If you can not view this email please click here.

SAFETY ALERT: Switching Epilepsy Drugs Contact the Physician Before Switching Dear Pharmacist, We are requesting your assistance in providing optimal care to your patients with epilepsy. Since medications play a major role in the treatment of epilepsy, pharmacists serve a vital role in the care of patients with this chronic condition. As such, we are alerting all US pharmacists of potential safety issues resulting from unmonitored formulation switching for patients with epilepsy taking anti-epileptic drugs (AEDs). Formulation switching includes changing from brand to generic, generic to brand and generic to generic formulations. Finding the right balance of preventing seizures and minimizing adverse effects in many patients with epilepsy is a complex and sometimes lengthy process. This balance can be affected when an AED formulation is changed. The variance in bioequivalence currently allowed by the FDA may result in the fluctuation of AED concentrations in the individual. This fluctuation can result in lower AED concentrations with resultant seizures or higher AED concentrations and subsequent toxicity in a small but significant number of epilepsy patients. Given the potential increased risk of unexpected seizures or increased side-effects, the Epilepsy Foundation strongly recommends that pharmacists contact the physician and inform the patient prior to formulation switching and get the consent of each. The Epilepsy Foundation strongly recommends that pharmacists contact the physician and inform the patient prior to formulation switching. The Epilepsy Foundation released survey data today from 1,085 people with epilepsy regarding their experience with formulation switching. Among respondents that had switched from a brand-name to a generic AED, seizures worsened for 59% of patients and medication side effects worsened for 49%. Among respondents that had switched from a generic to brand AED, seizures worsened for 15% and side effects worsened for 18%. More than 25% of respondents reported experiencing problems after switching between different generic formulations of an AED. **Studies on the safety of unmonitored formulation Switching** While the Foundation study is limited as patient reported data, it lends further credence to recent large scale retrospective studies on the safety of unmonitored formulation switching. The study of data from 451 physicians published in Neurology, the journal of the American Academy of Neurology (Berg, et al 2008) provides documentation of lower drug serum levels in some cases with breakthrough seizures, followed by a return to baseline after switchback; this gives significant weight to the concern that the breakthrough seizure was not coincidental, but caused by the switch. A case-control analysis utilizing the Ingenix LabRX data sought to determine if patients who received epilepsy care in an emergency room had greater odds of having had a switch between an A rated AED in the past six months. The results, published in Epilepsia, the journal of the International League Against Epilepsy (Zachry, et al 2009) indicated 81% greater odds of exposure to generic switches in patients receiving emergency room care with an epilepsy diagnosis. These results were subsequently replicated with the PharMetrics and Marketscan databases. Each author independently estimated the attributable risk of a breakthrough seizure when switched at 5%. The Food and Drug Administration In response to these studies, the Food and Drug Administration (FDA) is working with the American Epilepsy Society and Epilepsy Foundation to conduct a prospective trial of AED concentrations when switching among AED's. The FDA has also amended its regulation on the submission of bioequivalence data to require applicants to submit data from all bioequivalence studies (in the past applicants needed to only submit studies demonstrating that a generic product meets bioequivalence criteria in order for the FDA to approve). Pharmacists Can Protect Patient Safety Given that there is not yet a way to identify which patients may be at risk for a breakthrough seizure; and given that even one breakthrough seizure could cause significant and even life-threatening consequences for the patient and others, the Epilepsy Foundation believes that pharmacists have a responsibility to protect patient safety by obtaining the agreement of the physician and informing the patient prior to formulation switching. For expert analysis and patient testimonials: www.epilepsyfoundation.org/medicationswitching

ACT Today! is currently accepting new applications for our spring grant
dispersal. Please click below to print out the application. Emailed and
faxed applications will not be considered. The application must be received
by Friday, April 24th, 2009 to be considered for our spring grant dispersal.

Our ability to raise funds is the single most important activity that
determines our grant-giving for the year. Then, once we determine how much
we can give each year, we review the following items when considering
approval of a grant request.

* Completion of grant application - The application must be completed in
its entirety to be reviewed. Partially completed applications will be kept
on file for one year and additional information may be submitted to make the
application complete within that timeframe.
* Amount of grant request - Typical grants are awarded for $100 -
$5,000.
* Household income - While we have not set an income level cap, incomes
below $100,000 per year are reviewed first.
* Type of treatment requested - Our mission is to fund effective
treatments and needed assessments.
* Numbers of family members with ASD diagnosis - Applications from
families with multiple children with ASDs are reviewed first.

http://www.act-today.org/ACT%20Today%20Grant%20Application%20Spring%202009.pdf
http://groups.yahoo.com/group/IEP_guide/links

Just a note to let you know that hbot is not as expensive as it used to be.  
Miracle Mountain in NC is a cooperative and since we have paid off our loans we
have lowered our price to $2500 which includes 40 sessions of HBOT, Auditory
Integration Training (AIT), and patterning via the equipment we have.  In
addition, we provide housing free of charge.

In the month of May we have privately funded grants available of $200 each but
they must be used in May.  This brings the total cost of everything to $2300.   
We have provided almost 20,000 treatments to children with BI.

We are celebrating our 10th year.
Our web page is located at www.miraclemountain.org
For those who are to far away to drive, we arrange for free airline tickets
through Miracle Flights.

Our experience and success rate is extensive.

Feel free to call Alice at 336-385-1775

I think we may still have an opening in April.

thanks
Robert Hartsoe
www.miraclemountail.org

Just a note to let you know that hbot is not as expensive as it used to
be.   Miracle Mountain in NC is a cooperative and since we have paid off
our loans we have lowered our price to $2500 which includes 40 sessions
of HBOT, Auditory Integration Training (AIT), and patterning via the
equipment we have.  In addition, we provide housing free of charge.

In the month of May we have privately funded grants available of $200
each but they must be used in May.  This brings the total cost of
everything to $2300.    We have provided almost 20,000 treatments to
children with BI.

We are celebrating our 10th year.
Our web page is located at www.miraclemountain.org
For those who are to far away to drive, we arrange for free airline
tickets through Miracle Flights.

Our experience and success rate is extensive.

Feel free to call Alice at 336-385-1775

I think we may still have an opening in April.

thanks
Robert Hartsoe
www.miraclemountail.org

--
I have updated my site with NEW studies, New testimonials! Have a look
God bless everyone today!
Susan

     Updated the Testimonials Page
     http://www.hbot4ucom/testimonialshtml

     New Testimonial for JJ
     http://www.hbot4ucom/jj.html

     Main Research Page updated in all sections that have been altered
     http://www.hbot4ucom/research.html

     Alzheimers Section Updated
     http://www.hbot4ucom/alzheimers.html

     Brain Research Section Updated:
     http://www.hbot4ucom/brain1.html

     New Research Paper
     http://www.hbot4ucom/brain138.html

     New Research Paper
     http://www.hbot4ucom/brain139.html

     New Research Paper
     http://www.hbot4ucom/brain138.html

     RSD Research Section Updated
     http://www.hbot4ucom/reflexlisting.html

     New Research Paper
     http://www.hbot4ucom/reflex23.html

     Optical Research section updated
     http://www.hbot4ucom/rplisting.html

     New Research Paper
     http://www.hbot4ucom/rp25.html

     Bone Listing Research Section Updated
     http://www.hbot4ucom/bonelisting.html

     New Research Paper
     http://www.hbot4ucom/bone10.html

     New Research Paper
     http://www.hbot4ucom/bone11.html

     Wounds Listing Updated
     http://www.hbot4ucom/woundslisting.html

     New Research Paper
     http://www.hbot4ucom/wounds9.html

     New Research Paper
     http://www.hbot4ucom/wounds9.html

     Infants Research Section Updated
     http://www.hbot4ucom/infantslisting.html

     New Research Paper
     http://www.hbot4ucom/infants16.html

Hello, I have a 800+ site with studies and testimonials Please freely look
read and copy any of the information, www.hbot4u.com
My office number is 909-889-7626 we have non profit logging and we
celebrating our 11th year with wonderful prices for children, I would also
be more than happy to send you a full packet of information please send your
mailing address.
My email is hyperbaric1@...
Sincerely
Susan Rodriguez CHT
Rapid Recovery Hyperbarics
" we answer to a higher authority"
----- Original Message -----
From: "mandalwilliamson" <mandalwilliamson@...>
To: <BrainInjuredChild@yahoogroups.com>
Sent: Saturday, March 21, 2009 2:15 PM
Subject: [B.I.Child] HBOT


>I would love to have some more information on HBOT. The first time I have
>ever even heard of it was through you guys. I have been doing some research
>and it seems like a great idea. It is a bit expensive but, we are willing
>to do anything to help Aiden. Any advice from you would be great!!
>
>
>
> ------------------------------------
>
> Yahoo! Groups Links
>
>
>
>
> __________ Information from ESET Smart Security, version of virus
> signature database 3953 (20090321) __________
>
> The message was checked by ESET Smart Security.
>
> http://www.eset.com
>
>
>

My name is Tanea. My son Mikael was born 2 months permature and sustained brain
damage due to lack of oxygen. I have been reading about HBOT ever since I was
given the diagnosis. I was amazed on the positve results of the treatment but no
means to pay for it. Through the help of family members, we started Mikael's
HBOT treatments at 7 months old. The beginning was hard because mikael responded
to the therapy by having seizures. We are at the halfway point and I have seen
positive results in mikael already. Befroe the treatments, mikael was on oxygen.
After the first 5 sessions, we were able to whine and eventually take him off of
oxygen. He has been alot more alert and coming along developmentally. I am
excited to see what the next 20 sessions will do. For any parent that has been
doubting this treatment,  know that it is the least painful treatments out
there. You are going to have your bad days , but the good days will come before
you know it....

GOD BLESS

---- SUSAN RODRIGUEZ <hyperbaric1@...> wrote:
> Shaken Baby Syndrome  March 2009
> NEW
>
> JJ's Testimony
> At the Neurologist appointment two days ago, I was asked if we were to "go
back" to HBOT for another treatment. Was it recommended? I said yes. The
neurologist answered, good, and nodded her head with a smile on her face. I felt
that was positive since the neurology department does not usually support any
treatments not yet FDA approved. However, I would not call HBOT an
"experimental" treatment. I admit I too was a little skeptical how something so
simple as oxygen could improve my daughters well being but I had to give it a
shot for her sake. I couldn't live with myself asking the "what if" question for
the rest of her life. So, we went.
> I can say that God put us at the right HBOT facility. Susan Rodriguez, who
owns the RAPID RECOVERY HYPERBERIC TREATMENT CENTER not only welcomed us, but
she gave us continuous support, information, samples of vitamin supplements,
which proved to be very beneficial (and later highly recommended by the
neurologist). I was amazed at her vast knowledge of the details of the way HBOT
works. She was able to explain to me in terms I could understand what each phase
consisted of.
> My daughter, who will be three in April came to treatments with little to no
head control, failure to thrive, CP, Blindness, Hard of hearing, Infantile
Spasms, seizure disorder, and unable to walk or talk. Her medical challenges
come from a severe brain injury at the age of 3 months. She has been in therapy
continuously with little improvement. Now HBOT was way out of my price range. I
admit that. However, I knew I had to try it for her. We set about doing many
fundraisers, wrote to every agency I could think of, talked to my church, and
finally asked the public for help. I knew it was looked upon as a long shot but
I also knew I had read many testimonies that kept me working towards out goal. I
am the first to say it was not easy, but also the first to shout it was worth
it! I wish I could write magic words that would leap off the page and get
everyone who has medical challenges such as brain injury, autism, near drowning
etc to go right down and try HBOT but I don't. All I have is our experience.
After just a few treatments, I noticed my daughter, JJ, was more alert. She went
through stages that Susan explained and gave us literature to read which
explained in more detail. She also has battled severe constipation and that has
completely diminished. Fast forward, we are now home and I have noticed many
"small" changes that are HUGE to me. She holds her head up for longer periods of
time and her neck is much stronger. She is sleeping five hours straight at night
verses waking up every hour or two through out the night. (A side benefit for
me, I now get some sleep!) She is eating by spoon more, in fact every day she
eats her lunch with the spoon rather than mostly a bottle of baby food. She
"might" have some CVI, we have an eye appointment next week to see if there is
any vision. She will now blink when things come close to her face, before she
would do nothing. She is happy more through out the day. She laughs and smiles
daily, rather than just once in awhile. She has this adorable personality that
is blossoming before me. Like a tiny rosebud becoming an actual flowering rose.
She is moving her mouth up and down wanting to speak so badly. She did say "ummm
good" after eating a bite of mashed potatos, I was thrilled! She has said "Mom"
twice. Was it hard to come up with the funding? Yes, I am on a fixed income due
to a back injury but that didn't stop me. Her improvements have been priceless.
I am now working on more fundraisers so we can go again in six weeks. Let me
tell you from experience, HBOT works.
> With gratitude,
> T B
> Mother to J.J.
>

I would love to have some more information on HBOT. The first time I have ever
even heard of it was through you guys. I have been doing some research and it
seems like a great idea. It is a bit expensive but, we are willing to do
anything to help Aiden. Any advice from you would be great!!

Welcome, Amanda.

You will find a ton of information within this group.  When you have time, check
the archives too.  Wish you all the best in helping your son recover.  It is
possible (I think you know that already).

Take Care,
Terry

--- On Sat, 3/7/09, mandalwilliamson <mandalwilliamson@...> wrote:

> From: mandalwilliamson <mandalwilliamson@...>
> Subject: [B.I.Child] New to the Group...
> To: BrainInjuredChild@yahoogroups.com
> Date: Saturday, March 7, 2009, 3:06 PM
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>             My name is Amanda, and I looking foward to
> being a part of this group. It will be nice to have someone
> to talk with, I always have to be so strong for my family.
> I have an 18 month old named Aiden. He had meningitus when
> he was two months old. He had seizures which left his brain
> severely damaged. His front and back of his right side are
> almost as if they were never there. When you look at his
> MRI, it's as if you are looking at a black hole in those
> places. He has cortical vision impairment, and they tell me
> when he is older he will have a hard time with his decision
> making abilities. He is still pretty young, so we can't
> really tell how much progress he is making. We can tell he
> is behind on his speech and is still having a hard time
> feeding himself. He also has seizures. They are not as bad
> as they were, the medicines really seem to be controlling
> them. We are so blessed though, he is our little angel. We
> just want his life to be as normal as possible.
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>

My name is Amanda, and I looking foward to being a part of this group. It will
be nice to have someone to talk with, I always have to be so strong for my
family.  I have an 18 month old named Aiden. He had meningitus when he was two
months old. He had seizures which left his brain severely damaged. His front and
back of his right side are almost as if they were never there. When you look at
his MRI, it's as if you are looking at a black hole in those places. He has
cortical vision impairment, and they tell me when he is older he will have a
hard time with his decision making abilities. He is still pretty young, so we
can't really tell how much progress he is making. We can tell he is behind on
his speech and is still having a hard time feeding himself. He also has
seizures. They are not as bad as they were, the medicines really seem to be
controlling them. We are so blessed though, he is our little angel. We just want
his life to be as normal as possible.

Hi everyone,

I feel like I have to pass this along to you.

As a mother of a child who has recovered from autism, I still keep alert.  When
one of my friends forgot to watch what he was eating one day, my son got a hold
of a small can of orange soda.  She brought him back to me and said he was
uncontrollable.  I watched in horror as he walked in behind her.  I saw the same
dazed, glazed look he had over a year earlier when he was in the mist of autism.
It was 3 long, agonizing days of no eye contact, no talking, babbling and
isolation.  I was a wreck.  I thought I lost my son again.  On the third day, we
were sitting on the couch together and he started talking again.  He said
"Mommy, I feel really sick."  I jumped for joy.  He was back.  And, ever since I
know this was my wake up call to always be on guard with his health.

Recently, a lot of information has been flowing my way.  I update and add it to
my website as it comes.

What I want you to be aware of is the health warnings of Soy (all products)
especially infant formula and High Fructose Corn Syrup.  You can find the info
yourself or go to my webpage: http://www.veggieterryann.com/?q=node/35
and I have it listed for you.

Happy Health,
Terry
www.VeggieTerryAnn.com

Hi Everyone,

I've updated my website, VeggieTerryAnn.com, with some great news for many of
us.

Iodine

When you read the "Veggie Bite" on this nutrient, you will come to know how
vital it is for your health.

Here is a short list of benefits:

Increased Energy
Clarity - clears brain fog
Relieves Headaches, Insomnia, Nervous Tension
Chelator of Heavy Metals and other Harmful Chemical from the Body
Clears Candida
Recovered patients from Menstrual Problems,
Hyperactivity,
Learning Disabilities,
Autism,
Multiple Sclerosis
and Auto-immune Diseases such as Crohn's Disease and Lupus Erythematosus.
Plus, so much, much more.

I have links listed to videos so you can learn how to make your own Iodine.
I have links to the research plus copied some of it right on to my page.

Have you ever wondered why Fluoride is bad?  You know, the whole debate about
whether to fluoridate and chlorinate the water.

"Fluoride is an antagonistic element to Iodine, meaning it will impede the
absorption of Iodine. Many of us are forced to drink fluoridated water and also
brush our teeth with fluoride. Could an Iodine deficiency be related in some way
to the current epidemic of hypothyroidism, breast, and prostate cancers? The
protective function of Iodine in these tissues has not been described, but the
fact that these tissues when healthy are replete with Iodine, and when diseased
have little or no Iodine, leads one to think there is more than a casual link."

Iodine detoxifies the body by removing mercury, fluorides, chlorides and
bromides.  This is huge as many of these substances are linked to many very
serious maladies in our time.

If you have questions or success stories of your own, please use my blog (found
at the bottom of each page "About Me").  The blog can help us learn from each
other.

Thank you.

To Your Health,
Terry

www.VeggieTerryAnn.com

Colleen, I thought you were the owner of that center?  Do they use the
soft chambers or do they use hard chambers with 100% oxygen.  As you
know, there is a huge difference in results.
Robert

My son has been receiving HBOT at Hyperbarics of Raleigh in NC, we
completed our protocol last month.  This is a wonderful HBOT Center
located in North Raleigh.  We have seen tremendous benefits from this
treatment and I continue to try to spread the word about it's benefits
to other families.

I was just notified that they have changed their rates down to $150 per
treatment and they do treat off-label conditions.  I hope other
families will be able to take advantage of the wonderful therapy for
their child.

Blessings,

Colleen

Hi everyone,

I posted the following on my website's home page and thought I'd let you know
about it as well. Very exciting.

My husband and I were invited to "Twelfth Night", a charity event sponsored by
the City of Lehi's Rotary Club last night. It was here where Heart2Home extended
a very special gift to our family. Over the Valentine's Day weekend, they, many
sponsors and volunteers will be gathering at our home to surprise us with a
"Home "Suite" Home Valentine's Make-Over".

Please take some time to visit Heart2Home's website to learn more about this
amazing organization and what they have done for your neighbors around Utah.

We are so very grateful, honored and humbled at the generosity that has been
bestowed upon our family through this exciting event. We sincerely thank each
and every sponsor that has given so much already. We also appreciate all the
love and hard work the team at Heart2Home has done for us too. This special team
is made up of Greg Adamson, Tiffany Berg, Joey Hoerschel, Wendell and Kathy
Cahoon, Orlando Tsosie, Chad and Lori Walker, Julie Haslem and Patrick Perrett.

Thank you so very, very much everyone!

www.heart2home. org

Terry
801-785-4489
www.VeggieTerryAnn.com

Hi everyone,

I'm an oldie from these groups.  I joined about 5 years ago when we found out my
son was severely autistic.  Since docs and experts did not have much hope for
him, I looked for other sources of help.  BIChild and Childbrain were a great
source of help and support during those days.  I did not make the switch to the
sites when most wanted something different than a ton of e-mails to sort through
daily.  But, I'm still here to lend a hand whenever needed.

As a matter of fact, I finally got a website up and running.  I have been adding
to it weekly - more like daily - since the beginning of 2009.  My autism booklet
is available through the website.  It is 17 or so pages of what I did to reverse
autism for my son.  The website is also full of other information, services,
products and links you may be interested in.

Enjoy and let me know what you think.
Terry
801-785-4489
www.VeggieTerryAnn.com  Find out what's new, click here.

Is there anyone who has a small creepster crawler that would be
willing to donate it?  I want to try one with my daughter but
insurance won't cover it and they are so expensive.  We live in
louisville kentucky but I could pay for shipping from somewhere else.
  thanks.

We're offering Free Shipping within the Continental United States on
three of our portable hyperbaric chambers on orders placed by
December 15, 2008.  This Free Shipping offer is valid on all new
orders for the Healing Dives Mini, Midi, and Maxi.

Orders placed by December 1st should arrive during the holidays.
Chambers purchased with a prescription and paid for in 2008 are 100%
deductible on your 2008 tax return as a medical expense.

Are you interested in trying a chamber before buying one?  We have
chambers for rent from $1,995 per month, and if you decide to
purchase your chamber, 100% of the first month's rent will be applied
towards the purchase price of the chamber.

Choose from the following chambers:

Healing Dives Mini, 28" in diameter, 1.2 ATA, $6,995 - Free Shipping
through Dec. 15th

Healing Dives Midi, 28" in diameter, 1.3 ATA, $7,995 - Free Shipping
through Dec. 15th

Healing Dives Maxi, 40" in diameter, 1.3 ATA, $13,995 - Free Shipping
through Dec. 15th

Healing Dives Shallow, 36" in diameter, 1.3 ATA, $12,900 - Rent-to-
own for $1,995 per month

Healing Dives Deep, 34" in diameter, 1.3 ATA/1.5 ATA, $16,900 - Rent-
to-own for $2,675 per month

Take advantage of our other special offers:

Free Research on your condition.
Free Gift with chamber purchase.
Free Advice from a hyperbaric medical expert with chamber purchase.
Free Unlimited phone and e-mail support with chamber purchase.
Free Hyperbaric progress report with chamber purchase.
0% Financing for up to 15 months on your chamber purchase.

Feel free to contact me at 888-713-8700 or via e-mail at
diane@... for additional information on any of these
chambers.

Diane N. Pechenick
Healing Dives, Inc.
diane@...
http://www.healingdives.com