wow!! that is not as strange as you think... but you would have to set the
story back in a time. I think that you should read medical journal about
how CAH was discovered. It was about 50 years ago. Because children would
die from it (adrenal crisis) and no one knew why. A baby girl with severe
salt wasting form and severely virilized - might have died and been named a
boy's name. She would have never lived the tale that you wish to tell. Or a
baby boy with untreated CAH can die and again no one would know why? Crib
death? This still happens today. CAH is rare and doctors don't think about
testing for it especially the baby boy with CAH. My son almost died for
exactly that reason. Now about 20 or so states require newborn testing for
CAH. Yes - taking the cortisol medication every day is necessary - or you
will die ... a slow and painful death. My email is preston@... if
you really want to know a parents point of view of CAH. I had a daughter
die from adrenal crisis at age 2 years. I have two boys with CAH (salt
wasting form).

Go to this web page http://congenitaladrenalhyperplasia.org/mb/page1.htm and
email Betsy. ... she suffered from bad surgeries and is having a difficult
time with the sexual feelings because the surgeries were not done correctly
in the past. Some of the CAH females had butchers for doctors. It is very
frightful to think about the past and how these doctor used these girls for
experimental purposes because they were not experts in these surgeries.
Doctors are fascinated by CAH. Somewhat like you. Betsy thinks that surgery
should not be done. I disagree... times have changed but I do agree that
there only a few doctor in the United States that can successful perform
the surgeries. I can understand her resentment and pain.

Anyway, I suggest you chat with Betsy. You can listen to what she has to say
but remember that she was born in a time that surgery was not that good for
reconstruction of virilized female.

----- Original Message -----
From: <CAHsupport@yahoogroups.com>
To: <CAHsupport@yahoogroups.com>
Sent: Monday, January 07, 2002 8:26 AM
Subject: [CAHsupport] Digest Number 77


> There are 2 messages in this issue.
>
> Topics in this digest:
>
> 1. Fw: Research on CAH for fictional story
> From: "Angi Strong" <jaade1@...>
> 2. Fw: Fw: Research on CAH for fictional story
> From: "Angi Strong" <jaade1@...>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
> Date: Mon, 7 Jan 2002 06:18:10 -0500
> From: "Angi Strong" <jaade1@...>
> Subject: Fw: Research on CAH for fictional story
>
>
> ----- Original Message -----
> From: "K Dorian" <kdorian@...>
> To: <CAHsupport-owner@yahoogroups.com>
> Sent: Sunday, January 06, 2002 3:08 AM
> Subject: Research on CAH for fictional story
>
>
> > Dear List Owner:
> >
> > I am writing because I am searching for information on
> > CAH. Please allow me to apologize in advance if either
> > my terminology or the basic premise of my story is
> > inadvertently offensive.
> >
> > I am an amateur writer, and am considering writing a
> > short fiction story about an individual with classic
> > CAH. Before I do so, however, I want to make sure I
> > have my facts correct. I have visited dozens of web
> > sites with information on CAH, but the information is
> > frequently contradictory, leaving me very confused.
> >
> > Specifically, and assuming I have my facts correct (I
> > am still in the research stage), my story would be
> > about a female with Classic CAH who was mis-diagnosed
> > and raised as a male, and who discovers in "his" late
> > teens or very early 20s that "he" is actually a
> > female.
> >
> > Obviously, there are a number of factors that would
> > make this scenario impossible, so the basic outline of
> > the story may change. For example, some sites seem to
> > link female genital ambiguity with the salt-losing
> > variant; if this is correct, I would imagine it would
> > be very unlikely for a child so misidentified to
> > remain so and survive. Other sites link it to the
> > non-salt losing variant, and one site even
> > contradicted itself in successive paragraphs.
> >
> > I am also looking for information on living with
> > classic CAH. Is taking cortisone the only long-term
> > necessity? How common or rare is it to have an adrenal
> > crisis? I am certain there are other questions I
> > should be asking, but I'm not sure at this point what
> > they are.
> >
> > Do you know of anywhere I can get this information?
> > Would you be willing to either post an information
> > request for me, or allow me to post such a request,
> > with the CAH Support group at Yahoo?
> >
> > Thank you for your time.
> >
> > __________________________________________________
> > Do You Yahoo!?
> > Send FREE video emails in Yahoo! Mail!
> > http://promo.yahoo.com/videomail/
> >
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 2
> Date: Mon, 7 Jan 2002 06:20:44 -0500
> From: "Angi Strong" <jaade1@...>
> Subject: Fw: Fw: Research on CAH for fictional story
>
> Sorry, I forgot to tell you what this is....
> I received this and thought if anyone would like to personally respond to
> this email that I would just post it here for you. I'm still deciding how
I
> feel about this....not that I could say anything one way or the other.
> Maybe with some well thought out information, the author will treat this
> subject correctly.
>
> Angi
>
> ----- Original Message -----
> From: "Angi Strong" <jaade1@...>
> To: <cahsupport@yahoogroups.com>
> Sent: Monday, January 07, 2002 6:18 AM
> Subject: [CAHsupport] Fw: Research on CAH for fictional story
>
>
> >
> > ----- Original Message -----
> > From: "K Dorian" <kdorian@...>
> > To: <CAHsupport-owner@yahoogroups.com>
> > Sent: Sunday, January 06, 2002 3:08 AM
> > Subject: Research on CAH for fictional story
> >
> >
> > > Dear List Owner:
> > >
> > > I am writing because I am searching for information on
> > > CAH. Please allow me to apologize in advance if either
> > > my terminology or the basic premise of my story is
> > > inadvertently offensive.
> > >
> > > I am an amateur writer, and am considering writing a
> > > short fiction story about an individual with classic
> > > CAH. Before I do so, however, I want to make sure I
> > > have my facts correct. I have visited dozens of web
> > > sites with information on CAH, but the information is
> > > frequently contradictory, leaving me very confused.
> > >
> > > Specifically, and assuming I have my facts correct (I
> > > am still in the research stage), my story would be
> > > about a female with Classic CAH who was mis-diagnosed
> > > and raised as a male, and who discovers in "his" late
> > > teens or very early 20s that "he" is actually a
> > > female.
> > >
> > > Obviously, there are a number of factors that would
> > > make this scenario impossible, so the basic outline of
> > > the story may change. For example, some sites seem to
> > > link female genital ambiguity with the salt-losing
> > > variant; if this is correct, I would imagine it would
> > > be very unlikely for a child so misidentified to
> > > remain so and survive. Other sites link it to the
> > > non-salt losing variant, and one site even
> > > contradicted itself in successive paragraphs.
> > >
> > > I am also looking for information on living with
> > > classic CAH. Is taking cortisone the only long-term
> > > necessity? How common or rare is it to have an adrenal
> > > crisis? I am certain there are other questions I
> > > should be asking, but I'm not sure at this point what
> > > they are.
> > >
> > > Do you know of anywhere I can get this information?
> > > Would you be willing to either post an information
> > > request for me, or allow me to post such a request,
> > > with the CAH Support group at Yahoo?
> > >
> > > Thank you for your time.
> > >
> > > __________________________________________________
> > > Do You Yahoo!?
> > > Send FREE video emails in Yahoo! Mail!
> > > http://promo.yahoo.com/videomail/
> > >
> >
> >
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>