Hello Bethan!
My name is Angi, and my oldest two, 12 year old twin girls, also have
the salt-wasting severe CAH. We also found out at birth, although the
virilization wasn't as severe because they were two months premature.
(Which in any other situation isn't a good thing, but for us, a small
blessing in disguise.) They have had the clitoroplasty and vaginoplasty
both done. The first at 13 months and the vagino at 8 years. (We also made
light of a serious situation, singing the "We're getting a new vagina!" song
to any doctor, nurse, or admin person we saw. Also, I tease the girls about
being the $6 million dollar women with the bionic vaginas.....poor taste
maybe, but sometimes you just have to laugh!) I love the "blue one, please"
joke!
I also found out when my husband was MIA (he was driving the three
hours home to shower and bring us all some things we needed for the long
stay). I was still under anesthetic when the specialist, with a very thick
Chinese accent, told me all about it. I did my best to look concerned and
nod at all the appropriate places, but honestly she lost me after she
introduced herself. I told my husband when he returned that he needed to go
talk to someone and they explained it all again to him. Never in my wildest
imagination did I think it was something that serious or I would have come
to immediately. Fortunately, we had wonderful doctors and they took care of
us all until we came out of our shock and could be of any use to anyone.
Since then, my girls (and one unaffected 9 year old boy) have been
wonderfully active and very healthy. I've mentioned it here before, but I
could have lived fine without the whole early puberty episode. LOL!!!
Anyway, enough of my story! Welcome to the loop! I'm glad to hear
Megan is a healthy happy little girl and we're glad to have you here with
us!


Angi

----- Original Message -----
From: <BETHENBLACKFORD@...>
To: <CAHsupport@yahoogroups.com>; <CAHsupport@yahoogroups.com>
Cc: <BETHENBLACKFORD@...>
Sent: Tuesday, April 17, 2001 3:57 PM
Subject: [CAHsupport] BETHENBLACKFORD IN SPAIN


> Hello all my name is Bethan and i am the mother of Megan who has salt
losing CAH,she is 5 years old and a very livley little girl,she is very well
and full of life.
> My husband and i decided to move to to Spain last year and came to
the south east coast of Spain in november 2000,we have three children,Megan
5,Ceri 4,and Morgan 16months,both the other children are well and do not
have CAH .
> Although Megan is only 5 she is totally aware of her condition and the
consequences that go with it,she has had some surgery and will have a vigina
made for her when she is about 10 and has asked for a blue one please!!!,
> Megan was born in Solihull in the West Midlands and was produced as a Boy
who we called Rhys,at three days old we were due to be sent home,so the
consultant peadratriceon came to sign us out and she saw something noone
else had ,which was undesended testes and a small penis,so she ran some
tests,the result being the diognoses of CAH,we were so lucky that the
peadratriceon was a endrocrenoloogist who was inbetween jobs in her field
and was due to start in Coventry as an endro the next month,the results came
two days later and it was a nightmare,my husband wasnt with me as he was his
mother in another part of the hospital being told she had breast cancer (she
has sinced died),and when i returned to my ward the first person to talk to
me asked what i had had,and i said a boy although i new she a girl,but hey
that was then and here we are now,Megan still uses Birmingham childrens
hospital for her check ups and life is good and SUNNY,so i look forward to
some mail from the uk an!
> d glad to be part of the group
> adios Bethan
>
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