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I am really glad that this group is here. I have 3 children 2 very healthy
boys and a Daughter with Addison's' s Disease and CAH (the salt wasting type)
She also has ambiguous genitalia. When she was born we were told she was a
boy, just a little deformed so we named her Adrian Cody. We brought her home
just like she was a healthy little newborn boy. When She was 6 days old, I
got a phone call and my husband was at work. The doctor (a real jerk) told me
I had bring my baby boy (girl) right to the emergency room or he (she) would
die. So we went to the ER and The next day we found out she was 100% female.
The doctors ended up doing a bone marrow test to make sure that she was 100%
female. She spent over half of her 1st month of life in the hospital. We
renamed her Alexia Rose. She is the most beautiful little girl. But now we
are going through getting ready for a surgery. She was supposed to have her
reconstructive surgery May 16, 2001, which was 2 days ago but She had to go
without eating the day before, be cleaned out with fleets phospho soda, and
not have anything to drink after midnight. Well, we did all the but because
we did she became dehydrated, feverish, and somewhat lethargic. The could not
get an IV in her so we had to stay their until she drank enough to hydrate
her somewhat. then we returned home. So now we have to go through all of this
again and it is so taxing on my husband and myself. So, I would like to know
if anyone out there has any advice for us. I would really appreciate anything
no matter how insignificant it may seem. We have made a website for our
daughter. If you would like to check it out the address is
http://ourlittlerose.homestead.com/index.html
Thank
you,
Tammy *aka Arreana
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