----- Original Message -----
From: "K Dorian" <kdorian@...>
To: <CAHsupport-owner@yahoogroups.com>
Sent: Sunday, January 06, 2002 3:08 AM
Subject: Research on CAH for fictional story


> Dear List Owner:
>
> I am writing because I am searching for information on
> CAH. Please allow me to apologize in advance if either
> my terminology or the basic premise of my story is
> inadvertently offensive.
>
> I am an amateur writer, and am considering writing a
> short fiction story about an individual with classic
> CAH. Before I do so, however, I want to make sure I
> have my facts correct. I have visited dozens of web
> sites with information on CAH, but the information is
> frequently contradictory, leaving me very confused.
>
> Specifically, and assuming I have my facts correct (I
> am still in the research stage), my story would be
> about a female with Classic CAH who was mis-diagnosed
> and raised as a male, and who discovers in "his" late
> teens or very early 20s that "he" is actually a
> female.
>
> Obviously, there are a number of factors that would
> make this scenario impossible, so the basic outline of
> the story may change. For example, some sites seem to
> link female genital ambiguity with the salt-losing
> variant; if this is correct, I would imagine it would
> be very unlikely for a child so misidentified to
> remain so and survive. Other sites link it to the
> non-salt losing variant, and one site even
> contradicted itself in successive paragraphs.
>
> I am also looking for information on living with
> classic CAH. Is taking cortisone the only long-term
> necessity? How common or rare is it to have an adrenal
> crisis? I am certain there are other questions I
> should be asking, but I'm not sure at this point what
> they are.
>
> Do you know of anywhere I can get this information?
> Would you be willing to either post an information
> request for me, or allow me to post such a request,
> with the CAH Support group at Yahoo?
>
> Thank you for your time.
>
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