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CAHsupport · This list is dedicated to the support of family members with Congenital Adrenal Hyperplasia and related disorders. We welcome
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Re: Digest Number 66   Message List  
Reply | Forward Message #155 of 242 |
Re: [CAHsupport] Digest Number 66

I can not imagine the pain of losing a child. My heart goes out to you. I was
shown the injections at the hospital and also was told to triple her
prednisolone any time there is a fever, diarrhea, and other illnesses. I
wonder if she has weird doses as it seems most people say they double thiers.
I guess like you said you can't over dose. I am so scared of Hunter getting
sick. Her sister is sick now and I don't want her near her. I know I can't
keep her in a glass jar all her life but I am so afraid that something bad
will happen to her.Like what if she were to get a fever in the middle of the
night and not get fussy and wake me up? I had my first scare today. We were
just released from the hospital Thursday and Hunter had had a scope done on
her uretha that day. Today she had a bowel movement and when I changed her
diaper there was some blood that came out of her uretha. I immediatly called
the doctors who assured me that if she was fine, not fussing, eating well,
and not feverish that she was fine and it was a common thing to occur after a
scope. But it still scared me. I think it will take a long time before I can
relax. I think I would feel better if she could talk and tell me if something
was wrong. Well she is hungry again!! She has almost doubled the amount she
was eating in the hospital already. Well thank you again for your response
and hope to hear from you soon.
                        Jenny H


Sun Mar 25, 2001 1:35 am

JHmphr3@...
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Message #155 of 242 |
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<A HREF="http://www.congenitaladrenalhyperplasia.org/">Congenital Adrenal Hyperplasia dot Org -- A Family Education and Support Networ</A> <A...
jenannlynn@...
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Mar 24, 2001
4:01 pm

I don't know the link to the book that is listed but here is a good link to a pamphlet about how to give the solu-cortef injection for fever, vomiting, injury...
preston
preston@...
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Mar 25, 2001
1:04 am

I can not imagine the pain of losing a child. My heart goes out to you. I was shown the injections at the hospital and also was told to triple her prednisolone...
JHmphr3@...
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Mar 25, 2001
1:35 am
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