Kim -

I have tried to find something specific for you as far as advocacy
for patient rights, but have been unsuccessful. I do suggest you
contact the American Cancer Society 1-800-ACS-2345, American Brain
Tumor Association 800-886-2282 , and the medical society in the
county where you live. Your father is a fighter and people have won
the battle with GBMs, just ask Matthew and David. If he's not done
fighting, he deserves to have his medical team work with him.

I will keep trying to find something for you. In the meantime, I
hope the above agencies can be of help in either assisting you
themselves or directing you to someone who can.

How about the ACLU? It seems to me it is a civil liberty to have
the access to medical care. Am I off here? Their website is
http://www.aclu.org/ and you can find a local office to call by
checking there.

Thank you for keeping us informed about your father. Please let him
know that we are keeping him in our thoughts and prayers and if
there is anything we can do, let us know. I'll see if I can find
out anything on my end for you.

Good luck and keep up the good work in advocating for your dad. Go
Team Tentler!

Trisha

--- In BrainSurgery@yahoogroups.com, Kim Rollins <chicago546@...>
wrote:
>
> Hi All.
>
> It's been a while since I have checked in. I hope things are
going well for all of you.
>
> It's been a tough month for the family. My father who has a GBM
has battled pneumonia, meningitis and several brain infections.
Somehow he has pulled through it all. Although it is still a roller
coaster day to day, overall he seems to be progressing. He has had
no tumor activity since it was removed back in April.
>
> The problem is that the family feels that the major teaching
hospital in Chicago that has been treating him wants to limit the
treatments and rehab they offer to him because he has terminal
cancer. From my perspective, he has the same rights to recovery as
anybody else.
>
> I plan to file a complaint with patient services this afternoon
and I am going to hire a lawyer. Any other suggestions?
>
> Thanks for your help and support.
>
> Kim
>
>
> ---------------------------------
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>
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>