Congenital Adrenal Hyperplasia dot Org -- A Family Education and Support
Networ Congenital Adrenal Hyperplasia Support Group CONGENITAL ADRENAL
HYPERPLASIA OUR LIFE STORIES cah our voice and our stories The MAGIC
Foundation Homepage Congenital Adrenal Hyperplasia Due to 21-Hydroxylase
Deficiency
Here are several of my accumulated webpages that have helped to educate me
and my family on CAH. (There are quite a few more) My daughter (now 1 yr.
old) was not diagnosed until she was 9 months old, so her masculinization was
not as severe (they thought she was swollen from hormones), but my heart goes
out to those of you who had to deal with this since the birth of your baby
girls. Still, be grateful you know what it is this early--my daughter's life
was risked by not knowing earlier, because of all the sickness that followed
by not being diagnosed. It is a blessing in disguise. :)
As for the relatives, they will need to be educated and learn about CAH to
truly understand. I have relatives who still believe my daughter is "more
sickly" than their kids, and she isn't. She is a normal little girl as long
as she stays on track with her medicine. Her CAH is no more a handicap than
my bad eyesight is. You will find you get over one hill, and then have to go
over another with this. But in the end, it will make us all better people
and stronger people through these experiences with our kids. I truly believe
we will not be given anything in life that we can't handle.
Good luck, and welcome to the group!
Jenny
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