My sister and her friend went to a christian camp for a week the past week. and when TAylor's, my sister's friend, dad came to pick her up he told my mom this...
What are Late Long Term Effects of Radiation Therapy? Question: My wife has an anaplastic astrocytoma that was diagnosed four years ago. She had surgery,...
National Brain Tumor Foundation (NBTF) eNews: August 2005 Dear Mr. and Mrs. Breen: If you are unable to read this page, please click here for the web version: ...
I am a 8yr survivor of 3 strokes. I speak to many brain injured groups. From wat I hv dealt with anyurysms, tumors, accidents and strokes. Regardless of the...
Dear All, (I am still having so difficulty writing (and speaking the way I want to) but I felt I wanted to comment on the current line of discussion on Ruta, ...
I tried to email this and it was returned so I am submitting it through the yahoo list. If it is duplicated I apoligize in advance. I am scheduled for surgery...
JoAnne, If you don't mind may I forward your question to a friend on another brain tumor group that I belong to? I know he lives in New England and maybe he...
Hi, I suppose I need contact with others so I joined this group. I am 35F, 36 next month. Two teenagers and recently divorced. The latest on me is that I am...
JoAnne -- Great questions and it's WONDERFUL to see more and more people thinking like this! First, Lahey Clinic in Burlington has got an excellent reputation...
Dee, It's good that you found us. There is a new medication called Zonegran that has had some success with the partial complex (which the small/gibberish ...
Thank you Trisha for your answer. I have printed out your letter to take
with me to my pre-op appointments next week. I went to the Lahey clinic site and...
HI GUYS THIS IS PATTI,I AM A LOING TIME MENINGIOMA SURVIVOR.I WAS WONDERING IF ANYBODY ELSE HAS HAD A PROBLRM WITH THEIR NEUROLOGIST,JUST BECAUSE YOU DONOT...
Enlightned147@...
Aug 13, 2005 10:00 pm
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Hi Patti I would seek a 2nd, 3rd and 4th opinions. Have you spoken with neurosurgeons and neurooncologists? They have different opinions but can justify your...
Thank you Carol,I do have another appointment next week with another nuerologist.My current Dr.wants me to go to the Mayo Clinic,which I know is a very good...
Enlightned147@...
Aug 14, 2005 9:52 pm
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Hi Patti We had Johns Hopkins review our daughter's brain tumor through the mail and there was no charge. Carol Beck ... From: Enlightned147@... To:...
Thanks Carol for the information on Mayo reviewing my MRI through the mail.I will give them a call tomorrow.How long did it take the Drs.to get back to you...
Enlightned147@...
Aug 15, 2005 3:11 am
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Hi Patti Actually it was Johns Hopkins that reviewed Heather's MRIs. They meet every Monday to discuss brain tumors and we overnighted the MRIs and the...
If anyone can point me in direction of decent gyn in Charlotte NC area, perhaps someone who understands that HRT and M's may not play nicely together, I ...
Dear Group, I know several people are trying to use Ruta/Calc Phos treatment and learning about the results, any new research ,etc. I am just sharing...
Well i started back to school Monday. it was hard going back not knowing what was going to happen. My band director put a shadow in behind me for marching...
Ashley I am someone who well understands the desire to march and be a part of the band. Back in the day (the 70's) I was in my high school marching band and I...
Vicky, I enjoyed your beautiful response to Ashley. Those really were the 'good old days.' Well, there's at least one thing that has changed drastically over...
Dear all, This was sent sometime ago from someone on one of the BT support Lists, (I haven't find the exact place on the website...) It was worth to keep and ...
I wasn't going to write this post to the group, but then I realized this is exactly where should write it. This has been a tough week for me and I'm a bit...
Hello Patricia (and everyone), Bruce here with a few thoughts on all of this. I'm not sure you remember me - We met in D.C. - I am the fellow "twiddling his...
Bruce, how could I forget you!!! Since you brought it up first, for those of you who were not in DC, it's funny story so I'll tell it (it makes me smile when I...
trisha, i'm thinking of you and wishing you the best!!!! i think all your feelings are normal. Can i ask why you went on siezure medication? i thought you ...
honowitz
honowitz@...
Aug 18, 2005 10:24 pm
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Hiya, I have no grand words of wisdom, but I know very well that feeling of "overwhelmed." You are certainly not alone in that, even though exact circunstances...
Dear Dear Patricia, I am sorry you are having a "hard week". (I am sure it is not just a "hard week"... ) (I wanted to write sooner, finish it, that is) it...