of
> >classical CAH--SW and SV. Some adults only take hydrocortisone and self
> >medicate for the salt by consuming what they feel their body needs.
Others
> >take meds for this purpose. It depends on what the endo recommends and
your
> >individual medical needs. Any treatment protocol for CAH affected adults
> >should be prescribed by an endocrinologist.
> >Good luck with the story and keep us posted on your progress.
> >Kelly
> >
> >Kelly R. Leight, Executive Director
> >CARES Foundation, Inc.
> >(Congenital Adrenal hyperplasia Research, Education and Support)
> >P.O. Box 264
> >Short Hills, New Jersey 07078
> >973-912-3895 (CARES voicemail)
> >866-227-3737 (toll free)
> >URL: www.caresfoundation.org
> >email: kelly@...
> >
> >----- Original Message -----
> >From: <CAHsupport@yahoogroups.com>
> >To: <CAHsupport@yahoogroups.com>
> >Sent: Monday, January 07, 2002 8:26 AM
> >Subject: [CAHsupport] Digest Number 77
> >
> >
> >> There are 2 messages in this issue.
> >>
> >> Topics in this digest:
> >>
> >> 1. Fw: Research on CAH for fictional story
> >> From: "Angi Strong" <jaade1@...>
> >> 2. Fw: Fw: Research on CAH for fictional story
> >> From: "Angi Strong" <jaade1@...>
> >>
> >>
> >>
________________________________________________________________________
> >>
________________________________________________________________________
> >>
> >> Message: 1
> >> Date: Mon, 7 Jan 2002 06:18:10 -0500
> >> From: "Angi Strong" <jaade1@...>
> >> Subject: Fw: Research on CAH for fictional story
> >>
> >>
> >> ----- Original Message -----
> >> From: "K Dorian" <kdorian@...>
> >> To: <CAHsupport-owner@yahoogroups.com>
> >> Sent: Sunday, January 06, 2002 3:08 AM
> >> Subject: Research on CAH for fictional story
> >>
> >>
> >> > Dear List Owner:
> >> >
> >> > I am writing because I am searching for information on
> >> > CAH. Please allow me to apologize in advance if either
> >> > my terminology or the basic premise of my story is
> >> > inadvertently offensive.
> >> >
> >> > I am an amateur writer, and am considering writing a
> >> > short fiction story about an individual with classic
> >> > CAH. Before I do so, however, I want to make sure I
> >> > have my facts correct. I have visited dozens of web
> >> > sites with information on CAH, but the information is
> >> > frequently contradictory, leaving me very confused.
> >> >
> >> > Specifically, and assuming I have my facts correct (I
> >> > am still in the research stage), my story would be
> >> > about a female with Classic CAH who was mis-diagnosed
> >> > and raised as a male, and who discovers in "his" late
> >> > teens or very early 20s that "he" is actually a
> >> > female.
> >> >
> >> > Obviously, there are a number of factors that would
> >> > make this scenario impossible, so the basic outline of
> >> > the story may change. For example, some sites seem to
> >> > link female genital ambiguity with the salt-losing
> >> > variant; if this is correct, I would imagine it would
> >> > be very unlikely for a child so misidentified to
> >> > remain so and survive. Other sites link it to the
> >> > non-salt losing variant, and one site even
> >> > contradicted itself in successive paragraphs.
> >> >
> >> > I am also looking for information on living with
> >> > classic CAH. Is taking cortisone the only long-term
> >> > necessity? How common or rare is it to have an adrenal
> >> > crisis? I am certain there are other questions I
> >> > should be asking, but I'm not sure at this point what
> >> > they are.
> >> >
> >> > Do you know of anywhere I can get this information?
> >> > Would you be willing to either post an information
> >> > request for me, or allow me to post such a request,
> >> > with the CAH Support group at Yahoo?
> >> >
> >> > Thank you for your time.
> >> >
> >> > __________________________________________________
> >> > Do You Yahoo!?
> >> > Send FREE video emails in Yahoo! Mail!
> >> > http://promo.yahoo.com/videomail/
> >> >
> >>
> >>
> >>
> >>
________________________________________________________________________
> >>
________________________________________________________________________
> >>
> >> Message: 2
> >> Date: Mon, 7 Jan 2002 06:20:44 -0500
> >> From: "Angi Strong" <jaade1@...>
> >> Subject: Fw: Fw: Research on CAH for fictional story
> >>
> >> Sorry, I forgot to tell you what this is....
> >> I received this and thought if anyone would like to personally respond
to
> >> this email that I would just post it here for you. I'm still deciding
> how
> >I
> >> feel about this....not that I could say anything one way or the other.
> >> Maybe with some well thought out information, the author will treat
this
> >> subject correctly.
> >>
> >> Angi
> >>
> >> ----- Original Message -----
> >> From: "Angi Strong" <jaade1@...>
> >> To: <cahsupport@yahoogroups.com>
> >> Sent: Monday, January 07, 2002 6:18 AM
> >> Subject: [CAHsupport] Fw: Research on CAH for fictional story
> >>
> >>
> >> >
> >> > ----- Original Message -----
> >> > From: "K Dorian" <kdorian@...>
> >> > To: <CAHsupport-owner@yahoogroups.com>
> >> > Sent: Sunday, January 06, 2002 3:08 AM
> >> > Subject: Research on CAH for fictional story
> >> >
> >> >
> >> > > Dear List Owner:
> >> > >
> >> > > I am writing because I am searching for information on
> >> > > CAH. Please allow me to apologize in advance if either
> >> > > my terminology or the basic premise of my story is
> >> > > inadvertently offensive.
> >> > >
> >> > > I am an amateur writer, and am considering writing a
> >> > > short fiction story about an individual with classic
> >> > > CAH. Before I do so, however, I want to make sure I
> >> > > have my facts correct. I have visited dozens of web
> >> > > sites with information on CAH, but the information is
> >> > > frequently contradictory, leaving me very confused.
> >> > >
> >> > > Specifically, and assuming I have my facts correct (I
> >> > > am still in the research stage), my story would be
> >> > > about a female with Classic CAH who was mis-diagnosed
> >> > > and raised as a male, and who discovers in "his" late
> >> > > teens or very early 20s that "he" is actually a
> >> > > female.
> >> > >
> >> > > Obviously, there are a number of factors that would
> >> > > make this scenario impossible, so the basic outline of
> >> > > the story may change. For example, some sites seem to
> >> > > link female genital ambiguity with the salt-losing
> >> > > variant; if this is correct, I would imagine it would
> >> > > be very unlikely for a child so misidentified to
> >> > > remain so and survive. Other sites link it to the
> >> > > non-salt losing variant, and one site even
> >> > > contradicted itself in successive paragraphs.
> >> > >
> >> > > I am also looking for information on living with
> >> > > classic CAH. Is taking cortisone the only long-term
> >> > > necessity? How common or rare is it to have an adrenal
> >> > > crisis? I am certain there are other questions I
> >> > > should be asking, but I'm not sure at this point what
> >> > > they are.
> >> > >
> >> > > Do you know of anywhere I can get this information?
> >> > > Would you be willing to either post an information
> >> > > request for me, or allow me to post such a request,
> >> > > with the CAH Support group at Yahoo?
> >> > >
> >> > > Thank you for your time.
> >> > >
> >> > > __________________________________________________
> >> > > Do You Yahoo!?
> >> > > Send FREE video emails in Yahoo! Mail!
> >> > > http://promo.yahoo.com/videomail/
> >> > >
> >> >
> >> >
> >> >
> >> >
> >> >
> >> > Your use of Yahoo! Groups is subject to
> >http://docs.yahoo.com/info/terms/
> >> >
> >> >
> >>
> >>
> >>
> >>
________________________________________________________________________
> >>
________________________________________________________________________
> >>
> >>
> >>
> >> Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >>
> >>
> >>
> >>
> >
> >
> >
> >
> >
> >
> >Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 4
> Date: Tue, 8 Jan 2002 17:52:38 -0500
> From: "Angi Strong" <jaade1@...>
> Subject: Re: insurance
>
> Jenny,
> Unfortunately I have no advice for you. We've been in the military
for
> the entire time the girls' have been with us....and have always had
problems
> too. Just wanted you to know I can totally sympathize with your
situation.
> We've actually been able to buy a supplement insurance to our military
> coverage, but had to pay for two years before coverage would begin.
> Unfortunately, they decided to drop us after a few years of being covered
> because TriCare (our military insurance) was "too difficult to deal with".
> They were bought out by another company who covered us, and then when we
> moved to NC they decided to drop us all together claiming they didn't
cover
> anyone in the Carolina's....I suspect its because 50% of the armed
services
> live here! LOL! (Actually, it's not funny, but its either laugh or cry
at
> this point!) So, we're back to hunting. I know we need to get them into
an
> insurance plan before they get out on their own, which is probably sooner
> than I'd like! Let me know if you find someone who will cover your
> daughter, and if I find someone, I'll post too.
>
> Angi
>
> ----- Original Message -----
> From: "motherofhunter" <JHmphr3@...>
> To: <CAHsupport@yahoogroups.com>
> Sent: Tuesday, January 08, 2002 10:54 AM
> Subject: [CAHsupport] insurance
>
>
> > I have been running into a lot of problems lately dealing with
> > insurance coverage for my daughter, she has the salt wasting form of
> > cah. I was wondering if others have run into the same thing and some
> > of your solutions to this. Currently she is being covered by the
> > state but they want to cancel her because we make to much to qualify
> > but we have been searching all different insurances and no one will
> > pick her up because of her "pre-existing condition" One agent even
> > went as far as to tell me that she will never be able to get
> > insurance except for the state programs. I am at my wits end with
> > this and would appreciate any advice you could give me. Thank you
> > Jenny
> >
> >
> >
> >
> >
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