No, the anti-seizure med I was on was 600 mg Neurontin 3 x day, and they upped it to 900 mg Neurontin 3 x day. Eve H. San Diego ... From: Abrarul Khan To:...
Tammy, I agree with this episode most likely being a seizure. You've described a type of "focal" (or "simple") seizure called a "Jacksonian" seizure. ...
The devil has a name. This sucks. I am hurting so bad I can not believe it. I have an appointment with a pain specialist on Monday. I dont know if I can...
For those of you that might be interested, here is the information about the Florida Brain Tumor Association conference to be held in January 2005. Home About...
I'll try to find out about that... that was great. All it says is "networking opportunities". I'll write to Gary K tomorrow and find out for you. Hope you're...
Thanks Trish! Thanks for looking for something for me for the TN too. I have never had pain like this before. The Tegretol barely helps though the TN...
Hello All Again, I'd like to Thank EVERYONE for all their help the other day with my dad. I called his Doctors nurse and she said it did sound like a sizuir,...
In a message dated 11/5/04 3:25:15 AM Eastern Standard Time, stormy_choas@... writes: I take pride in doing that and caring for him the best that I can...
Hi, Would you please send more info on this conference: price, accommodations etc. Thanks so much...Walene [Non-text portions of this message have been...
Good question... I returned to the website and see that this information is not posted. The location of the conference is, but not price or registration...
Hi Trisha, Finally I could enter!! You know I need help because I don't know what I have to do with the students in my high school. I don't know how to make...
Friends, Ok... time for me to vent... I am SO mad at myself. Last week I took my trip up for the conference. It was great and I saw so many old friends and...
I went to see pain mangement specialist. She has ordered and MRI of the trigeminal nerve and a lot of lab tests. She prescribed Tegretol I will start taking...
Dear Trisha, Please be gentle on yourself. I am sorry you lost your materials. I have to think if you told them about this group they will eventually find...
I too missplace things I know I put in my purse. I suspect you have it somewhere. I speak to large delegations and many people give me their card or numbers....
Trish, Welcome to my world! LOL Cheers, Joyce in NY May your song bring joy to all who hear it. May we continue learning from our BT warriors and may they ...
Dear Brain Surgery Community, On behalf of the Brain Tumor Foundation, I would like to cordially invite you to our upcoming Brain Tumor Awareness Day...
Hi all, My name is Susan,and I live in Dublin Ireland. I had a pilocytic astrocytoma which had lain dormant for 30 yrs. It was only last sept that I began to...
HI, Due to 33 sessions in my radiation and holidays, I will be taking temodar for 51 days instead of 42. Just wanted to know if any of you have had or heard...
Welcome Susan! We are glad you found us. You are right... there are many of us that have had similar experiences. Last count, we had at least 5 astrocytoma...
Dear Abrar, At several BT medical conferences I have met many different bt patients who are on their own individually scheduled daily plan (arranged by their...
Once again, more spam. It's been removed from the archives and the author banned. I am going to conduct a poll to see what everbody would like to do about...
Enter your vote today! A new poll has been created for the BrainSurgery group: Spam posts for "money saving opportunities" etc have been on the rise in our...
BrainSurgery@yahoogro...
Nov 11, 2004 7:11 pm
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Giselle, I will search for a teen website for you as most of us are older. I want you to stay with us, too, though!!! So far, all I've been able to find for...
Hi. We don't have an online support group now for teens dealing with brain tumors. We had one, but there were so many problems and complaints that we closed...
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