Hi all,



I was on this list back in 2001 when I had surgery and never thought I would
have the need for this kind of support again, but here I am.

I had an MRI on 04/14/09 basically for piece of mind to make sure that the tumor
I had removed in 2001 was still gone. Well, bad news, it was back along with
another one. The lesion in the 3rd ventricle is back which is the one I had
operated on back in 2001, I also have another lesion near the cribform plate.
So, this is what we learned from the neurosurgeon yesterday:

For the lesion in the cribform plate, I will need sterotactic radiosurgery in
the future (probably 6 months from now) but that is only a day in the hospital.
Sounds horrible though, for that one you have to have a vice screwed into your
head and lay flat for 5 hours while they radiate your tumor.

For the more urgent one (the one that I had before), I have to go for another
MRI but he is talking most likely doing a craniotomy again. He could just drain
it using endoscopy but in order to remove any of the shell he would have to do
an open procedure. The shell is wrapped around a couple of main veins so he
can't remove the whole shell but he thinks he can get rid of most of it so it
won't grow back again. For now we are taking it one step at a time and I am
going to go for a better MRI than the one I had. Strong's MRI machine has a
magnet that is much stronger than Borg's so they can get better pictures. So
they are going to schedule another MRI and a bunch of lab work and then I am
going to meet with him again to make a decision regarding what we should do at
this time.

Jodee

1.5cm colloid cyst cleaned from 3rd ventricle on 02/19/01 via right frontal
craniotomy – currently two lesions, return of the colloid cyst and lesion
originating from cribform plate, awaiting surgical decisions. Right frontal
craniotomy is most likely for colloid cyst and stereotactic radiosurgery for the
cribform plate lesion.