Hello everyone. My name is Jenny and I just had my second daughter on
March 16th. The doctors initally told us that she was a boy. Shortly
afterwards they told us they didn't know yet. The next couple days
were full of anguish, confusion, and many tests. They finally came to
us and told us our baby was a little girl and she had the severe salt
wasting form of CAH. This was something my husband and I had never
heard of and didn't know we were carrying. We have read much
information since then and the doctors have been excellent but I
would like to hear from people that have lived through this either
themselves or with thier child. There are just some things books
can't tell you. Our family members are having a hard time
understanding this as they were all at the hospital when they said it
was a boy. They think that there is something sexually wrong with her
like she is a hermaprodite. Not all of them are like that but a few.
I am not sure how to deal with them other than to try to educate them
more. Mainly I would like to hear from others in a similar situation
and hear how your lives have changed and much more. I worry so much
about my daughter( whom we named Hunter) and want to be sure that I
do everything in my ability to let her live a happy and healthy life.