HI,

Welcome to the group. I'm Nicole, and I have 3
children ages 5, 4, and 2. My 5 year old son and my 4
year old daughter both have salt-wasting CAH but my 2
year old is not affected. I was a stay at home mom
until my husband passed away in June, so now I am a
stay at home mom/working mom (I work graveyard so my
kids don't have to go to daycare).
Having both a son and a daughter with CAH, I have
pretty much been through it all so far-surgeries,
crisis, hospitalizations, etc. Feel free to ask
anything you like.
I currently live in Orlando, Florida, but have had
experience with many doctors in Dallas and Maryland
and over the years, have made many contacts through my
conversations about CAH. Good luck to you. It is
nice to be able to rely on the experiences, knowledge,
and support of others in the same situation sometimes.
I have consulted other group members regarding just
about everything and we all try to help each other.

Sincerely,
Nicole Rice and family.




--- jenannlynn@... wrote:
> Hi! I just wanted to introduce myself since I just
> joined this
> list. I am a stay at home mother of two beautiful
> and wonderful
> children, Zach--who is 3--and Jessica--who is 1 and
> was diagnosed
> just 3 months ago with mild-saltwasting CAH. It has
> been quite the
> journey these last few months, but we are mostly
> just happy to know
> what was wrong with our baby, as we had to really
> put up a fight to
> go see the right doctor's who diagnosed her. She is
> now recovering
> from some surgery she just had a week and a half ago
> (feminizing
> genitoplasty--is that how you spell it?) :) and she
> is doing so very
> well. Our Jessie is a fighter and a strong little
> girl--she is an
> amazing 24 lbs (in the 90th percentile) and as
> chunky as they come,
> which is great since it took so long to even
> diagnose her and by some
> miracle she kept growing even when she was throwing
> up all the time.
> She is our miracle baby, and I am excited to find
> yet one more
> support group for me and my little girl. :)
> Jenny
>
>


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