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Just getting back into town and getting caught up on my mail. I saw this program in the spring and found it to be very one-sided. It was clear that they were steering toward the more sensationalized version of the facts. Did you hear any mention of boys with CAH or the salt-wasting factor or the health risks? Only the sexuality. There is a network of people in the show that I have seen on other programs that have made it there mission to inform about Intersexed conditions. I feel that they are misinformed my putting CAH in there group, since gender assignment is not an issue. Girls are girls and boys are boys. At the CAH board, there was a mom who's doctor told her that her son was increased likelihood of being gay as well. I frankly don't buy it. But that is just me. Anyway, I would not get too worked up about that program.
-Debbi
-----Original Message-----
From: Angela Strong <jaade1@...>
To: CAHsupport@egroups.com <CAHsupport@egroups.com>
Date: Monday, August 07, 2000 10:10 PM
Subject: Re: [CAHsupport] television programThanks Becky!I know some of the issues we face are so private for most people....that's probably why I never heard of some of these things. I think I'm just feeling a little over-whelmed from a lot that has happened this year and that was just the proverbial straw for me. Thanks for such an honest answer.Twins....fun? Isn't that an oximoron? LOL!! Yes, each and every day is a joy.....heavy sarcasm. I think later in life I will look back and know that it was all worth it....and Thank Goodness it's over! LOL!!! My girls are pretty normal in height right now, but their doctor predicts that 5"1' is about all they can hope for....but really that's not all that bad. Girls don't have such a bad time being short...I think it's probably much more difficult for boys....so we consider ourselves lucky there. (I am also not tall...5"4')Anyway, thanks! You don't know how I appreciated your answer today!AngiAngi,I have late-onset CAH which wasn't diagnosed until I was an adult. Looking back, I realize that I did have some feelings of confusion during the time that I was obviously symptomatic but not yet diagnosed. With treatment, my hormone levels are all normal and I feel ...right. I think that the gender confusion, symptoms, etc. mostly come with untreated CAH.By the way, I have twin girls too. Mine will soon be 13. It's fun, isn't it! My girls don't have CAH but we're seeing an endocrinologist because of possible growth problems. It's hard to really know whether their short stature is inherited or another problem because my growth was stunted from untreated CAH.Try not to worry.Becky
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