--- In CAHsupport@y..., BETHENBLACKFORD@T... wrote:
> --- In CAHsupport@y..., "Jenny Humphrey" <JHmphr3@a...> wrote:
> > Hello everyone. My name is Jenny and I just had my second
daughter on
> > March 16th. The doctors initally told us that she was a boy.
Shortly
> > afterwards they told us they didn't know yet. The next couple
days
> > were full of anguish, confusion, and many tests. They finally
came to
> > us and told us our baby was a little girl and she had the severe
salt
> > wasting form of CAH. This was something my husband and I had
never
> > heard of and didn't know we were carrying. We have read much
> > information since then and the doctors have been excellent but I
> > would like to hear from people that have lived through this
either
> > themselves or with thier child. There are just some things books
> > can't tell you. Our family members are having a hard time
> > understanding this as they were all at the hospital when they
said it
> > was a boy. They think that there is something sexually wrong with
her
> > like she is a hermaprodite. Not all of them are like that but a
few.
> > I am not sure how to deal with them other than to try to educate
them
> > more. Mainly I would like to hear from others in a similar
situation
> > and hear how your lives have changed and much more. I worry so
much
> > about my daughter( whom we named Hunter) and want to be sure that
I
> > do everything in my ability to let her live a happy and healthy
life.

Hi Jenny,
My name is Tammy and I have a 2 1/2 year old daughter that has
sever salt wasting CAH also. We did not find out that she a girl
until she was a week old. My Husband Wayne's parents were with us
when we found out and they still insisted she had to have been a
hermapherdite. the way we had to handle it was to tell them they
either stopped calling her a hermapherdite or they stop comming
around. They did not talk to us for about two months and they started
contacting us again. They have not said anything even remotely about
her being a hermaphedite since. Just thought I would share that with
you because I understand how cruel people can be even family the ones
that are supposed to be there for you. I hope this helps a little.
Thank you,
Tammy