Insurance problem is terrible!! Did you write Kelly at CARES and see if she
knows of anything. I would be lost without my health and dental insurance. I
work for the federal government and it hasn't been a problem for me to get
coverage for CAH. My insurance payments are going up this year is the only
thing but the blood test and doctor's appointment are very expensive. And
then to think about the times that I have had to go to the ER - and have IV
so they did not have adrenal crisis and die. With a fever - you can not
chance it. .. just go to the hospital and get the IVs.

----- Original Message -----
From: <CAHsupport@yahoogroups.com>
To: <CAHsupport@yahoogroups.com>
Sent: Wednesday, January 09, 2002 8:38 AM
Subject: [CAHsupport] Digest Number 79


> There are 4 messages in this issue.
>
> Topics in this digest:
>
> 1. insurance
> From: "motherofhunter" <JHmphr3@...>
> 2. Re: Digest Number 77
> From: "CARES Foundation, Inc." <Kelly@...>
> 3. Re: Re: Digest Number 77
> From: jaade1 <jaade1@...>
> 4. Re: insurance
> From: "Angi Strong" <jaade1@...>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
> Date: Tue, 08 Jan 2002 15:54:43 -0000
> From: "motherofhunter" <JHmphr3@...>
> Subject: insurance
>
> I have been running into a lot of problems lately dealing with
> insurance coverage for my daughter, she has the salt wasting form of
> cah. I was wondering if others have run into the same thing and some
> of your solutions to this. Currently she is being covered by the
> state but they want to cancel her because we make to much to qualify
> but we have been searching all different insurances and no one will
> pick her up because of her "pre-existing condition" One agent even
> went as far as to tell me that she will never be able to get
> insurance except for the state programs. I am at my wits end with
> this and would appreciate any advice you could give me. Thank you
> Jenny
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 2
> Date: Tue, 8 Jan 2002 13:06:58 -0500
> From: "CARES Foundation, Inc." <Kelly@...>
> Subject: Re: Digest Number 77
>
> Dear Angi,
> I was recently told of a female singer in the UK that was all over the
> papers where she was raised as a male, but discovered in her late teens
that
> she was a female with simple virilizing CAH. You might want to contact the
> CLIMB group in the UK for more information, http://cah.org.uk/. So your
> story is not that far-fetched.
> Some Simple Virilizers can live without going into adrenal crisis. But,
all
> CAH affected individuals should take their meds because this is a risk not
> worth taking.Genital ambiguity in females is common in both forms of
> classical CAH--SW and SV. Some adults only take hydrocortisone and self
> medicate for the salt by consuming what they feel their body needs. Others
> take meds for this purpose. It depends on what the endo recommends and
your
> individual medical needs. Any treatment protocol for CAH affected adults
> should be prescribed by an endocrinologist.
> Good luck with the story and keep us posted on your progress.
> Kelly
>
> Kelly R. Leight, Executive Director
> CARES Foundation, Inc.
> (Congenital Adrenal hyperplasia Research, Education and Support)
> P.O. Box 264
> Short Hills, New Jersey 07078
> 973-912-3895 (CARES voicemail)
> 866-227-3737 (toll free)
> URL: www.caresfoundation.org
> email: kelly@...
>
> ----- Original Message -----
> From: <CAHsupport@yahoogroups.com>
> To: <CAHsupport@yahoogroups.com>
> Sent: Monday, January 07, 2002 8:26 AM
> Subject: [CAHsupport] Digest Number 77
>
>
> > There are 2 messages in this issue.
> >
> > Topics in this digest:
> >
> > 1. Fw: Research on CAH for fictional story
> > From: "Angi Strong" <jaade1@...>
> > 2. Fw: Fw: Research on CAH for fictional story
> > From: "Angi Strong" <jaade1@...>
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> > Message: 1
> > Date: Mon, 7 Jan 2002 06:18:10 -0500
> > From: "Angi Strong" <jaade1@...>
> > Subject: Fw: Research on CAH for fictional story
> >
> >
> > ----- Original Message -----
> > From: "K Dorian" <kdorian@...>
> > To: <CAHsupport-owner@yahoogroups.com>
> > Sent: Sunday, January 06, 2002 3:08 AM
> > Subject: Research on CAH for fictional story
> >
> >
> > > Dear List Owner:
> > >
> > > I am writing because I am searching for information on
> > > CAH. Please allow me to apologize in advance if either
> > > my terminology or the basic premise of my story is
> > > inadvertently offensive.
> > >
> > > I am an amateur writer, and am considering writing a
> > > short fiction story about an individual with classic
> > > CAH. Before I do so, however, I want to make sure I
> > > have my facts correct. I have visited dozens of web
> > > sites with information on CAH, but the information is
> > > frequently contradictory, leaving me very confused.
> > >
> > > Specifically, and assuming I have my facts correct (I
> > > am still in the research stage), my story would be
> > > about a female with Classic CAH who was mis-diagnosed
> > > and raised as a male, and who discovers in "his" late
> > > teens or very early 20s that "he" is actually a
> > > female.
> > >
> > > Obviously, there are a number of factors that would
> > > make this scenario impossible, so the basic outline of
> > > the story may change. For example, some sites seem to
> > > link female genital ambiguity with the salt-losing
> > > variant; if this is correct, I would imagine it would
> > > be very unlikely for a child so misidentified to
> > > remain so and survive. Other sites link it to the
> > > non-salt losing variant, and one site even
> > > contradicted itself in successive paragraphs.
> > >
> > > I am also looking for information on living with
> > > classic CAH. Is taking cortisone the only long-term
> > > necessity? How common or rare is it to have an adrenal
> > > crisis? I am certain there are other questions I
> > > should be asking, but I'm not sure at this point what
> > > they are.
> > >
> > > Do you know of anywhere I can get this information?
> > > Would you be willing to either post an information
> > > request for me, or allow me to post such a request,
> > > with the CAH Support group at Yahoo?
> > >
> > > Thank you for your time.
> > >
> > > __________________________________________________
> > > Do You Yahoo!?
> > > Send FREE video emails in Yahoo! Mail!
> > > http://promo.yahoo.com/videomail/
> > >
> >
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> > Message: 2
> > Date: Mon, 7 Jan 2002 06:20:44 -0500
> > From: "Angi Strong" <jaade1@...>
> > Subject: Fw: Fw: Research on CAH for fictional story
> >
> > Sorry, I forgot to tell you what this is....
> > I received this and thought if anyone would like to personally respond
to
> > this email that I would just post it here for you. I'm still deciding
how
> I
> > feel about this....not that I could say anything one way or the other.
> > Maybe with some well thought out information, the author will treat this
> > subject correctly.
> >
> > Angi
> >
> > ----- Original Message -----
> > From: "Angi Strong" <jaade1@...>
> > To: <cahsupport@yahoogroups.com>
> > Sent: Monday, January 07, 2002 6:18 AM
> > Subject: [CAHsupport] Fw: Research on CAH for fictional story
> >
> >
> > >
> > > ----- Original Message -----
> > > From: "K Dorian" <kdorian@...>
> > > To: <CAHsupport-owner@yahoogroups.com>
> > > Sent: Sunday, January 06, 2002 3:08 AM
> > > Subject: Research on CAH for fictional story
> > >
> > >
> > > > Dear List Owner:
> > > >
> > > > I am writing because I am searching for information on
> > > > CAH. Please allow me to apologize in advance if either
> > > > my terminology or the basic premise of my story is
> > > > inadvertently offensive.
> > > >
> > > > I am an amateur writer, and am considering writing a
> > > > short fiction story about an individual with classic
> > > > CAH. Before I do so, however, I want to make sure I
> > > > have my facts correct. I have visited dozens of web
> > > > sites with information on CAH, but the information is
> > > > frequently contradictory, leaving me very confused.
> > > >
> > > > Specifically, and assuming I have my facts correct (I
> > > > am still in the research stage), my story would be
> > > > about a female with Classic CAH who was mis-diagnosed
> > > > and raised as a male, and who discovers in "his" late
> > > > teens or very early 20s that "he" is actually a
> > > > female.
> > > >
> > > > Obviously, there are a number of factors that would
> > > > make this scenario impossible, so the basic outline of
> > > > the story may change. For example, some sites seem to
> > > > link female genital ambiguity with the salt-losing
> > > > variant; if this is correct, I would imagine it would
> > > > be very unlikely for a child so misidentified to
> > > > remain so and survive. Other sites link it to the
> > > > non-salt losing variant, and one site even
> > > > contradicted itself in successive paragraphs.
> > > >
> > > > I am also looking for information on living with
> > > > classic CAH. Is taking cortisone the only long-term
> > > > necessity? How common or rare is it to have an adrenal
> > > > crisis? I am certain there are other questions I
> > > > should be asking, but I'm not sure at this point what
> > > > they are.
> > > >
> > > > Do you know of anywhere I can get this information?
> > > > Would you be willing to either post an information
> > > > request for me, or allow me to post such a request,
> > > > with the CAH Support group at Yahoo?
> > > >
> > > > Thank you for your time.
> > > >
> > > > __________________________________________________
> > > > Do You Yahoo!?
> > > > Send FREE video emails in Yahoo! Mail!
> > > > http://promo.yahoo.com/videomail/
> > > >
> > >
> > >
> > >
> > >
> > >
> > > Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
> > >
> > >
> >
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >
> >
> >
> >
>
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 3
> Date: Tue, 8 Jan 2002 11:37:14 -0800 (PST)
> From: jaade1 <jaade1@...>
> Subject: Re: Re: Digest Number 77
>
> I just want to repeat that this was not a request on my part. I was
simply
> forwarding an email from an author who contacted me. If you would like to
> reply to him/her, I included the forwarding address in the original email.
>
> Angi
>
>
>
>
>
> >On Tue, 8 Jan 2002 13:06:58 -0500 "CARES Foundation, Inc."
> <Kelly@...> wrote.
> >Dear Angi,
> >I was recently told of a female singer in the UK that was all over the
> >papers where she was raised as a male, but discovered in her late teens
> that
> >she was a female with simple virilizing CAH. You might want to contact
the
> >CLIMB group in the UK for more information, http://cah.org.uk/. So your
> >story is not that far-fetched.
> >Some Simple Virilizers can live without going into adrenal crisis. But,
all
> >CAH affected individuals should take their meds because this is a risk
not
> >worth taking.Genital ambiguity in females is common in both forms of
> >classical CAH--SW and SV. Some adults only take hydrocortisone and self
> >medicate for the salt by consuming what they feel their body needs.
Others
> >take meds for this purpose. It depends on what the endo recommends and
your
> >individual medical needs. Any treatment protocol for CAH affected adults
> >should be prescribed by an endocrinologist.
> >Good luck with the story and keep us posted on your progress.
> >Kelly
> >
> >Kelly R. Leight, Executive Director
> >CARES Foundation, Inc.
> >(Congenital Adrenal hyperplasia Research, Education and Support)
> >P.O. Box 264
> >Short Hills, New Jersey 07078
> >973-912-3895 (CARES voicemail)
> >866-227-3737 (toll free)
> >URL: www.caresfoundation.org
> >email: kelly@...
> >
> >----- Original Message -----
> >From: <CAHsupport@yahoogroups.com>
> >To: <CAHsupport@yahoogroups.com>
> >Sent: Monday, January 07, 2002 8:26 AM
> >Subject: [CAHsupport] Digest Number 77
> >
> >
> >> There are 2 messages in this issue.
> >>
> >> Topics in this digest:
> >>
> >> 1. Fw: Research on CAH for fictional story
> >> From: "Angi Strong" <jaade1@...>
> >> 2. Fw: Fw: Research on CAH for fictional story
> >> From: "Angi Strong" <jaade1@...>
> >>
> >>
> >>
________________________________________________________________________
> >>
________________________________________________________________________
> >>
> >> Message: 1
> >> Date: Mon, 7 Jan 2002 06:18:10 -0500
> >> From: "Angi Strong" <jaade1@...>
> >> Subject: Fw: Research on CAH for fictional story
> >>
> >>
> >> ----- Original Message -----
> >> From: "K Dorian" <kdorian@...>
> >> To: <CAHsupport-owner@yahoogroups.com>
> >> Sent: Sunday, January 06, 2002 3:08 AM
> >> Subject: Research on CAH for fictional story
> >>
> >>
> >> > Dear List Owner:
> >> >
> >> > I am writing because I am searching for information on
> >> > CAH. Please allow me to apologize in advance if either
> >> > my terminology or the basic premise of my story is
> >> > inadvertently offensive.
> >> >
> >> > I am an amateur writer, and am considering writing a
> >> > short fiction story about an individual with classic
> >> > CAH. Before I do so, however, I want to make sure I
> >> > have my facts correct. I have visited dozens of web
> >> > sites with information on CAH, but the information is
> >> > frequently contradictory, leaving me very confused.
> >> >
> >> > Specifically, and assuming I have my facts correct (I
> >> > am still in the research stage), my story would be
> >> > about a female with Classic CAH who was mis-diagnosed
> >> > and raised as a male, and who discovers in "his" late
> >> > teens or very early 20s that "he" is actually a
> >> > female.
> >> >
> >> > Obviously, there are a number of factors that would
> >> > make this scenario impossible, so the basic outline of
> >> > the story may change. For example, some sites seem to
> >> > link female genital ambiguity with the salt-losing
> >> > variant; if this is correct, I would imagine it would
> >> > be very unlikely for a child so misidentified to
> >> > remain so and survive. Other sites link it to the
> >> > non-salt losing variant, and one site even
> >> > contradicted itself in successive paragraphs.
> >> >
> >> > I am also looking for information on living with
> >> > classic CAH. Is taking cortisone the only long-term
> >> > necessity? How common or rare is it to have an adrenal
> >> > crisis? I am certain there are other questions I
> >> > should be asking, but I'm not sure at this point what
> >> > they are.
> >> >
> >> > Do you know of anywhere I can get this information?
> >> > Would you be willing to either post an information
> >> > request for me, or allow me to post such a request,
> >> > with the CAH Support group at Yahoo?
> >> >
> >> > Thank you for your time.
> >> >
> >> > __________________________________________________
> >> > Do You Yahoo!?
> >> > Send FREE video emails in Yahoo! Mail!
> >> > http://promo.yahoo.com/videomail/
> >> >
> >>
> >>
> >>
> >>
________________________________________________________________________
> >>
________________________________________________________________________
> >>
> >> Message: 2
> >> Date: Mon, 7 Jan 2002 06:20:44 -0500
> >> From: "Angi Strong" <jaade1@...>
> >> Subject: Fw: Fw: Research on CAH for fictional story
> >>
> >> Sorry, I forgot to tell you what this is....
> >> I received this and thought if anyone would like to personally respond
to
> >> this email that I would just post it here for you. I'm still deciding
> how
> >I
> >> feel about this....not that I could say anything one way or the other.
> >> Maybe with some well thought out information, the author will treat
this
> >> subject correctly.
> >>
> >> Angi
> >>
> >> ----- Original Message -----
> >> From: "Angi Strong" <jaade1@...>
> >> To: <cahsupport@yahoogroups.com>
> >> Sent: Monday, January 07, 2002 6:18 AM
> >> Subject: [CAHsupport] Fw: Research on CAH for fictional story
> >>
> >>
> >> >
> >> > ----- Original Message -----
> >> > From: "K Dorian" <kdorian@...>
> >> > To: <CAHsupport-owner@yahoogroups.com>
> >> > Sent: Sunday, January 06, 2002 3:08 AM
> >> > Subject: Research on CAH for fictional story
> >> >
> >> >
> >> > > Dear List Owner:
> >> > >
> >> > > I am writing because I am searching for information on
> >> > > CAH. Please allow me to apologize in advance if either
> >> > > my terminology or the basic premise of my story is
> >> > > inadvertently offensive.
> >> > >
> >> > > I am an amateur writer, and am considering writing a
> >> > > short fiction story about an individual with classic
> >> > > CAH. Before I do so, however, I want to make sure I
> >> > > have my facts correct. I have visited dozens of web
> >> > > sites with information on CAH, but the information is
> >> > > frequently contradictory, leaving me very confused.
> >> > >
> >> > > Specifically, and assuming I have my facts correct (I
> >> > > am still in the research stage), my story would be
> >> > > about a female with Classic CAH who was mis-diagnosed
> >> > > and raised as a male, and who discovers in "his" late
> >> > > teens or very early 20s that "he" is actually a
> >> > > female.
> >> > >
> >> > > Obviously, there are a number of factors that would
> >> > > make this scenario impossible, so the basic outline of
> >> > > the story may change. For example, some sites seem to
> >> > > link female genital ambiguity with the salt-losing
> >> > > variant; if this is correct, I would imagine it would
> >> > > be very unlikely for a child so misidentified to
> >> > > remain so and survive. Other sites link it to the
> >> > > non-salt losing variant, and one site even
> >> > > contradicted itself in successive paragraphs.
> >> > >
> >> > > I am also looking for information on living with
> >> > > classic CAH. Is taking cortisone the only long-term
> >> > > necessity? How common or rare is it to have an adrenal
> >> > > crisis? I am certain there are other questions I
> >> > > should be asking, but I'm not sure at this point what
> >> > > they are.
> >> > >
> >> > > Do you know of anywhere I can get this information?
> >> > > Would you be willing to either post an information
> >> > > request for me, or allow me to post such a request,
> >> > > with the CAH Support group at Yahoo?
> >> > >
> >> > > Thank you for your time.
> >> > >
> >> > > __________________________________________________
> >> > > Do You Yahoo!?
> >> > > Send FREE video emails in Yahoo! Mail!
> >> > > http://promo.yahoo.com/videomail/
> >> > >
> >> >
> >> >
> >> >
> >> >
> >> >
> >> > Your use of Yahoo! Groups is subject to
> >http://docs.yahoo.com/info/terms/
> >> >
> >> >
> >>
> >>
> >>
> >>
________________________________________________________________________
> >>
________________________________________________________________________
> >>
> >>
> >>
> >> Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >>
> >>
> >>
> >>
> >
> >
> >
> >
> >
> >
> >Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 4
> Date: Tue, 8 Jan 2002 17:52:38 -0500
> From: "Angi Strong" <jaade1@...>
> Subject: Re: insurance
>
> Jenny,
> Unfortunately I have no advice for you. We've been in the military
for
> the entire time the girls' have been with us....and have always had
problems
> too. Just wanted you to know I can totally sympathize with your
situation.
> We've actually been able to buy a supplement insurance to our military
> coverage, but had to pay for two years before coverage would begin.
> Unfortunately, they decided to drop us after a few years of being covered
> because TriCare (our military insurance) was "too difficult to deal with".
> They were bought out by another company who covered us, and then when we
> moved to NC they decided to drop us all together claiming they didn't
cover
> anyone in the Carolina's....I suspect its because 50% of the armed
services
> live here! LOL! (Actually, it's not funny, but its either laugh or cry
at
> this point!) So, we're back to hunting. I know we need to get them into
an
> insurance plan before they get out on their own, which is probably sooner
> than I'd like! Let me know if you find someone who will cover your
> daughter, and if I find someone, I'll post too.
>
> Angi
>
> ----- Original Message -----
> From: "motherofhunter" <JHmphr3@...>
> To: <CAHsupport@yahoogroups.com>
> Sent: Tuesday, January 08, 2002 10:54 AM
> Subject: [CAHsupport] insurance
>
>
> > I have been running into a lot of problems lately dealing with
> > insurance coverage for my daughter, she has the salt wasting form of
> > cah. I was wondering if others have run into the same thing and some
> > of your solutions to this. Currently she is being covered by the
> > state but they want to cancel her because we make to much to qualify
> > but we have been searching all different insurances and no one will
> > pick her up because of her "pre-existing condition" One agent even
> > went as far as to tell me that she will never be able to get
> > insurance except for the state programs. I am at my wits end with
> > this and would appreciate any advice you could give me. Thank you
> > Jenny
> >
> >
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>