Welcome to the Pulmonary Fibrosis Foundation's most active on-line support group for patients. We're here to support one another as we learn from each other about idiopathic pulmonary fibrosis (IPF) and pulmonary fibrosis (PF). This will be a safe environment where patients can share stories, concerns, fears, etc. about IPF and PF.

This is your support group. Your thoughts and suggestions are important and beneficial to the group. Please feel free to allow this to be a space where you can gain insight from each other about this disease that takes your breath away. Remember it is a public forum and respect for each other is most important.

Any information shared on this site should not be used as medical advice.

The Pulmonary Fibrosis Foundation’s mission is to find a cure and raise awareness of pulmonary fibrosis. We are devoted to improving the quality of life for those diagnosed with pulmonary fibrosis. The Foundation provides hope and inspiration for patients through education, advocacy and funding for clinical research.

If you would like to receive more information about pulmonary fibrosis, please contact us by e-mail at pulmonaryfibrosisinfo@yahoo.com or phone 312.587.9272.

An on-line support group was just started July 2006 for the people who are the primary support of patients with pulmonary fibrosis. You can check it out at: http://health.groups.yahoo.com/group/Breathe-SupportCaregivers/. We've added a third support group for people who have lost a loved one to pulmonary fibrosis. The link is: http://health.groups.yahoo.com/group/Breathe-SupportGrief/.

Mary Beth Murtha - Moderator

Leanne Storch
Owner Breathe-Support Groups