Thanks so much to everyone who contacted me! With the large volume of Meningioma List related email that I receive as personal messages, I may not be able to write back individually to each one of you. However I do want you to know that your stories are appreciated -- AND important. As this project develops more completely, I'll keep members of our online community updated about it.
With best wishes,
Nancy
Hi Nancy,
I just got back from a terrific vacation and read your post.
I think you know my story of misdiagnosis for many months when I was still a teen, although it's probably to late for you to make any use of it.
I will possibly be admitted real soon for a week of monitoring and testing at the NYU epileptic clinic. Basically, they want to know which parts of the brain have been affected by this tumor. I will be sent home after that and readmitted for surgery.
Just wanted to keep you and everyone else on this great list updated.
All the best,
Delia