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CAHsupport · This list is dedicated to the support of family members with Congenital Adrenal Hyperplasia and related disorders. We welcome
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Reply | Forward Message #141 of 242 |
hello

my son is eight weeks and is being treated for hyperplasia except we
are not sure if it is hyper or hypo or something else. I was just
looking for more information on it cause there are alot of unanswered
questions i have. he doesnt produce cortisol and is salt wasting but
he is also alkalosis(?) his endo and peditrician are wonderful but
there are questions they cant answer like will he be able to do
everyday "kid" things? that and it is frustrating to not know what
type so i am interested in learning as much as i can about this.
Gabriel is doing great since he started the corteif and sodium and
florteif. He has gained a ton of weight and is more active. Also i
dont think i understood alot of this correctly ( i was a little upset
when they explained it to us) if he takes his medicine will his bones
still age faster? if you could give us any information we would really
appreciate it. thank you adele




Sun Feb 25, 2001 2:41 am

adele543@...
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Message #141 of 242 |
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bsashmead@xxx.xxx
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Feb 6, 1999
10:20 pm

Hi Angie, Sorry about that first message. I just know a little about e-mail stuff. Anyways, here is a some back ground Brett and I have been married for...
bsashmead@xxx.xxx
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Feb 6, 1999
10:56 pm

my son is eight weeks and is being treated for hyperplasia except we are not sure if it is hyper or hypo or something else. I was just looking for more...
adele543@...
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Feb 25, 2001
2:41 am

Adele, I remember the stress when the twins were first born and diagnosed, so I completely understand what you are going through! Since you're not sure of his...
Angela Strong
jaade1@...
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Feb 25, 2001
2:58 am

thank you very much! that page was very helpful! I am still slightly confused. They did a CT scan of my sons adrenal gland and it wasnt enlarged..it wasnt to ...
adele burich
adele543@...
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Feb 25, 2001
5:39 pm

I strongly recommend reading the pamphlet as well. They talk alot more about glucose than our doctors do...not sure why. All the information is hard to take...
Jim & Debbi Watson
jrwatson@...
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Feb 25, 2001
4:52 pm

and the height is okay because his father ... Is your son seeing a pediatric endocrinologist? As long as he takes his meds daily, his height should be well...
Kathy Partridge
atelierk@...
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Feb 25, 2001
5:54 pm
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