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CAHsupport · This list is dedicated to the support of family members with Congenital Adrenal Hyperplasia and related disorders. We welcome
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Fw: [CAHsupport] Fw: Research on CAH for fictional story   Message List  
Reply | Forward Message #178 of 242 |
Sorry, I forgot to tell you what this is....
I received this and thought if anyone would like to personally respond to
this email that I would just post it here for you. I'm still deciding how I
feel about this....not that I could say anything one way or the other.
Maybe with some well thought out information, the author will treat this
subject correctly.

Angi

----- Original Message -----
From: "Angi Strong" <jaade1@...>
To: <cahsupport@yahoogroups.com>
Sent: Monday, January 07, 2002 6:18 AM
Subject: [CAHsupport] Fw: Research on CAH for fictional story


>
> ----- Original Message -----
> From: "K Dorian" <kdorian@...>
> To: <CAHsupport-owner@yahoogroups.com>
> Sent: Sunday, January 06, 2002 3:08 AM
> Subject: Research on CAH for fictional story
>
>
> > Dear List Owner:
> >
> > I am writing because I am searching for information on
> > CAH. Please allow me to apologize in advance if either
> > my terminology or the basic premise of my story is
> > inadvertently offensive.
> >
> > I am an amateur writer, and am considering writing a
> > short fiction story about an individual with classic
> > CAH. Before I do so, however, I want to make sure I
> > have my facts correct. I have visited dozens of web
> > sites with information on CAH, but the information is
> > frequently contradictory, leaving me very confused.
> >
> > Specifically, and assuming I have my facts correct (I
> > am still in the research stage), my story would be
> > about a female with Classic CAH who was mis-diagnosed
> > and raised as a male, and who discovers in "his" late
> > teens or very early 20s that "he" is actually a
> > female.
> >
> > Obviously, there are a number of factors that would
> > make this scenario impossible, so the basic outline of
> > the story may change. For example, some sites seem to
> > link female genital ambiguity with the salt-losing
> > variant; if this is correct, I would imagine it would
> > be very unlikely for a child so misidentified to
> > remain so and survive. Other sites link it to the
> > non-salt losing variant, and one site even
> > contradicted itself in successive paragraphs.
> >
> > I am also looking for information on living with
> > classic CAH. Is taking cortisone the only long-term
> > necessity? How common or rare is it to have an adrenal
> > crisis? I am certain there are other questions I
> > should be asking, but I'm not sure at this point what
> > they are.
> >
> > Do you know of anywhere I can get this information?
> > Would you be willing to either post an information
> > request for me, or allow me to post such a request,
> > with the CAH Support group at Yahoo?
> >
> > Thank you for your time.
> >
> > __________________________________________________
> > Do You Yahoo!?
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> >
>
>
>
>
>
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>
>




Mon Jan 7, 2002 11:20 am

gyswife
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Message #178 of 242 |
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Sorry, I forgot to tell you what this is.... I received this and thought if anyone would like to personally respond to this email that I would just post it...
Angi Strong
gyswife
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Jan 7, 2002
11:26 am
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