Dear Angi,
I was recently told of a female singer in the UK that was all over the
papers where she was raised as a male, but discovered in her late teens that
she was a female with simple virilizing CAH. You might want to contact the
CLIMB group in the UK for more information, http://cah.org.uk/. So your
story is not that far-fetched.
Some Simple Virilizers can live without going into adrenal crisis. But, all
CAH affected individuals should take their meds because this is a risk not
worth taking.Genital ambiguity in females is common in both forms of
classical CAH--SW and SV. Some adults only take hydrocortisone and self
medicate for the salt by consuming what they feel their body needs. Others
take meds for this purpose. It depends on what the endo recommends and your
individual medical needs. Any treatment protocol for CAH affected adults
should be prescribed by an endocrinologist.
Good luck with the story and keep us posted on your progress.
Kelly

Kelly R. Leight, Executive Director
CARES Foundation, Inc.
(Congenital Adrenal hyperplasia Research, Education and Support)
P.O. Box 264
Short Hills, New Jersey 07078
973-912-3895 (CARES voicemail)
866-227-3737 (toll free)
URL: www.caresfoundation.org
email: kelly@...

----- Original Message -----
From: <CAHsupport@yahoogroups.com>
To: <CAHsupport@yahoogroups.com>
Sent: Monday, January 07, 2002 8:26 AM
Subject: [CAHsupport] Digest Number 77


> There are 2 messages in this issue.
>
> Topics in this digest:
>
> 1. Fw: Research on CAH for fictional story
> From: "Angi Strong" <jaade1@...>
> 2. Fw: Fw: Research on CAH for fictional story
> From: "Angi Strong" <jaade1@...>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
> Date: Mon, 7 Jan 2002 06:18:10 -0500
> From: "Angi Strong" <jaade1@...>
> Subject: Fw: Research on CAH for fictional story
>
>
> ----- Original Message -----
> From: "K Dorian" <kdorian@...>
> To: <CAHsupport-owner@yahoogroups.com>
> Sent: Sunday, January 06, 2002 3:08 AM
> Subject: Research on CAH for fictional story
>
>
> > Dear List Owner:
> >
> > I am writing because I am searching for information on
> > CAH. Please allow me to apologize in advance if either
> > my terminology or the basic premise of my story is
> > inadvertently offensive.
> >
> > I am an amateur writer, and am considering writing a
> > short fiction story about an individual with classic
> > CAH. Before I do so, however, I want to make sure I
> > have my facts correct. I have visited dozens of web
> > sites with information on CAH, but the information is
> > frequently contradictory, leaving me very confused.
> >
> > Specifically, and assuming I have my facts correct (I
> > am still in the research stage), my story would be
> > about a female with Classic CAH who was mis-diagnosed
> > and raised as a male, and who discovers in "his" late
> > teens or very early 20s that "he" is actually a
> > female.
> >
> > Obviously, there are a number of factors that would
> > make this scenario impossible, so the basic outline of
> > the story may change. For example, some sites seem to
> > link female genital ambiguity with the salt-losing
> > variant; if this is correct, I would imagine it would
> > be very unlikely for a child so misidentified to
> > remain so and survive. Other sites link it to the
> > non-salt losing variant, and one site even
> > contradicted itself in successive paragraphs.
> >
> > I am also looking for information on living with
> > classic CAH. Is taking cortisone the only long-term
> > necessity? How common or rare is it to have an adrenal
> > crisis? I am certain there are other questions I
> > should be asking, but I'm not sure at this point what
> > they are.
> >
> > Do you know of anywhere I can get this information?
> > Would you be willing to either post an information
> > request for me, or allow me to post such a request,
> > with the CAH Support group at Yahoo?
> >
> > Thank you for your time.
> >
> > __________________________________________________
> > Do You Yahoo!?
> > Send FREE video emails in Yahoo! Mail!
> > http://promo.yahoo.com/videomail/
> >
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 2
> Date: Mon, 7 Jan 2002 06:20:44 -0500
> From: "Angi Strong" <jaade1@...>
> Subject: Fw: Fw: Research on CAH for fictional story
>
> Sorry, I forgot to tell you what this is....
> I received this and thought if anyone would like to personally respond to
> this email that I would just post it here for you. I'm still deciding how
I
> feel about this....not that I could say anything one way or the other.
> Maybe with some well thought out information, the author will treat this
> subject correctly.
>
> Angi
>
> ----- Original Message -----
> From: "Angi Strong" <jaade1@...>
> To: <cahsupport@yahoogroups.com>
> Sent: Monday, January 07, 2002 6:18 AM
> Subject: [CAHsupport] Fw: Research on CAH for fictional story
>
>
> >
> > ----- Original Message -----
> > From: "K Dorian" <kdorian@...>
> > To: <CAHsupport-owner@yahoogroups.com>
> > Sent: Sunday, January 06, 2002 3:08 AM
> > Subject: Research on CAH for fictional story
> >
> >
> > > Dear List Owner:
> > >
> > > I am writing because I am searching for information on
> > > CAH. Please allow me to apologize in advance if either
> > > my terminology or the basic premise of my story is
> > > inadvertently offensive.
> > >
> > > I am an amateur writer, and am considering writing a
> > > short fiction story about an individual with classic
> > > CAH. Before I do so, however, I want to make sure I
> > > have my facts correct. I have visited dozens of web
> > > sites with information on CAH, but the information is
> > > frequently contradictory, leaving me very confused.
> > >
> > > Specifically, and assuming I have my facts correct (I
> > > am still in the research stage), my story would be
> > > about a female with Classic CAH who was mis-diagnosed
> > > and raised as a male, and who discovers in "his" late
> > > teens or very early 20s that "he" is actually a
> > > female.
> > >
> > > Obviously, there are a number of factors that would
> > > make this scenario impossible, so the basic outline of
> > > the story may change. For example, some sites seem to
> > > link female genital ambiguity with the salt-losing
> > > variant; if this is correct, I would imagine it would
> > > be very unlikely for a child so misidentified to
> > > remain so and survive. Other sites link it to the
> > > non-salt losing variant, and one site even
> > > contradicted itself in successive paragraphs.
> > >
> > > I am also looking for information on living with
> > > classic CAH. Is taking cortisone the only long-term
> > > necessity? How common or rare is it to have an adrenal
> > > crisis? I am certain there are other questions I
> > > should be asking, but I'm not sure at this point what
> > > they are.
> > >
> > > Do you know of anywhere I can get this information?
> > > Would you be willing to either post an information
> > > request for me, or allow me to post such a request,
> > > with the CAH Support group at Yahoo?
> > >
> > > Thank you for your time.
> > >
> > > __________________________________________________
> > > Do You Yahoo!?
> > > Send FREE video emails in Yahoo! Mail!
> > > http://promo.yahoo.com/videomail/
> > >
> >
> >
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>
>
>