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CAHsupport · This list is dedicated to the support of family members with Congenital Adrenal Hyperplasia and related disorders. We welcome
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My newborn was just diagnosed   Message List  
Reply | Forward Message #168 of 242 |
Re: My newborn was just diagnosed

--- In CAHsupport@y..., "Jenny Humphrey" <JHmphr3@a...> wrote:
> Hello everyone. My name is Jenny and I just had my second daughter on
> March 16th. The doctors initally told us that she was a boy. Shortly
> afterwards they told us they didn't know yet. The next couple days
> were full of anguish, confusion, and many tests. They finally came to
> us and told us our baby was a little girl and she had the severe salt
> wasting form of CAH. This was something my husband and I had never
> heard of and didn't know we were carrying. We have read much
> information since then and the doctors have been excellent but I
> would like to hear from people that have lived through this either
> themselves or with thier child. There are just some things books
> can't tell you. Our family members are having a hard time
> understanding this as they were all at the hospital when they said it
> was a boy. They think that there is something sexually wrong with her
> like she is a hermaprodite. Not all of them are like that but a few.
> I am not sure how to deal with them other than to try to educate them
> more. Mainly I would like to hear from others in a similar situation
> and hear how your lives have changed and much more. I worry so much
> about my daughter( whom we named Hunter) and want to be sure that I
> do everything in my ability to let her live a happy and healthy life.




Tue Apr 17, 2001 9:30 pm

BETHENBLACKFORD@...
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Message #168 of 242 |
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Hello everyone. My name is Jenny and I just had my second daughter on March 16th. The doctors initally told us that she was a boy. Shortly afterwards they told...
Jenny Humphrey
JHmphr3@...
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Mar 23, 2001
4:17 pm

Hi Jenny! Welcome to the group. We're a quiet bunch, but questions never go unanswered. My twin girls were diagnosed the day after their birth. They wouldn't...
Angela Strong
jaade1@...
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Mar 23, 2001
6:31 pm
BETHENBLACKFORD@...
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Apr 17, 2001
9:31 pm

... daughter on ... Shortly ... days ... came to ... salt ... never ... either ... said it ... her ... few. ... them ... situation ... much ... I ... life. Hi...
Arreana99@...
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May 18, 2001
4:23 pm
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