Hi, I am new to this group and looking for any referrals of a neuro- oncologist in the Los Angeles / Southern California area. My mother was diagnosed with a...
Heather, I do apologize for the delay in your message being posted – personal issues at home have prevented me from attending to the site as I would have...
trisha4080
trisha4080@...
Aug 9, 2007 3:13 pm
4643
About a month ago I was diagnosed with obstructive hydrocephalus due to a Subepyndemal Giant Cell Astrocytoma (SEGA) that was growing on top of my foramen of...
trisha4080
trisha4080@...
Aug 13, 2007 5:17 pm
4644
Dear Sarah, No real advice here on your dilemma. But I did want to welcome you to the "Brain surgeons are not always brilliant and can be idiots club". I won't...
9 years ago I had surgery to remove a tumor. Left cavernous sinus meningioma. Dr Donald Wright did my surgery and Dr Laligam Sekhar assisted. Last week I...
I have to agree with what Sarah C. said. My husband's first neurosurgeon was a brilliant surgeon, but his bedside manner left a lot to be desired. The entire...
Wow! A follow up after nine years! Amazing. Surgery 12/5/1996 - almost 10 years ago Intraventricular Meningioma, left lateral -trigone Epilepsy as a result,...
jan@...
Aug 16, 2007 9:57 pm
4648
Hi All, 2 years and several months out and they still have not been able to fix my post craniotomy head pain/"headache" (which is localized to the incision...
I am sorry your message is not on the evening news! The current move toward "managed" health care has produced an underlying assumption that whatever it is...
Sara, I'm so sorry to hear about your problem with this. To answer your question, I have heard several patients complain about discomfort at or near the ...
trisha4080
trisha4080@...
Aug 21, 2007 12:41 pm
4651
... to fix my post craniotomy head pain/"headache" (which is localized to the incision site & occasionally the front and/or top of my head). I have tried...
There was an article in the NY Times on Aug 14 (Science sec) by Jane Brody entitled "Thriving After Life's Bum Rap". It deals with cancer in particular but...
I have to agree, GREAT article. We've heard many of these sentiments before. It often seems to me that the happiest people I know are my brain tumor...
trisha4080
trisha4080@...
Aug 21, 2007 9:49 pm
4654
Bill, may I add to your very astute dietary suggestions, the possible importance of Omega 3? It has been shown in laboratory conditions (not in human study,...
Well, we have a celebrity among us... most of you know Kim Chrane as she was one of the original members of this list and is actively involved in brain tumor...
trisha4080
trisha4080@...
Sep 6, 2007 6:55 pm
4657
I haven't posted in a while but thought it is important to share good news. I had my 2 year post surgery check up Friday an the Lahey Clinic in Boston. There...
JoAnne, Congratulations on your good news! I want to use this opportunity to also address a common finding on postsurgical/post-treatment MRIs. I always...
trisha4080
trisha4080@...
Sep 10, 2007 2:23 pm
4659
I've got a question that if I asked 10 different people I would probably get 10 different answers. I had brain (shunt) surgery twice in 1985 to drain an...
Many of us have met dear Shannon and her Aunt Christy at several conferences around the country, please keep them in your thoughts and prayers, Shannon is a...
I'm sorry this is so long, but I think you'll find it worth the read. I had the opportunity just recently of meeting (first through the WEB, where else of ALL...
Hello everyone, I got back from my kidney's surgery and I have the results.......... I definitively have VHL and the "suspicious mass" on my kidney resulted to...
The ABTA, BTS and NBTF resources are all available in printed hard copy if you contact the organizations directly. There are also other additional BT ...
_Click here: Cancer today has a new face,' Healy says_ (http://www.cleveland.com/entertainment/plaindealer/index.ssf?/base/entertainment/117507128646300.xm ...
To add to a new blog it might be possible to pull together links from existing meningioma stuff online from Alan Henerich at his MENINGIOMA SUPPORT AND...
Event: NBTF Teleconference ... Treatment Updates for Brain Tumors: A Program for Patients and Families Dec 04, 2007 This program is free and will provide an...
I just opened an email from a person who found my blog... please read it below and let me know if you know where they can find the help they are looking for. ...
My suggestion is to stay with St. Jude. I've been following the blog of a young leukemia patient http://www.ethanpowell.com and know from this family's...
Yes St Jude is great and the expert pediatric cancer care there is free and I think Gleevec is now suggested for abdominal cancer and any spread of disease,...
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