I just want to repeat that this was not a request on my part. I was simply
forwarding an email from an author who contacted me. If you would like to
reply to him/her, I included the forwarding address in the original email.

Angi





>On Tue, 8 Jan 2002 13:06:58 -0500 "CARES Foundation, Inc."
<Kelly@...> wrote.
>Dear Angi,
>I was recently told of a female singer in the UK that was all over the
>papers where she was raised as a male, but discovered in her late teens
that
>she was a female with simple virilizing CAH. You might want to contact the
>CLIMB group in the UK for more information, http://cah.org.uk/. So your
>story is not that far-fetched.
>Some Simple Virilizers can live without going into adrenal crisis. But, all
>CAH affected individuals should take their meds because this is a risk not
>worth taking.Genital ambiguity in females is common in both forms of
>classical CAH--SW and SV. Some adults only take hydrocortisone and self
>medicate for the salt by consuming what they feel their body needs. Others
>take meds for this purpose. It depends on what the endo recommends and your
>individual medical needs. Any treatment protocol for CAH affected adults
>should be prescribed by an endocrinologist.
>Good luck with the story and keep us posted on your progress.
>Kelly
>
>Kelly R. Leight, Executive Director
>CARES Foundation, Inc.
>(Congenital Adrenal hyperplasia Research, Education and Support)
>P.O. Box 264
>Short Hills, New Jersey 07078
>973-912-3895 (CARES voicemail)
>866-227-3737 (toll free)
>URL: www.caresfoundation.org
>email: kelly@...
>
>----- Original Message -----
>From: <CAHsupport@yahoogroups.com>
>To: <CAHsupport@yahoogroups.com>
>Sent: Monday, January 07, 2002 8:26 AM
>Subject: [CAHsupport] Digest Number 77
>
>
>> There are 2 messages in this issue.
>>
>> Topics in this digest:
>>
>> 1. Fw: Research on CAH for fictional story
>> From: "Angi Strong" <jaade1@...>
>> 2. Fw: Fw: Research on CAH for fictional story
>> From: "Angi Strong" <jaade1@...>
>>
>>
>> ________________________________________________________________________
>> ________________________________________________________________________
>>
>> Message: 1
>> Date: Mon, 7 Jan 2002 06:18:10 -0500
>> From: "Angi Strong" <jaade1@...>
>> Subject: Fw: Research on CAH for fictional story
>>
>>
>> ----- Original Message -----
>> From: "K Dorian" <kdorian@...>
>> To: <CAHsupport-owner@yahoogroups.com>
>> Sent: Sunday, January 06, 2002 3:08 AM
>> Subject: Research on CAH for fictional story
>>
>>
>> > Dear List Owner:
>> >
>> > I am writing because I am searching for information on
>> > CAH. Please allow me to apologize in advance if either
>> > my terminology or the basic premise of my story is
>> > inadvertently offensive.
>> >
>> > I am an amateur writer, and am considering writing a
>> > short fiction story about an individual with classic
>> > CAH. Before I do so, however, I want to make sure I
>> > have my facts correct. I have visited dozens of web
>> > sites with information on CAH, but the information is
>> > frequently contradictory, leaving me very confused.
>> >
>> > Specifically, and assuming I have my facts correct (I
>> > am still in the research stage), my story would be
>> > about a female with Classic CAH who was mis-diagnosed
>> > and raised as a male, and who discovers in "his" late
>> > teens or very early 20s that "he" is actually a
>> > female.
>> >
>> > Obviously, there are a number of factors that would
>> > make this scenario impossible, so the basic outline of
>> > the story may change. For example, some sites seem to
>> > link female genital ambiguity with the salt-losing
>> > variant; if this is correct, I would imagine it would
>> > be very unlikely for a child so misidentified to
>> > remain so and survive. Other sites link it to the
>> > non-salt losing variant, and one site even
>> > contradicted itself in successive paragraphs.
>> >
>> > I am also looking for information on living with
>> > classic CAH. Is taking cortisone the only long-term
>> > necessity? How common or rare is it to have an adrenal
>> > crisis? I am certain there are other questions I
>> > should be asking, but I'm not sure at this point what
>> > they are.
>> >
>> > Do you know of anywhere I can get this information?
>> > Would you be willing to either post an information
>> > request for me, or allow me to post such a request,
>> > with the CAH Support group at Yahoo?
>> >
>> > Thank you for your time.
>> >
>> > __________________________________________________
>> > Do You Yahoo!?
>> > Send FREE video emails in Yahoo! Mail!
>> > http://promo.yahoo.com/videomail/
>> >
>>
>>
>>
>> ________________________________________________________________________
>> ________________________________________________________________________
>>
>> Message: 2
>> Date: Mon, 7 Jan 2002 06:20:44 -0500
>> From: "Angi Strong" <jaade1@...>
>> Subject: Fw: Fw: Research on CAH for fictional story
>>
>> Sorry, I forgot to tell you what this is....
>> I received this and thought if anyone would like to personally respond to
>> this email that I would just post it here for you. I'm still deciding
how
>I
>> feel about this....not that I could say anything one way or the other.
>> Maybe with some well thought out information, the author will treat this
>> subject correctly.
>>
>> Angi
>>
>> ----- Original Message -----
>> From: "Angi Strong" <jaade1@...>
>> To: <cahsupport@yahoogroups.com>
>> Sent: Monday, January 07, 2002 6:18 AM
>> Subject: [CAHsupport] Fw: Research on CAH for fictional story
>>
>>
>> >
>> > ----- Original Message -----
>> > From: "K Dorian" <kdorian@...>
>> > To: <CAHsupport-owner@yahoogroups.com>
>> > Sent: Sunday, January 06, 2002 3:08 AM
>> > Subject: Research on CAH for fictional story
>> >
>> >
>> > > Dear List Owner:
>> > >
>> > > I am writing because I am searching for information on
>> > > CAH. Please allow me to apologize in advance if either
>> > > my terminology or the basic premise of my story is
>> > > inadvertently offensive.
>> > >
>> > > I am an amateur writer, and am considering writing a
>> > > short fiction story about an individual with classic
>> > > CAH. Before I do so, however, I want to make sure I
>> > > have my facts correct. I have visited dozens of web
>> > > sites with information on CAH, but the information is
>> > > frequently contradictory, leaving me very confused.
>> > >
>> > > Specifically, and assuming I have my facts correct (I
>> > > am still in the research stage), my story would be
>> > > about a female with Classic CAH who was mis-diagnosed
>> > > and raised as a male, and who discovers in "his" late
>> > > teens or very early 20s that "he" is actually a
>> > > female.
>> > >
>> > > Obviously, there are a number of factors that would
>> > > make this scenario impossible, so the basic outline of
>> > > the story may change. For example, some sites seem to
>> > > link female genital ambiguity with the salt-losing
>> > > variant; if this is correct, I would imagine it would
>> > > be very unlikely for a child so misidentified to
>> > > remain so and survive. Other sites link it to the
>> > > non-salt losing variant, and one site even
>> > > contradicted itself in successive paragraphs.
>> > >
>> > > I am also looking for information on living with
>> > > classic CAH. Is taking cortisone the only long-term
>> > > necessity? How common or rare is it to have an adrenal
>> > > crisis? I am certain there are other questions I
>> > > should be asking, but I'm not sure at this point what
>> > > they are.
>> > >
>> > > Do you know of anywhere I can get this information?
>> > > Would you be willing to either post an information
>> > > request for me, or allow me to post such a request,
>> > > with the CAH Support group at Yahoo?
>> > >
>> > > Thank you for your time.
>> > >
>> > > __________________________________________________
>> > > Do You Yahoo!?
>> > > Send FREE video emails in Yahoo! Mail!
>> > > http://promo.yahoo.com/videomail/
>> > >
>> >
>> >
>> >
>> >
>> >
>> > Your use of Yahoo! Groups is subject to
>http://docs.yahoo.com/info/terms/
>> >
>> >
>>
>>
>>
>> ________________________________________________________________________
>> ________________________________________________________________________
>>
>>
>>
>> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>>
>>
>>
>>
>
>
>
>
>
>
>Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>