Hello,
I first have to say THANK YOU for getting back to me at all. You are the first
person who ever returned my emails. Congratulations on your daughter's
graduation and happy birthday.
Sorry if I run on but please bare with me.
About a year ago I had seen my neurosurgeon and he had told me about the
surgery and scared me so much I didn't go back. My neurologist wasn't happy with
me but I guess he understood that I would have to come to terms with it. But I
am finally ready. I think. I'm not sure what the medical terms for my problem is
but, I have scars from the forceps the Dr. used when I was born. He crushed my
head trying to deliver me. I had cuts up and down the side of my face, 2 black
eyes, and one side of my head was higher than the other. It was so bad the hosp.
never took my first picture. You know the one all babies get when their born. I
weighed 10 pounds. I never had any issues till I got older. They said it was
sleep apnea at first. After many hosp. stays and car accidents my husband said
wait a minute. He said something was wrong and he was gonna find out what it
was. So now they tell me about the scars and they are on the left and right
lobes as well as across
the frontal lobe. From the research I have done myself I find that I may need
more than one surgery because I have so many scars. My next appointment is with
my surgeon and he will tell my husband everything we need to know. The last time
I saw him he said he didn't want to talk to me anymore that I wasn't
understanding what he was saying and next time I come to bring someone with me
that has my issue at stake. That was one of the reasons I didn't go back to
either. But I realize now I don't have to like him. He just has to do what he
knows how to do. My daughter is 6 and she deserves to have a mother that isn't
so sick. My husband deserves to be able to go to work instead of having to watch
me. And no one will ever say to me you cannot work or drive or even ride a bike.
I hope this answers some of your questions. I don't really know everything we
should ask when we do go to the surgeon. If you could help me out with that.
They say I should get a surgery date then. Now what?. I haven't even told my
husband about getting a date already. It kind of took me back when she said it.
But I must do it for my beautiful daughter Glory and my wonderful husband Gean
as well as myself.

Thanks,
Nancy






________________________________
From: Rachael Coldwell <rachcold6@...>
To: BrainSurgery@yahoogroups.com
Sent: Friday, June 19, 2009 11:52:24 PM
Subject: Re: [BrainSurgery@Yahoo] Surgery





Hi,

What surgery have they indicated you should have? Have they gone through all of
the possible risk with you? What is it for exactly? Do you mean scars?

My husband had a bifrontal interhemispheric craniotomy and although the last few
months have been horribly exhausting and I need to care for my husband I
wouldn't have it any other way. Please don't worry about being a burden to your
family. They love you and only want to care for you and make you happy. He has
lost his sense of smell but he still remembers what things smelt like. I'm sure
they will support whatever you decide is best for you.

Best wishes
Love
Rachael
w/o Barry 37
dx craniopharyngioma 21/01/09
craniotomy 16/04/09
rehab 29/04/09...til. ...
MRI 19/06/09
Meds - thyroxine, desmopression, hydrocortisone, testosterone, phenytoin

____________ _________ _________ __
From: mooky133 <mooky133@yahoo. com>
To: BrainSurgery@ yahoogroups. com
Sent: Friday, 19 June, 2009 8:50:22 AM
Subject: [BrainSurgery@ Yahoo] Surgery

My drs. have advised me to have surgery to remove the scares that have formed
from injuries received while I was born. I am 44 yrs old, and have a beautiful
family that takes very good care of me. I started having seizures and was
diagnosed with epilepsy about 8 yrs ago. Now with this little bit of background,
the thought of surgery scares me to death. The little bit I've talked to my
husband and daughter they are behind me although I can tell they don't really
want me to have it done. Because of where the scares are it could possibly cause
me to lose one of my senses like my sight, hearing, taste, smell, or touch. I
don't know what to do. I'm lost. What will it be like if I do have it done and I
have complications as well as still have uncontrolled seizures. I'm already a
horrible burden on the family.. I don't even know what I'm asking for here. Just
some impartial input. Anything please can someone help me?

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