Hi,



I had an appointment with the neurosurgeon's nurse practitioner on 6/25.

They had known for days that my neurosurgeon wouldn't be able to attend

the appointment but he reviewed my May MRI and shared his feelings with

the nurse practioner so she could tell me what the plan is.



I have two lesions, the colloid cyst that has come back in the 3rd

ventricle (original craniotomy in 2001) and a meningioma close to my

optical nerve.  Right now there is no obstruction and no hydrocephelus

so the feeling is that we will wait and do another MRI in September to

get a history of these and how they are growing, etc.  I had an MRI in

April, May and now will have a 3rd in September.



In the meantime, I have been educated on hydrocephlus signs.  I know the

major ones but I needed info on the less obvious symptoms.  They are

also going to burn a cd of my MRI and mail it to me so that I can have

it with me in case I have an emergent situation with the colloid cyst

causing an obstruction and I am not in town.  This way I will have the

most recent pictures with me in case I need to go to another hospital

when outside the area.



I am pretty comfortable with this decision.  I really do not want to go

through another craniotomy unless I really have increased ventrices from

hydro or an obstruction.  However, the meningioma may need to be taken

care of soon with radiosurgery since it is close to the optical nerve.



We we do the next MRI in Sept as I said and re-evaluate.  So I am "off

the hook" so to speak for summer.  However, and I should have already

known this but... it was confirmed that I will need to be followed for

life.  We now know that colloid cysts can come back and the meningioma

even when radiated can regenerate itself.  So I am in it for life with

MRI's and follow up.



Its funny when people aren't concerned about tumors when they aren't

cancer.  Granted cancer stinks but benign tumors and cysts can be just

as deadly in some cases.



take care



Jodee







[Non-text portions of this message have been removed]

Hi,



I had an appointment with the neurosurgeon's nurse practitioner on 6/25.

They had known for days that my neurosurgeon wouldn't be able to attend

the appointment but he reviewed my May MRI and shared his feelings with

the nurse practioner so she could tell me what the plan is.



I have two lesions, the colloid cyst that has come back in the 3rd

ventricle (original craniotomy in 2001) and a meningioma close to my

optical nerve.  Right now there is no obstruction and no hydrocephelus

so the feeling is that we will wait and do another MRI in September to

get a history of these and how they are growing, etc.  I had an MRI in

April, May and now will have a 3rd in September.



In the meantime, I have been educated on hydrocephlus signs.  I know the

major ones but I needed info on the less obvious symptoms.  They are

also going to burn a cd of my MRI and mail it to me so that I can have

it with me in case I have an emergent situation with the colloid cyst

causing an obstruction and I am not in town.  This way I will have the

most recent pictures with me in case I need to go to another hospital

when outside the area.



I am pretty comfortable with this decision.  I really do not want to go

through another craniotomy unless I really have increased ventrices from

hydro or an obstruction.  However, the meningioma may need to be taken

care of soon with radiosurgery since it is close to the optical nerve.



We we do the next MRI in Sept as I said and re-evaluate.  So I am "off

the hook" so to speak for summer.  However, and I should have already

known this but... it was confirmed that I will need to be followed for

life.  We now know that colloid cysts can come back and the meningioma

even when radiated can regenerate itself.  So I am in it for life with

MRI's and follow up.



Its funny when people aren't concerned about tumors when they aren't

cancer.  Granted cancer stinks but benign tumors and cysts can be just

as deadly in some cases.



take care



Jodee







[Non-text portions of this message have been removed]