Hi All. It's been a while since I have checked in. I hope things are going well for all of you. It's been a tough month for the family. My father who has a...
Kim - I have tried to find something specific for you as far as advocacy for patient rights, but have been unsuccessful. I do suggest you contact the American...
Trisha - Thank you so much for the information that you passed along to me. It sometimes feels like we have no one on our side. So I will definitely take...
Thank you for telling us about that site! (Patient Advocate Foundation) I have added it to our LINKS section for future reference. Wonderful. _____ From:...
Hi my husband who has grade 4 glioblastoma was in the hospital last night for an infectiom and they did an ultrasound on the head. I was just wondering can...
i'm not sure. i had an ultra sound to check for blockagesin my neck to see why i fell and that was negative but the ct without contrast showed the tumor then i...
Well I am sorry that I haven't written much here lately. My sister was here
for a week and we were staying up watching chick flicks and all that good
stuff....
well today i do all the running around. i go the church pack the luggage go to a bridal shower and post a message. i wa wondering if you can shower with the...
I would be nervous about brushing it before speaking to someone from your ns office. I would give them a call, even if it IS a weekend. Better that, than...
Lol Jenn.... good luck to you! Let us know what you find out... wink! Jeanie Jenn Cox <jeni_c_2003@...> wrote: Well I am sorry that I haven't written...
Even if you did send it to the wrong group, good luck to you! But, I have to know... what is 'AF'? All my best to you and your husband while you wait for...
Hi my husband read that after 6 months they stop the chemo if you are in an experimental trial. Itis either one or the other after 6 months/ Is that hte normal...
AF is Aunt Flo. I just abbreviate it. :-) This would be my 2nd if I am preg
I was supposed to have a CT this morning but because I might be preg they...
Last Friday there was an article on the front page of the Jackson, MS paper titled "Living with constant pain". It was about a woman who has arnold chiari...
Notice: I will be away from my computer as I am going camping through Maine for a few days with my husband. (make the rain stop!) I will remove moderation of...
hi everyone we just came home fron duke university where my husband is on a clinical trial since march he has gbm 1v the cancer hasnt grown any since march...
Hi Trish and everyone ~ It's been awhile since I've posted. My husband Mike had surgery on 4/25/06, where 75% of one (of two) of his tumors was removed. The ...
Hi it sounds as if your husband is on the right track. My husband was diagnosed in Feb. w/glioblastoma stage 4. He had a large tumor removed but a small one...
Thank you for this group! I had 2 benign mengionoma's removed Sept 24th 2001( 2 cm Left Temporal and 1cm left occipt) 10 days later I had a pulmonary embolism...
God grace to you. you have a long road in front of you. acceptance will reduce your anxiety and that will improve your functioning. be as regimented as you can...
Dear Ruthie, We are all in the same boat, Angela is right, ditto what she said and the stress you place on yourself, like trying to be perfect, can make it...
what a long journey ou are on. you an inspiration to me who was just waitng to be thru. you are built stronger and tougher and you will ride this one out. we...
My husband was diagnosed in Feb w/stage 4 glioblastoma and his personality has just changed alot for the worse. He swears more, gets agitated more and is very...
Where is he being teated? What chemo has he had? What is he on now? Is he taking dexamethasone/steroids for edema/swelling? More information/specifics...
Can you say where his tumor was located? Mine was in the right frontal lobe, which effects behavior and concentration and such. Let us know. Sue Mason, 50 ...
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