Hey Bruce!!! I just noticed your name. I belong to the ependy group that you moderate!!! I guess i don't keep up w/ this one like I do the other :o) Just...
My mom had a brain tumor removed from the base oif her brain it had squeezed her brain to 1/4 inch thickness. I was her care giver for years and her behavior...
Ditto Mary, You said it so well, many years ago in 1986 after my first surgery I mourned the loss of my previous self and had to slow down to get to know the...
Anne I so agree w/you. There are good days and bad. We make effort to overcome bad. I too throw a switch as I can't allow myself to fall in those deep dark...
Hi Billie! I don't get on this one too often either. Anyhow, "HI"! Bruce chosen 1 <drlnclemntyn69@...> wrote: Hey Bruce!!! I just noticed your name. I...
Dear Brain Advocates, Congress needs to mandate funds for the TBI Act and an accounting of how many brain tumor survivors struggle with acquired brain injury...
Exactly Mary, Again you describe the mental confusion and discouragement we might face after any type of brain injury so well, stroke, auto accident, brain...
Trisha, You have walked the positive and that is what is special. Terminal brain tumor patient. Patsy b ... From: Bruce Blount [mailto:brub58@...] Sent:...
Patsy
pbmoffitt2001@...
Mar 6, 2005 7:07 pm
2304
Hello all. I am pissed. I have a lil concern bout my dad, and I was writing to all of you and for some stupid reason half way through it, it all disappeared?...
Patsy, Your words are kind, but I realize I am also very lucky. Although there is chance for recurrence, my tumor has not recurred. I can only speak from my ...
Trish, My favorite sauce!! You could not of stated it more beautifully then you did. For that is the truth. Sometimes I get so frustrated with myself I want...
Patsy
pbmoffitt2001@...
Mar 8, 2005 4:21 am
2310
My mother is a stroke survivor after 7 years (paralized on one side) has written a book and now speaks to cargivers and stroke survivor's groups. She will be...
hi all, have been reading posts for awhile. i am very busy as i do a lot of research (was a working nurse) found this site and thought some of you might also...
Hello, I haven't been posting in awhile. For one thing yahoo mail for some reason keeps messing up on me when I try to compose a letter. Also I been busy...
Tammy, Your Dad is getting closer, but how close is anyone's guess. I would suggest asking the hospice nurse about in-patient admission. There, they would be...
Tammy-- Boy, you sure have it coming at you from all sides, don't you?!?! You need to get some more help in there your your dad and yourself!!! You are NOT...
Alison Todd-Houghton,...
ssc@...
Mar 9, 2005 5:32 pm
2315
Note: This week the NCI CARRA E-NEWS is being sent via remote computer connection. The formatting may appear slightly different from usual; but the ...
Dear Brain surgery friends, I know the title of my message seems counter-intuitive, but I strongly agree with both our member and Patricia Williams here. It...
Ali, Thanks for the advice. I am trying my best to keep some help in here. I am suppose to have a Volinter comming to meet me today. Although the last time...
Thank you for your post, Anne. Not only for your insights and comments, but for pointing out something in the process. I sure hope you'll be submitting a...
hello ladies, i do know if you remember me or not but we have exchanged a few emails over the past almost three years. i see both of you on various sites....
To All, My name is Patsy B Moffitt-Kicks Butt. This is important and I would appreciate any advice on this subject. Feb. 11th I got my monthly order of...
Patsy
pbmoffitt2001@...
Mar 10, 2005 5:53 pm
2321
Usually the doctor has to write "brand necessary" on the script for the pharmacist to not give generics. Carol Beck m/o Heather, 26 yo, ependymoma-4th...
Hello Trisha, I had thought about in-patient care as it would be better for him and me. But I can't bring myself to do it. And also my dad does not have...
Tammy, I can see why you would want to keep him with you. The best place for him is where he will be happy. Many people do prefer to die at home. I am so ...
Hi Tammy! My Dad has metastatic cancer that has spread from the kidney to the lung and to the brain. We have been on a roller coaster ride for almost 2 ...
Dear Trisha, I did assume you, our moderator, were writing that last paragraph about your creative and artistic self too, hehehe but having met you in person,...
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