Hello. This is Jenny H. I just wondered if any of you had any tips on
getting your baby to take the sodium chloride supplement. Hunter
takes both her steriod and florinef with no problems but hates the
salt stuff and of course that is the one she has to take tid. Right
now when it comes to med time we give her the first two by having her
suck on my finger and squeezing them in the corner of her mouth. We
tried this with the salt with no luck. So we tried squeezing it in
while she is drinking her bottle. Which works ok, she takes it all,
but right afterwards she gets the taste in her mouth and refuses to
eat any more. I've been trying to wait until I think she is close to
being done then give it to her but I really think there has to be an
easier way to do this one. At least she won't have to be on this one
forever they think only a year or so when she starts eating other
food. I had to get title 19 insursance and I am so glad I did. I
picked up her meds at the hospital after she was born and this sodium
chloride which they said is basically salt water, cost $255 for a
month supply!!!! And I suppose they just get more expense as they get
older and take larger doses. I appreciate any advice you guys have.
Thanks,
Jenny H.