Oh it's been soooo long since we had the liquid cortef, but I believe the
girls were almost 3 when we switched to the pills (about 8 years ago!). I
HATED that stuff, just because it was messy, hard to judge how much was
really left, a pain to take on trips, etc...

How is your son doing now?

Angi

> I didn't see the TV show, but I can image! Too bad they didn't do one
about
> the cortef oral liquid for infants and its recall. My stupid doctor
thought
> that kids should stay on the liquid form until 3 years old. My son Adam
was
> born July 1998 and the UpJohns was having problems with the cortef. Adam
> suffered so much. He lost weight, and it still very thin. Thank goodness
the
> doctor finally listened to Dr. New and switched him to the pill. I was
ready
> to fly up to New York to get him treated. As it was Adam had to spend a
week
> in the hospital because of the weight drop and dehydration. And his blood
> levels (OH17) were so high.
> Yes, don't people realize how life threating CAH can be???
> Roberta
> ----- Original Message -----
> From: <CAHsupport@egroups.com>
> To: <CAHsupport@egroups.com>
> Sent: Saturday, August 12, 2000 3:07 AM
> Subject: [CAHsupport] Digest Number 53
>
>
> >
> >
> > There is 1 message in this issue.
> >
> > Topics in this digest:
> >
> > 1. Re: television program
> > From: "Jim & Debbi Watson" <jrwatson@...>
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> > Message: 1
> > Date: Sat, 12 Aug 2000 00:52:14 -0500
> > From: "Jim & Debbi Watson" <jrwatson@...>
> > Subject: Re: television program
> >
> > Just getting back into town and getting caught up on my mail. I saw
this
> program in the spring and found it to be very one-sided. It was clear
that
> they were steering toward the more sensationalized version of the facts.
> Did you hear any mention of boys with CAH or the salt-wasting factor or
the
> health risks? Only the sexuality. There is a network of people in the
show
> that I have seen on other programs that have made it there mission to
inform
> about Intersexed conditions. I feel that they are misinformed my putting
> CAH in there group, since gender assignment is not an issue. Girls are
> girls and boys are boys. At the CAH board, there was a mom who's doctor
> told her that her son was increased likelihood of being gay as well. I
> frankly don't buy it. But that is just me. Anyway, I would not get too
> worked up about that program.
> > -Debbi
> > -----Original Message-----
> > From: Angela Strong <jaade1@...>
> > To: CAHsupport@egroups.com <CAHsupport@egroups.com>
> > Date: Monday, August 07, 2000 10:10 PM
> > Subject: Re: [CAHsupport] television program
> >
> >
> > Thanks Becky!
> > I know some of the issues we face are so private for most
> people....that's probably why I never heard of some of these things. I
> think I'm just feeling a little over-whelmed from a lot that has happened
> this year and that was just the proverbial straw for me. Thanks for such
an
> honest answer.
> > Twins....fun? Isn't that an oximoron? LOL!! Yes, each and
> every day is a joy.....heavy sarcasm. I think later in life I will look
> back and know that it was all worth it....and Thank Goodness it's over!
> LOL!!! My girls are pretty normal in height right now, but their doctor
> predicts that 5"1' is about all they can hope for....but really that's not
> all that bad. Girls don't have such a bad time being short...I think it's
> probably much more difficult for boys....so we consider ourselves lucky
> there. (I am also not tall...5"4')
> > Anyway, thanks! You don't know how I appreciated your answer
> today!
> >
> > Angi
> >
> >
> >
> >
> >
> >
> > Angi,
> >
> > I have late-onset CAH which wasn't diagnosed until I was an
adult.
> Looking back, I realize that I did have some feelings of confusion during
> the time that I was obviously symptomatic but not yet diagnosed. With
> treatment, my hormone levels are all normal and I feel ...right. I think
> that the gender confusion, symptoms, etc. mostly come with untreated CAH.
> >
> > By the way, I have twin girls too. Mine will soon be 13. It's
> fun, isn't it! My girls don't have CAH but we're seeing an
endocrinologist
> because of possible growth problems. It's hard to really know whether
their
> short stature is inherited or another problem because my growth was
stunted
> from untreated CAH.
> >
> > Try not to worry.
> >
> > Becky
> >
>
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> > ________________________________________________________________________
> >
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