Diane,
I absolutely *hate* the Cortef suspension!!! NIH was using it, but now
we're on the tablets. My son is not suppressed yet, we're working on it
though. NIH pays for all meds , they send them home with you.
Selena
----- Original Message -----
From: <DTomb78532@...>
To: <CAHsupport@onelist.com>
Sent: Monday, February 28, 2000 8:06 PM
Subject: Re: [CAHsupport] Introduction


> From: DTomb78532@...
>
> selena,
>
> that does sound good. i called the number and left a message. i called
this
> morning but kept getting the wrong phone numbers!? is your son
suppressed?
> was he when you started with the nih? it took charlie 13 or 15 months
before
> he was finally suppressed. i think one of the biggest problems was the
> cortef suspension, that stuff was awfully messy and hard to get to boot!
> does the nih send you your son's meds or do you still get them yourself at
> the pharmacy?
>
> sorry for all the questions, i am curious.
>
> thanks again for your time,
> diane
>
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