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CAHsupport · This list is dedicated to the support of family members with Congenital Adrenal Hyperplasia and related disorders. We welcome
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Reply | Forward Message #146 of 242 |
Re: [CAHsupport] hello

and the height is okay because his father
>and i are both tall and thin so maybe he wont get
>made fun of for being a beanpole!(haha) i was just
>worried because everything i read they made it sound
>like he would be extremely short...

Is your son seeing a pediatric endocrinologist? As long as he takes his meds
daily, his height should be well within the normal range. I'm 43, have CAH
and I'm 5'6". My mother is 5'10" and my father is 6'1", but he has a sister
(no CAH) who is barely 5'0". So who's to say if I'm "short"? LOL! At any
rate, 5'6" is perfectly normal and I'm very comfortable with it. BTW, I
wasn't diagnosed until age 4, so I think my doctor made up for lost time
very well.

And yes, he should be able to do all the normal kid things. I just went to
the Australian site myself and I think they put it very well - CAH is a
nuisance, not a handicap :-) I like that - that's been my view of it all my
life. As long as you and your son (when he's older) "play by the rules" I
think you'll find it's not a problem at all.

Kathy P.
Goldens Portrayed <http://www.partridgeart.com>
Up in central New York (Zone 4)






Sun Feb 25, 2001 5:58 pm

atelierk@...
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Message #146 of 242 |
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bsashmead@xxx.xxx
Send Email
Feb 6, 1999
10:20 pm

Hi Angie, Sorry about that first message. I just know a little about e-mail stuff. Anyways, here is a some back ground Brett and I have been married for...
bsashmead@xxx.xxx
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Feb 6, 1999
10:56 pm

my son is eight weeks and is being treated for hyperplasia except we are not sure if it is hyper or hypo or something else. I was just looking for more...
adele543@...
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Feb 25, 2001
2:41 am

Adele, I remember the stress when the twins were first born and diagnosed, so I completely understand what you are going through! Since you're not sure of his...
Angela Strong
jaade1@...
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Feb 25, 2001
2:58 am

thank you very much! that page was very helpful! I am still slightly confused. They did a CT scan of my sons adrenal gland and it wasnt enlarged..it wasnt to ...
adele burich
adele543@...
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Feb 25, 2001
5:39 pm

I strongly recommend reading the pamphlet as well. They talk alot more about glucose than our doctors do...not sure why. All the information is hard to take...
Jim & Debbi Watson
jrwatson@...
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Feb 25, 2001
4:52 pm

and the height is okay because his father ... Is your son seeing a pediatric endocrinologist? As long as he takes his meds daily, his height should be well...
Kathy Partridge
atelierk@...
Send Email
Feb 25, 2001
5:54 pm
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