Hi All,

Some of you know me and already know about the project I have been working on
recently, others of you don't so I will just try and explain what it is and what
I desperately need your help with.
My name is Natalya Jagger and in June 2006 I joined the brain tumour community
when my best friend Andrew's daughter, Rose, was diagnosed with a Glioblastoma
Multiforme - a Grade 4 (IV) Brain Tumour. Like many people who are thrown into
this world I had a need for information and answers to so many different
questions.

I spent hours trawling the internet to find anything I could that might help and
joined various online brain tumour groups in the hope that others would be able
to offer answers to my questions and share their experiences. I was touched by
the closeness that many of these groups have and the overwhelming feeling of
hope that they give to all those who join.

When Rose passed away I put the information I had collected in a drawer and
vowed never to look at it again, but, somebody somewhere had other ideas. Due to
my own ill health I found myself with a lot of time on my hands and I decided to
take out my folder and start participating in the brain tumour groups I had
joined again. This was the start of BT Buddies.

The name Brain Tumour (BT) Buddies came from the fundraising Rose's father and I
were doing in Rose's memory. We had decided to call our fundraising 'arm'
RoseBuddies and it seemed right to keep a connection between the two by calling
this website BT Buddies.

The purpose of BT Buddies is to provide as much information as possible in one
place on high grade brain tumours for patients, families and caregivers in the
UK. As well as the information pages we have a forum area where people can ask
questions, get support, share their stories, and more.

I realise that most of you aren't in the UK but I would still like feedback from
any of you about the website if you have the time.

If any of you are interested in looking through the website and letting me know
your thoughts on things like the layout, how easy it is to use, if there is any
important information missing etc etc, please email me at

natalya@...

And I'll then send you the link to the site and we can take things from there.

Apologies for such a long message but this project is something very close to my
heart and I desperately want to make it a helpful resources on high grade brain
tumours.

Together in hope,

Natalya

friend of Andrew, Proud F/O Rose, Our Beautiful Angel 26/01/1984 - 11/11/2006



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