Hi, I had an appointment with the neurosurgeon's nurse practitioner on 6/25. They had known for days that my neurosurgeon wouldn't be able to attend the...
4872
Jodee
justmejodee
Jun 27, 2009 10:42 am
Hi, I had an appointment with the neurosurgeon's nurse practitioner on 6/25. They had known for days that my neurosurgeon wouldn't be able to attend the...
4873
Nancy Illing
mooky133
Jun 27, 2009 10:57 am
Jodee, Thank you for supporting me. And your right. I should have to have faith in him especially, the surgeon. But I will give him a 2nd chance. Everyone...
4874
Jodee
justmejodee
Jun 27, 2009 9:54 pm
Yes you sure do have one! Please keep us informed. My personal e-mail at home is jodee@... and my work e-mail is jodonnell@... if...
4875
Pat Moody
Enlightned147@...
Aug 17, 2009 7:42 am
Pat Moody looked for you on MyLife(TM) but you weren't there. Please confirm you know Pat so we can connect you. Do You Know Pat? YES - Connect with Pat, and...
4876
bill
drifter05155
Aug 18, 2009 1:24 am
I had occassion to go to my primary care doctor recently. I live alone, but my brothers had both commented (separately) that I kept seeming to ask to have...
4877
brain2bee
Aug 18, 2009 1:40 pm
Dear Friends, For those of you who know Delia -- a survivor of multiple malignant meningioma tumors over more than 20 years -- I am posting this message to let...
4878
mngioma634@...
brain2bee
Aug 18, 2009 1:48 pm
Dear Friends, For those of you who know Delia -- a survivor of multiple malignant meningioma brain tumors over more than 20 years -- I wanted to post this...
4879
justmejodee
Aug 25, 2009 6:15 pm
Hi, I have a colloid cyst in the 3rd ventricle at last MRI was 11mm, but causing no obstruction or hydocephelus and I also have an 8mm meningioma. Anyway, I...
4880
bilovsky@...
Aug 26, 2009 12:00 am
Hi Marsi, Thanks for this update. The primary reason the National Childhood Brain Tumor Prevention Network Act of 2009 is "stuck" in committee is the major ...
4881
Aleksa
hattie886
Aug 30, 2009 6:22 pm
I'm not sure if it is appropriate for me to belong to this group, but I haven't found an online support group specific to my brain abscess and I'm interested...
4882
twosdayone
Aug 30, 2009 6:23 pm
Hi, I have a family member that was recently 'diagnosed' with a possible cranioph. but due to the location is unfortunately not a candidate for...
4883
trisha4080@...
trisha4080...
Aug 30, 2009 6:53 pm
It's odd you mention that... I, too, have had the irritating symptom of twitching in one eyelid. It started the week before my stroke (which is how they found...
4884
trisha4080@...
trisha4080...
Aug 30, 2009 7:10 pm
Aleska, Your post is finally online! :) As I wrote to you previously, while unable to access the website, you will definitely find you fit in here. Whatever...
4885
trisha4080@...
trisha4080...
Aug 30, 2009 7:13 pm
I hope you were able to find information on the website to help you better prepare for the surgery. How is your relative doing since his surgery? Many...
4886
trisha4080@...
trisha4080...
Aug 30, 2009 7:53 pm
Aleska, You stated "Since I could be dead, or blind in one eye it seems petty to complain about these small deficits but they are definitely affecting my...
4887
Rachael Coldwell
rachcold6
Sep 1, 2009 5:30 am
Hi, My husband had a bifrontral interhemispheric craniotomy on the 16th April this year. His tumour was very large and wrapped around his optic nerve so it...
4888
Aleksa
hattie886
Sep 2, 2009 1:54 am
Trisha, I cannot tell you how grateful I am for your post, and the information in it. While some of t what you wrote was discouraging, it also encouraged me...
4889
trisha4080@...
trisha4080...
Sep 2, 2009 1:57 am
Thank you for sharing that wisdom, Rachael. I can only begin to imagine how difficult this is for spouses and caregivers; I believe the burdens they bear are...
4890
Wendy Gearhart
wendymar88
Sep 2, 2009 9:13 pm
Hello, Everyone, It was 20 years ago that I had the first of two craniotomies yesterday (Sept. 1). I hope it is a sign that I am better off emotionally...
4891
trisha4080@...
trisha4080...
Sep 3, 2009 1:31 pm
Wendy, Congratulations on your 20 year anniversary! I remember before you had Brian, you had a nursery all ready with all your knit keepsakes just waiting for...
4892
bilovsky@...
Sep 7, 2009 7:07 pm
Dear Brain Tumor Survivors and Parents of Children with Brain Tumors, If you belong to other brain tumors support groups not in the Send To: list above,...
4893
PurpleJule@...
purplejule57
Sep 8, 2009 5:14 pm
About yearly MRIs. ? It has been 11-1/2 ?years since I had a left cavernous sinus meningioma surgery done.? I have had an MRI done every year afterwards to...
4894
drifter05155
Sep 9, 2009 9:33 pm
... It is perfectly normal to wonder why a doctor (espcially one you have had from Day One), might suddenly seem to shift gears from having a (brain) scan on...
4895
jrmedinagold
Sep 10, 2009 12:58 am
Very interesting: Lemon Grass or we call it Tanglad to fight cancer cells. Fresh Lemon Grass Drink Causes Apoptosis to Cancer Cells. (Apoptosis) noun: a type...
4896
mooky133
Sep 10, 2009 8:43 pm
Hello all. First I must thank you all for all you have written. It has helped me get through alot of issues I've been dealing with. Thank you! I am 44 yrs. old...
4897
Aleksa
hattie886
Sep 11, 2009 2:16 pm
Wendy - Thanks to you,I'm going to mark the first anniversary of my brain surgery by trying to remember the date! I was in such a daze/fog by the time I...
4898
Aleksa
hattie886
Sep 11, 2009 2:16 pm
Nancy - Because my brain surgery was so different than yours (surgery last October for an abscess in my occipital lobe), I can't offer you any wisdom except to...
4899
trisha4080@...
trisha4080...
Sep 11, 2009 2:26 pm
Nancy, I agree it is important to have faith in your doctors and surgeons. One of the ways I obtain that trust is by asking questions, researching the doctors...
4900
trisha4080@...
trisha4080...
Sep 11, 2009 2:46 pm
Bill, Great post!! I agree with you. It is GOOD news! ... Trisha Patricia Williams, R.N. Group Founder and Moderator 5 cm frontal/parietal/ temporal...
