Hi,

What surgery have they indicated you should have? Have they gone through all of
the possible risk with you? What is it for exactly? Do you mean scars?

My husband had a bifrontal interhemispheric craniotomy and although the last few
months have been horribly exhausting and I need to care for my husband I
wouldn't have it any other way. Please don't worry about being a burden to your
family. They love you and only want to care for you and make you happy. He has
lost his sense of smell but he still remembers what things smelt like. I'm sure
they will support whatever you decide is best for you.

Best wishes
 Love
Rachael
w/o Barry 37
dx craniopharyngioma 21/01/09
craniotomy 16/04/09
rehab 29/04/09...til....
MRI 19/06/09
Meds - thyroxine, desmopression, hydrocortisone, testosterone, phenytoin




________________________________
From: mooky133 <mooky133@...>
To: BrainSurgery@yahoogroups.com
Sent: Friday, 19 June, 2009 8:50:22 AM
Subject: [BrainSurgery@Yahoo] Surgery





My drs. have advised me to have surgery to remove the scares that have formed
from injuries received while I was born. I am 44 yrs old, and have a beautiful
family that takes very good care of me. I started having seizures and was
diagnosed with epilepsy about 8 yrs ago. Now with this little bit of background,
the thought of surgery scares me to death. The little bit I've talked to my
husband and daughter they are behind me although I can tell they don't really
want me to have it done. Because of where the scares are it could possibly cause
me to lose one of my senses like my sight, hearing, taste, smell, or touch. I
don't know what to do. I'm lost. What will it be like if I do have it done and I
have complications as well as still have uncontrolled seizures. I'm already a
horrible burden on the family.. I don't even know what I'm asking for here. Just
some impartial input. Anything please can someone help me?





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