Angi,
NIH is a research hospital and there are working on CAH right now. They
will follow my son until he is 18. He was chosen for the experimental
drugs. They are hoping that he will end up being closer to his potential
height with these new drugs.
Selena
Thanks for the welcome
----- Original Message -----
From: Angela Strong <jaade1@...>
To: <CAHsupport@onelist.com>
Sent: Sunday, February 27, 2000 2:44 PM
Subject: Re: [CAHsupport] Introduction


> From: "Angela Strong" <jaade1@...>
>
> Selena,
> It's nice to have you join us! I have 11 yr.old twin girls with CAH
> and an unaffected 8 yr. old boy. I am curious...what is NIH? I don't
> believe I've heard about this before.
>
> Angi
>
>
>
> > From: "Selena Vincent" <batmanv@...>
> >
> > Hello Everyone,
> > My name is Selena. I have a 4 y/o son who has CAH. We are currently
> > with NIH's experimental protocol for his treatment. We live in
> > Louisiana. I also have a 1 y/o daughter who does nothave CAH.
> > Selena
> >
> >
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