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Group Information

  • Members: 443
  • Category: Brain Tumors
  • Founded: Feb 15, 2000
  • Language: English
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My drs. have advised me to have surgery to remove the scares that have formed from injuries received while I was born. I am 44 yrs old, and have a beautiful...
10 Sep 11, 2009
2:26 pm

trisha4080@...
trisha4080...
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Hello all. First I must thank you all for all you have written. It has helped me get through alot of issues I've been dealing with. Thank you! I am 44 yrs. old...
2 Sep 11, 2009
2:16 pm

Aleksa
hattie886
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Very interesting: Lemon Grass or we call it Tanglad to fight cancer cells. Fresh Lemon Grass Drink Causes Apoptosis to Cancer Cells. (Apoptosis) noun: a type...
1 Sep 10, 2009
12:58 am

jrmedinagold
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Dear Brain Tumor Survivors and Parents of Children with Brain Tumors, If you belong to other brain tumors support groups not in the Send To: list above,...
1 Sep 7, 2009
7:07 pm

bilovsky@...
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Hi, I have a family member that was recently 'diagnosed&#39; with a possible cranioph. but due to the location is unfortunately not a candidate for...
4 Sep 2, 2009
1:57 am

trisha4080@...
trisha4080...
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I'm not sure if it is appropriate for me to belong to this group, but I haven't found an online support group specific to my brain abscess and I'm interested...
4 Sep 2, 2009
1:54 am

Aleksa
hattie886
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Hi, I have a colloid cyst in the 3rd ventricle at last MRI was 11mm, but causing no obstruction or hydocephelus and I also have an 8mm meningioma. Anyway, I...
2 Aug 30, 2009
6:53 pm

trisha4080@...
trisha4080...
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Hi Marsi, Thanks for this update. The primary reason the National Childhood Brain Tumor Prevention Network Act of 2009 is "stuck" in committee is the major ...
1 Aug 26, 2009
12:00 am

bilovsky@...
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Dear Friends, For those of you who know Delia -- a survivor of multiple malignant meningioma tumors over more than 20 years -- I am posting this message to let...
2 Aug 18, 2009
1:48 pm

mngioma634@...
brain2bee
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I had occassion to go to my primary care doctor recently. I live alone, but my brothers had both commented (separately) that I kept seeming to ask to have...
1 Aug 18, 2009
1:24 am

bill
drifter05155
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Pat Moody looked for you on MyLife(TM) but you weren't there. Please confirm you know Pat so we can connect you. Do You Know Pat? YES - Connect with Pat, and...
1 Aug 17, 2009
7:42 am

Pat Moody
Enlightned147@...
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Hi, I had an appointment with the neurosurgeon&#39;s nurse practitioner on 6/25. They had known for days that my neurosurgeon wouldn't be able to attend the...
2 Jun 27, 2009
10:42 am

Jodee
justmejodee
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I will be out of the office starting 06/18/2009 and will not return until 06/22/2009. If you need immediate assistance please contact Maryanne at 753-1221...
2 Jun 22, 2009
8:40 pm

Jodee
justmejodee
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Not sure if I told you guys already or not but we received a phone call last week letting me know that my neurosurgeon won't be able to attend my appointment...
1 Jun 22, 2009
8:37 pm

Jodee
justmejodee
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When I get home tonight I will figure out putting my MRI on a webpage and send the link. Have a great day! Jodee O'Donnell Monroe County Controller&#39;s Office ...
2 Jun 16, 2009
4:56 pm

trisha4080@...
trisha4080...
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My 15 year old daughter had a large fibrillary astrocytoma removed from her brain and spinal cord in 1999. Over the years we've watched her circle of friends...
5 Jun 16, 2009
12:46 pm

Rachel Vinyard
rachelvinyard
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I had my first craniotomy in 2001 but I didn't work back then. Now I work full-time as an accountant. What do you think is a resonable amount of time to...
7 Jun 15, 2009
7:20 pm

Jodee
justmejodee
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Still waiting to hear from Neurosurgeon&#39;s office about the MRI on May 20 but I got ahold of the report from my primary care physician. I found out in April...
1 Jun 9, 2009
1:16 pm

Jodee
justmejodee
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[To everyone receiving this email, please feel free to forward it to any other groups you may subscribe to and to individuals you believe would be interested...
1 Jun 4, 2009
12:13 am

bilovsky@...
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[To everyone receiving this email, please feel free to forward it to any other groups you may subscribe to and to individuals you believe would be interested...
1 Jun 3, 2009
10:27 pm

bilovsky@...
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I had surgery 2 year ago and i locked my self in the house for two years. I looked the same going in and out of the hospital. No one believe I have a brain...
2 Jun 2, 2009
2:21 pm

trisha4080@...
trisha4080...
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My dear Meningimates Our good neurosurgeons and neuro-oncology doctors, will look for any physical motor control or walking deficits to send us to an...
2 Jun 2, 2009
2:06 pm

trisha4080@...
trisha4080...
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http://abcnews.go.com/GMA/Books/story?id=2983079&page=1 This free introductory excerpt from?Dr Bernadine Healy's book about her own diagnosis and brain surgery...
1 May 28, 2009
8:15 am

Anne M Breen
famnine
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My dear Menigimates and other good people, It becomes more complex, when adult clinical trials are only for new drug therapies for the most aggressive type of...
1 May 28, 2009
1:21 am

Anne M Breen
famnine
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My Dear Meningimates, Devoted Parents and?other Good People, Maybe this new federal program TRND (Therapeutics?for Rare and Neglected Diseases) is the...
1 May 28, 2009
12:35 am

Anne M Breen
famnine
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From a South Carolina newspaper Chris Lane/SPECIAL TO THE MORNING NEWS Published: May 24, 2009 In July 1977, Katherine Lane gave birth to her second child. Ten...
1 May 25, 2009
11:57 am

Anne M Breen
famnine
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September, 2005 If you cannot see the graphic border to this message, click here. In this issue: New Compound Crosses the Blood Brain Barrier Stem Cells...
2 May 24, 2009
3:13 am

Anne M Breen
famnine
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Dear Good People, I hope you will all sign up to receive this NBTS newsletter, I am not pleased that the NCI adult brain tumor consortium funding was reduced...
1 May 24, 2009
3:05 am

Anne M Breen
famnine
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Rare laser brain surgery a first at MUSC By Bo Petersen (Contact) The Post and Courier Friday, May 22, 2009 Brad Nettles The Post and Courier Lester Beck was...
2 May 23, 2009
1:13 pm

Jodee
justmejodee
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Hi Guys, I had an open MRI on Wednesday. We already know that the colloid cyst I had surgery for in 2001 has come back (shell had not been removed) and that I...
1 May 22, 2009
11:47 am

Jodee
justmejodee
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