BrainInjuredChild : Messages : 13461-13515 of 14335

I have, and yes it should do the trick.

Mary-Ann <cybermathair@...> wrote:

Hi,

Had huge problems with an abcessed tooth 6 weeks ago (and although it took a lot of
painkillers and antibiotics, we did get it to settle down) Potentially 2 teeth need root canals.
Unfortunately, the injections don't work, due to a complication from having wisdom teeth
removed. In the past the dental work has been done under general anaesthetic, but there is
only one person in town who does it and the wait list for a consult is many months long.
Another dentist recommended having the work done with nitrous oxide.

I have used nitrous oxide during my 40 minute labour but I had to breathe in through a
mask......which I don't see as being very compatible with dental work. Has anyone ever had
dental work done using gas? Is it effective?

Mary-Ann

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1�/min.

#13514

From: "S. & A.M. Smith" <ssmith1003@...>
Date: Wed Jun 28, 2006 12:12 pm
Subject: RE: [B.I.Child] Dental work using nitrous oxide

anne71marie

Offline

Hi Mary-Ann

I used to work in dentistry before children.

The nitrous goes on before they start the procedure and they leave it around your face when they start. It has helped many patients in the past to relax. Another option is being sedated through a cocktail of drugs, that you take a few hours before the appointment. I found the drugs seemed to help the most.

If you have any other questions, please let me know.

Annemarie

-----Original Message-----
From: BrainInjuredChild@yahoogroups.com [mailto:BrainInjuredChild@yahoogroups.com] On Behalf Of Mary-Ann
Sent: June 27, 2006 9:04 PM
To: BrainInjuredChild@yahoogroups.com
Subject: [B.I.Child] Dental work using nitrous oxide

Hi,

Had huge problems with an abcessed tooth 6 weeks ago (and although it took a lot of
painkillers and antibiotics, we did get it to settle down) Potentially 2 teeth need root canals.
Unfortunately, the injections don't work, due to a complication from having wisdom teeth
removed. In the past the dental work has been done under general anaesthetic, but there is
only one person in town who does it and the wait list for a consult is many months long.
Another dentist recommended having the work done with nitrous oxide.

I have used nitrous oxide during my 40 minute labour but I had to breathe in through a
mask......which I don't see as being very compatible with dental work. Has anyone ever had
dental work done using gas? Is it effective?

Mary-Ann

#13513

From: "Mary-Ann" <cybermathair@...>
Date: Wed Jun 28, 2006 1:58 am
Subject: Re: Sharing/Apology

cybermathair

Offline

Donna, I want to apology for making very inappropriate comments on the forum. I
truly
respect and admire your dedication and all the work you have done and continue
to do
with your son and others. I have lost a lot of sleep too, and I am truly hurt
because I have
hurt another person especially in such a callous manner.

I don't know the roots of this group. I don't know who moderates this group or
runs it, but
it is nice to be able to connect and share information freely with people from
all different
walks doing all different programs. I love to hear successes or share things no
matter how
big or small.

Maybe one suggestion would be for people to stick to sharing and talking about
programs
they are directly doing or have direct experience with, and maybe refer to
others who have
done those programs......so we don't inadvertenly step on toes.

I would love to hear more about Dawson's program, and what he is doing.

Mary-Ann

--- In BrainInjuredChild@yahoogroups.com, <b.bateman10@...> wrote:
>
> At the beginning of this group, it was dedicated to families doing IAHP. 
Everyone was
following the exact same course of treatment.  Then it evolved because there
were many
families who didn't qualify for IAHP's Intensive Treatment Program---the mothers
who
were on Intensive would help those who weren't.  They shared information,
patterns,
sources for things, etc.  Many children who wouldn't have otherwise been helped
were
helped because of the sharing through this group.
>
> Now there are many more alternatives---NACD, ICAN, ABR, FHC, AND, Handle, etc.
Because the issue with helping our child is soooo personal, it can be a bit
touchy.  I am
sure I have hurt others' feelings---even though it was NOT my intent.  I know my
feelings
have been wounded also.  This has been really bothering me a lot lately, to the
point of
losing sleep.  During my run this morning, it finally came to me.
>
> Can we please go back to the roots of the group?  Can we truly share with one
another
about our programs?  Can we be specific---ie, we are walking 3 miles a day five
times a
week and now he's putting 2 sentences together routinely and sometimes even 3. 
Our
goal is for him to begin expressing himself in paragraphs.  (BTW, the example is
a true
story for Dawson.  It's pretty exciting since we haven't been at it for too
long---about 2
months).
>
> I have been very guilty of posting at length about principle and not staying
true to the
purpose of the group---sharing in depth in order to help other parents.  It's
tricky
because of the individual nature of programs---and I hope parents will be very
judicious
about doing things with their child.  But I honestly think most of the things we
share
wouldn't be hurtful.
>
> I am honestly sincere when I say that I WANT to share how Dawson is doing and
what
specific things we're doing and what our goals are.  I'd like to be able to
"speak" to people
who don't think I have 4 heads when I talk about truly healing my child from a
brain injury.
And I'd like very much to hear the same from other mothers.  I'm INTENSELY
intrigued and
want to hear about AND---but I want to hear specifics.  I love seeing the
pictures of Gegi
that show me his progress.
>
> I don't believe we have to agree about everything in order to share with and
support one
another.  I know we all pretty much do agree that traditional medicine isn't
curing our
kids---can we just move forward from there?
>
> I miss terribly the comaraderie (SP?) that used to exist here and I'd love to
hear from old
friends and welcome in new ones.
>
> I'd be glad to share Dawson's program and how we're doing---if anyone would
care to
hear.
>
> Donna
> Mom to Clark 21, Katy 19, Preston 17, Annie 15, Kent 13, Callie 10, Carson 8,
Dawson 6
>

#13512

From: "Mary-Ann" <cybermathair@...>
Date: Wed Jun 28, 2006 2:19 am
Subject: Re: Sharing/Apology

cybermathair

Offline

Donna, I really want to apology for my rude and inappropriate comments on the
forum. I
too have lost a lot of sleep and am very hurt that I hurt you by making callous
remarks on
the forum.

I truly admire your dedication and hard work you have put in to help your son
and others.

I don't know the roots of this group and don't know who the moderator is, but it
is nice to
share and find out things with people doing all different programs and things. I
never
realized there were so many different things out there that people were doing
and the
combinations of programs that people were doing. Maybe one suggestion is for
people to
stick to sharing programs they have direct experience doing, so as not to step
on any toes
since programs change over time, and brain injuries are all different.

I would love to hear more about Dawson's programs

Mary-Ann


--- In BrainInjuredChild@yahoogroups.com, <b.bateman10@...> wrote:
>
> At the beginning of this group, it was dedicated to families doing IAHP. 
Everyone was
following the exact same course of treatment.  Then it evolved because there
were many
families who didn't qualify for IAHP's Intensive Treatment Program---the mothers
who
were on Intensive would help those who weren't.  They shared information,
patterns,
sources for things, etc.  Many children who wouldn't have otherwise been helped
were
helped because of the sharing through this group.
>
> Now there are many more alternatives---NACD, ICAN, ABR, FHC, AND, Handle, etc.
Because the issue with helping our child is soooo personal, it can be a bit
touchy.  I am
sure I have hurt others' feelings---even though it was NOT my intent.  I know my
feelings
have been wounded also.  This has been really bothering me a lot lately, to the
point of
losing sleep.  During my run this morning, it finally came to me.
>
> Can we please go back to the roots of the group?  Can we truly share with one
another
about our programs?  Can we be specific---ie, we are walking 3 miles a day five
times a
week and now he's putting 2 sentences together routinely and sometimes even 3. 
Our
goal is for him to begin expressing himself in paragraphs.  (BTW, the example is
a true
story for Dawson.  It's pretty exciting since we haven't been at it for too
long---about 2
months).
>
> I have been very guilty of posting at length about principle and not staying
true to the
purpose of the group---sharing in depth in order to help other parents.  It's
tricky
because of the individual nature of programs---and I hope parents will be very
judicious
about doing things with their child.  But I honestly think most of the things we
share
wouldn't be hurtful.
>
> I am honestly sincere when I say that I WANT to share how Dawson is doing and
what
specific things we're doing and what our goals are.  I'd like to be able to
"speak" to people
who don't think I have 4 heads when I talk about truly healing my child from a
brain injury.
And I'd like very much to hear the same from other mothers.  I'm INTENSELY
intrigued and
want to hear about AND---but I want to hear specifics.  I love seeing the
pictures of Gegi
that show me his progress.
>
> I don't believe we have to agree about everything in order to share with and
support one
another.  I know we all pretty much do agree that traditional medicine isn't
curing our
kids---can we just move forward from there?
>
> I miss terribly the comaraderie (SP?) that used to exist here and I'd love to
hear from old
friends and welcome in new ones.
>
> I'd be glad to share Dawson's program and how we're doing---if anyone would
care to
hear.
>
> Donna
> Mom to Clark 21, Katy 19, Preston 17, Annie 15, Kent 13, Callie 10, Carson 8,
Dawson 6
>

#13511

From: "Mary-Ann" <cybermathair@...>
Date: Wed Jun 28, 2006 2:10 am
Subject: Moving

cybermathair

Offline

We expect to be transferred in September (our 2nd move in less than 2 years) We
are busy
trying to spruce up our house, finish unpacking boxes from the last move, get
rid of stuff,
keep up with 3 children between 19 months and 4.5 yrs, do some semblance of a
program
with the oldest. We have tried to hire help; but have often ended up having to
clean up after
the babysitter. Our experiences trying to hire housekeepers, or people to do
things like
painting etc have not been super successful either as most have done sloppy
work.

Does anyone have any suggestions to try to get organized for a move? or for
hiring
productive help (or getting help to be more productive? Do some people train
people to do
parts of programs?

Thanks in advance for any help

Mary-Ann

#13510

From: "Mary-Ann" <cybermathair@...>
Date: Wed Jun 28, 2006 2:03 am
Subject: Dental work using nitrous oxide

cybermathair

Offline

Hi,

Had huge problems with an abcessed tooth 6 weeks ago (and although it took a lot
of
painkillers and antibiotics, we did get it to settle down) Potentially 2 teeth
need root canals.
Unfortunately, the injections don't work, due to a complication from having
wisdom teeth
removed. In the past the dental work has been done under general anaesthetic,
but there is
only one person in town who does it and the wait list for a consult is many
months long.
Another dentist recommended having the work done with nitrous oxide.

I have used nitrous oxide during my 40 minute labour but I had to breathe in
through a
mask......which I don't see as being very compatible with dental work. Has
anyone ever had
dental work done using gas? Is it effective?

Mary-Ann

#13509

From: "kplatt@..." <kplatt@...>
Date: Sat Jun 24, 2006 9:12 pm
Subject: Re: [B.I.Child] Food Testing for Jason - Honey is BAD for him

bluetulip53

Offline

Sharon, we're an scd family also. I hope you find the reason for the seizures. Kathy

#13508

From: "SHARON CRUIKSHANK" <mag5jas2@...>
Date: Sat Jun 24, 2006 8:06 pm
Subject: Food Testing for Jason - Honey is BAD for him

jaseymag

Offline

I took Jason to be "interro tested" today. They test for food sensitivites, nutritional deficiences, amino acids, neurotransmitters, candida (yeast) etc. It was absolutely amazing. Jason is on the SCD diet, and I pretty much have the legal and illegal foods memorized. As she was testing, I would think "this will be bad" or "this will be good" and bingo, the SCD lists were right on with one big exception - honey. Jason is severely intolerant to honey. We sweeten his almond milk (which is OK according to the test) with honey.

When we first started the SCD, we followed the beginner's diet and tubed all his fluids (Welch's grape juice watered down) for a week. Jason's seizures died off big time. Me being me, I wanted him to drink by mouth, so I tried the watered down grape juice sweetened with honey. He drank that, but the seizures came back. I did not relate it to the honey, which is a legal SCD food, I just though it was a fluke that his seizures died off - thought maybe it was the shock of diet change or the fact that he was so darn skinny that his Keppra was more effective due to weight loss.

Anyway, back to the present. Jason had a gastro bug this week, so he wouldn't eat or drink so we gave him fluids by g-tube, not bothering to sweeten with honey of course. His seizures again have died off to barely anything. So no more honey for my honey. Today he is back to eating fine, so the tummy bug is gone. It is 4:00pm and he should have had two clusters of spasms by now, but nada.

It was also interesting to see the amino acids and neurotransmitters related to seizure activity were all deficient for Jason. His vitamins are fine, his minerals are really bad. He has wicked candida, and only one of about 20 remedies tested OK for him (Organika Colloidal Silver), and of the probitotics they had in the system, none tested OK. I brought the one I use (no bifidus as per SCD) and it was fine. Oh, and his mercury is through the roof. They tested AMD, a chelator, but it was no good. Mercury was the only bad heavy metal. I had the rhogan shot when I was pregnant, so that is the only culprit I can think of as while he has had some of his shots, supposedly none have mercury any more.

These reports will be faxed to his naturopath, so I am interested to see what she proposes. I am hoping that clearing up the wicked candida will allow his body to absorb minerals vs. giving him a whack of mineral supplements. The amino acids are probably a different story, as well as the neuro stuff (GABA, dopamine, taurine, l-dopa, l-glutamine, tryptophan).

They also tested his AEDs - Keppra passed, Lamictal (which I just started him on late April) fails miserably - he has the chewable 5mg which have sugar. No sugar of any kind passed for him.

Anyway, I think it's probaby the best $200 I've spent, and of course the best thing of all is reduced seizures - possibly due to no honey. I especially like it because honey is so annoyingly sticky and gets on everything (sounds silly but every time I touch the container it's sticky)!!

I'll update as to what the ND proposes and also Jason's seizure activity - maybe this is a fluke but we'll see.

Sharon Cruikshank

#13507

From: "kvannett" <kcvannett@...>
Date: Fri Jun 23, 2006 9:23 am
Subject: Re: Gravitational Insecurity

kvannett

Offline

We do play music for him but I've never thought to check if he's more
stable with it. I'll ask his physical therapists to pay attention
during his sessions to see if it makes him better. What kind of music
does Jospeh listen to?

--Kasey, mother of Denis, 4 years old
--- In BrainInjuredChild@yahoogroups.com, patrick james
<themontusos@...> wrote:
>
> Kasey,
>
>   Have you tried to play some music in the background? Choose
something that Denis really likes to get his mind off things. That
worked really well for us!
>   Mary! (Joseph is 3 years old)
>
>
> ---------------------------------
>  Inbox full of spam? Get leading spam protection and 1GB storage
with All New Yahoo! Mail.
>

#13506

From: aleskifine@...
Date: Wed Jun 21, 2006 5:17 am
Subject: Re: [B.I.Child] KARLA: ..help with contacting the herbalist

karlafine2003

Offline

Thank you Sharon, and God bless the herbs you will be receiving to do the greatest for your son.

Karla

-----Original Message-----
From: SHARON CRUIKSHANK <mag5jas2@...>
To: BrainInjuredChild@yahoogroups.com
Sent: Tue, 20 Jun 2006 17:55:57 -0400
Subject: [B.I.Child] KARLA: ..help with contacting the herbalist

Pham Bao
369 East William Street
San Jose California 95112

This is his address, I spoke to him today and managed to find out he will be sending out Jason's herb's tomorrow. I am waiting with baited breath as the Lamictal seems to be going paradox on him - he's having other seizure types (twicthed, stares, startles and I think complex partials). Good luck!

Sharon Cruikshank

Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free.

Reply | Forward | Messages in this Topic (5)

#13505

From: aleskifine@...
Date: Wed Jun 21, 2006 5:13 am
Subject: Re: [B.I.Child] for Catherine Nguyen...help with contacting the herbalist

karlafine2003

Offline

Thank you very much for your prompt response.

Yes. I live in Fremont. Do you think it's a good idea to take my son to be examined by him? I was planning to go in person with my son.

It is soooo good that Lukas is doing so well. The fact that you are seeing improvements in other areas is probably because now without the seizures his brain is relaxed to concentrate better in other functions.

Thanks Catherine for your offer to help. If when I get there I need help I will definetely call you.

Karla

-----Original Message-----
From: Catherine Nguyen <cathy_tran@...>
To: BrainInjuredChild@yahoogroups.com
Cc: karla_fine@...
Sent: Tue, 20 Jun 2006 09:56:27 -0700 (PDT)
Subject: Re: [B.I.Child] for Catherine Nguyen...help with contacting the herbalist

HI Karla,
I was told by a few people who called that when there
isn't someone around that can help him translate, he
won't be able to help cuz he doesn't speak English
very well.

His address is 369 E. William St. in downtown San
Jose, California. You can go there and call me if you
need a translator at 408-204-0588 or 408-202-0558. Or
you can email or call me and tell me what help you
need from him and I will call him for you. Then, he
will ask you to send money order for the herbs. Once,
he gets the money he will ship the medication to you
directly. But, Karla, I think you're the one that
lives in Fremont right? THat's close to San Jose...

On the side note, my son Lukas is still seizure-free.
I lost track of how many days, but almost 1 month
now.... In fact I feel it's like he's cured... can you
believe it???? It truly is a miracle. Since his
seizure controlled, he started talking "ba ba, va va,
anh anh, pa" and a bunch of other sounds... he
vocalizes so much. Mobility wise he is pretty good in
the rifton walker. He walks to/from the family room
and kitchen. It has hardwood floors, so he goes across
so fast to and from. Sitting wise in the tripod
position: Lukas was only able to balance sitting for 2
-4 minutes before. Now he is able to sit for 15
minutes plus. Especially, he loves to sit in the sand
box in the backyard for a long time. I think the
feeling of the sand gives him more stimulation. Kept
thinking to myself how come I didn't give him these
herbs sooner, a year ago. He might be walking by now
:) and we have to prove all of his Stanford doctors
wrong.... all they could say was "impossible"
"impossible".... well, we have to prove them wrong...

By the way, we have a wonderful therapy cage that
grandpa built for Lukas and he's been doing so well in
it too. We found some inexpensive materials so we were
able to keep the cost down. It works so well and only
cost several hundred dollars. We've been asked to
build it for other families, so we will be sending out
flyers soon to anyone else who's interested. It has
easy assembly and can be shipped.

Take care everyone and God bless...

-Catherine

--- KARLA FINE <karla_fine@sbcglobal.net> wrote:

> Hi Catherine,
>
> I wonder if you can help me contact the herbalist.
> I have called the number (408)971-4516 several times
> and the person that answers the phone just says no,
> no and thank you and hang up. I don't have a chance
> to ask for him or tell them what I need. I would
> like to go in person but I don't have an opportunity
> to ask for the address. Can you help? Do I have the
> right number?
>
> I appreciate and thank you in advance for anything
> you can do to help me.
>
> Karla Fine
>

__________________________________________________
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#13504

From: "SHARON CRUIKSHANK" <mag5jas2@...>
Date: Tue Jun 20, 2006 9:55 pm
Subject: KARLA: ..help with contacting the herbalist

jaseymag

Offline

Pham Bao
369 East William Street
San Jose California 95112

Sharon Cruikshank

Reply | Forward | Messages in this Topic (5)

#13503

From: Catherine Nguyen <cathy_tran@...>
Date: Tue Jun 20, 2006 4:56 pm
Subject: Re: [B.I.Child] for Catherine Nguyen...help with contacting the herbalist

tbimom2005

Offline

HI Karla,
I was told by a few people who called that when there
isn't someone around that can help him translate, he
won't be able to help cuz he doesn't speak English
very well.

His address is 369 E. William St. in downtown San
Jose, California. You can go there and call me if you
need a translator at 408-204-0588 or 408-202-0558. Or
you can email or call me and tell me what help you
need from him and I will call him for you. Then, he
will ask you to send money order for the herbs. Once,
he gets the money he will ship the medication to you
directly. But, Karla, I think you're the one that
lives in Fremont right? THat's close to San Jose...

On the side note, my son Lukas is still seizure-free.
I lost track of how many days, but almost 1 month
now.... In fact I feel it's like he's cured... can you
believe it???? It truly is a miracle. Since his
seizure controlled, he started talking "ba ba, va va,
anh anh, pa" and a bunch of other sounds... he
vocalizes so much. Mobility wise he is pretty good in
the rifton walker. He walks to/from the family room
and kitchen. It has hardwood floors, so he goes across
so fast to and from. Sitting wise in the tripod
position: Lukas was only able to balance sitting for 2
-4 minutes before. Now he is able to sit for 15
minutes plus. Especially, he loves to sit in the sand
box in the backyard for a long time. I think the
feeling of the sand gives him more stimulation. Kept
thinking to myself how come I didn't give him these
herbs sooner, a year ago. He might be walking by now
:) and we have to prove all of his Stanford doctors
wrong.... all they could say was "impossible"
"impossible".... well, we have to prove them wrong...

By the way, we have a wonderful therapy cage that
grandpa built for Lukas and he's been doing so well in
it too. We found some inexpensive materials so we were
able to keep the cost down. It works so well and only
cost several hundred dollars. We've been asked to
build it for other families, so we will be sending out
flyers soon to anyone else who's interested. It has
easy assembly and can be shipped.

Take care everyone and God bless...

-Catherine

--- KARLA FINE <karla_fine@...> wrote:

> Hi Catherine,
>
>   I wonder if you can help me contact the herbalist.
> I have called the number (408)971-4516 several times
> and the person that answers the phone just says no,
> no and thank you and hang up. I don't have a chance
> to ask for him or tell them what I need. I would
> like to go in person but I don't have an opportunity
> to ask for the address. Can you help? Do I have the
> right number?
>
>   I appreciate and thank you in advance for anything
> you can do to help me.
>
>   Karla Fine
>

__________________________________________________
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Tired of spam?  Yahoo! Mail has the best spam protection around
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#13502

From: "rose_babic" <rose_babic@...>
Date: Tue Jun 20, 2006 11:32 am
Subject: Australian Institute

rose_babic

Offline

Hi guys,
What a great group. My son Eric has Polymicrogyria which is a
malformation of his cortex, affecting his frontal lobes bilaterally.
He is 9mths old in 2 days and is not sitting up, crawling, smiling
etc.. he also has seizures and we have weaned him off meds to see
what he would be like. His last med was 3 wks ago and 1 week ago we
started a Australian IAHP program, run by Tim, Claire and Chad
(their son) Timmermans who are mentioned in Doman's book. They
studied with the Philidelphia institute but broke away from it
together with Keith Pennock who ran the English chapter which later
became the Alison Centre. Unfortunately Pennock died a few years ago
and the Brain-Net/Alison Centre closed but Chad Timmerman who worked
there helps parents to learn the program and you don't have to go
there they come to your home (all around the world).
They have set us up with a program of homolateral patterning,
masking, rolling, oral stimulation, hanging upside down, swinging
etc...

I am wanting to talk to other parents and especially Australian
parents.
The Timmermans also specialise in swimming and have taught me how
Eric can float in the bath just by lightly supporting his neck and
he is quite calm in the water every night after a days work.

I hope I can share with others my experience and others can help me.
They were happy I had Eric already weaned of meds and suggested HBOT
and cell salt therapy but suggested I investigated these options
myself. Any feedback, also those of you whose children have seizures
do you do these programs with your kids on meds? Eric's seizures
increased dramatically when we started the program but co-incidently
he was on the last stages of weaning 2 wks b4 we started so it may
just be the meds coming out of his system.

Is there some archieve or file I can go to to understand what all
the other therapies are? ie ABR, handle??? I want to know as much as
possible.

Ta
Rose

#13501

From: Susan Jeff <threeboyz@...>
Date: Mon Jun 19, 2006 3:29 pm
Subject: Re: [B.I.Child] Gravitational Insecurity

mytwoyearold...

Offline

Sounds like his vestibular sensation needs a little stimulation, try swinging alot, sitting, and lying on his back and stomach while swinging. You can use a big beach towel and have someone help you if you don't have a swing.

kvannett <kcvannett@...> wrote:

Denis is four years old and has severe gravitational insecurity. We
are working on rolling but I think a big barrier is that he's afraid
and feels like he is falling. Can anyone offer any specific things we
can do to help him get his vestibular system on track?

Thanks very much.

--Kasey, mother of Denis, 4 years old

"To accomplish great things, we must not only act, but also dream; not only plan, but also believe." - Anatole France

www.hopeformychild.com

#13500

From: Stephanie Smith <fores89296@...>
Date: Mon Jun 19, 2006 1:44 am
Subject: Re: back arching

fores89296

Offline

My Daughters doctor said that many times when a child arches their back it sometimes means reflux. That is how they respond to the pain and it is a protecting response.

Steph

Yahoo! Sports Fantasy Football �06 - Go with the leader. Start your league today!

#13499

From: "justicelibertyall" <justicelibertyall@...>
Date: Mon Jun 19, 2006 3:33 pm
Subject: 3 questions

justiceliber...

Offline

For parents of children who suffered brain injuries due to some form of
medical malpractice or other negligence:

1) What do you need most?  How can others help?
2) Are there any inexpensive items that are very useful for you to have
around that other people wouldn't think to give them?
3) What factors have influenced you (or might influence you) in
choosing a law firm to represent you during the litigation or
settlement process?

Thanks so much for your time and consideration, and hang in there!  You
are not forgotten.

#13498

From: patrick james <themontusos@...>
Date: Mon Jun 19, 2006 10:07 am
Subject: Re: Gravitational Insecurity

themontusos

Offline

Kasey,

Have you tried to play some music in the background? Choose something that Denis really likes to get his mind off things. That worked really well for us!

Mary! (Joseph is 3 years old)

Inbox full of spam? Get leading spam protection and 1GB storage with All New Yahoo! Mail.

#13497

From: KARLA FINE <karla_fine@...>
Date: Mon Jun 19, 2006 11:58 pm
Subject: for Catherine Nguyen...help with contacting the herbalist

karla_fine@...

Hi Catherine,

I wonder if you can help me contact the herbalist. I have called the number (408)971-4516 several times and the person that answers the phone just says no, no and thank you and hang up. I don't have a chance to ask for him or tell them what I need. I would like to go in person but I don't have an opportunity to ask for the address. Can you help? Do I have the right number?

I appreciate and thank you in advance for anything you can do to help me.

Karla Fine

#13496

From: "kvannett" <kcvannett@...>
Date: Sun Jun 18, 2006 12:03 pm
Subject: Gravitational Insecurity

kvannett

Offline

Denis is four years old and has severe gravitational insecurity. We
are working on rolling but I think a big barrier is that he's afraid
and feels like he is falling. Can anyone offer any specific things we
can do to help him get his vestibular system on track?

Thanks very much.

--Kasey, mother of Denis, 4 years old

#13495

From: "avewagner1978" <avewagner1978@...>
Date: Mon Jun 12, 2006 11:43 pm
Subject: Re: thanks for responding!

avewagner1978

Offline

--- In BrainInjuredChild@yahoogroups.com, "Viviane , Micheal &
Isabelle aziz" <bella@...> wrote:
>
> check out isa in the photo section of the group , before doing abr
how she used to hyperextend and arch her back , and she no longer
does that now .
> love
> viviane
> http://www.snugglepie.com/cb/52040.png
>
>   ----- Original Message -----
>   From: Nancy Rosnes
>   To: BrainInjuredChild@yahoogroups.com
>   Sent: Thursday, June 08, 2006 4:01 AM
>   Subject: Re: [B.I.Child] im just new here and wanted to say
hello!
>
>
>   Hi Tasha~
>
>   Welcome! I am Nancy, mom to 2 kids. Our first child, Shaylee,
was born at
>   29 weeks and as a result of a bleed has Spastic Diplegia. Shay
was (and
>   still is) the queen of arching her back. She was horrible as an
>   infant/toddler and I can't count the number of times someone
would almost
>   drop her - me including.
>
>   With a lot of therapy and work, she is much better now as a 9
year old.
>   Please feel free to fire any questions you wish my way - either
through the
>   board or to my email.
>
>   Blessings,
>   Nancy
>
>   ----- Original Message -----
>   From: "avewagner1978" <avewagner1978@...>
>   To: <BrainInjuredChild@yahoogroups.com>
>   Sent: Sunday, June 04, 2006 6:33 PM
>   Subject: [B.I.Child] im just new here and wanted to say hello!
>
>   > This is my first time writing something like this so bear with
me,hello
>   > my name is tasha im a 27 yr old mother of a beautiful 20 month
old son
>   > named avery,avery was born at 35 weeks with hydrocephalus and
had a
>   > neonatal stroke. it came about that avery was blind when he
was about 3-
>   > 4mo old and was diagnosed with cp at the age of 8mo.avery also
has
>   > spasticity issues with one of his arms & both feet.i was just
wondering
>   > if anyone can relate to children with cp that arch their backs
alot?
>   > avery does this alot which makes it very difficult at times !
i would
>   > love any feed back that is available - thanks everyone!!!
>   >
>   > tasha
>   >
>   >
>   >
>   >
>   >
>   >
>   >
>   >
>   >
>   >
>   >
>   > Yahoo! Groups Links
>   >
>   >
>   >
>   >
>   >
>   >
>   >
>   >
>   > --
>   > No virus found in this incoming message.
>   > Checked by AVG Free Edition.
>   > Version: 7.1.394 / Virus Database: 268.8.1/355 - Release Date:
6/2/2006
>   >
>   >
>
  thanks nancy for letting me know im not alone,my son is getting
better at the arching,but still tend to do it when he is irritated
or doesnt want to sit which he doesnt do on his own yet only in his
bumbo seat which has helped a great deal! and he know likes to
extend his legs and tries to bear weight on them.but doesnt like
being on his stomach,he is mainly content when he is lying down
which ive been trying to break that habit which is very hard - any
suggestions are greatly appreciated he does do ot therapy & pt
therapy - thanks again nancy

#13494

From: alison_mommy <alison_mommy@...>
Date: Tue Jun 13, 2006 2:23 am
Subject: Re: [B.I.Child] Pathological Laughing and Crying

alison_mommy

Offline

Hi --

What is your child's diagnosis? My son has autism and did have periods of very strange laughter that seemed to come from no where. We were told this was often a symptom of yeast overgrowth in the GI tract, which stool and urine tests confirmed that he had. We've treated him for yeast for a long time now (nearly two years -- just making it part of his normal daily supplement intake) and haven't seen the weird laughing for quite some time. He also would cry uncontrollably for an hour or more, especially in the evening or after waking up from an afternoon nap. I never found out what the exact problem was with this (what caused it), but as we've treated him for gut issues it has subsided ... so perhaps that was it. Does your child have any other indications of GI distress (like abdominal distention)? Alison

cathyreg <cathyreg@...> wrote:

Hello,
I would like to know if any of your children have developed periods
of uncontrollable laughing, crying, or both. We have researched this
and found something called pathological laughing and crying. Elise
started about a week ago with inappropiate laughing and times of
inappropriate crying that can last hours. She has fits of laughter for
no reason and her crying is that of a child in severe pain. Although
Elise cries more than a normal 21-month-old, this is something totally
different. She also laughs, but this laughter is lasts for a very long
time, sometimes startig at 5 am.
Anyone that hears the laughing or crying can tell that it is "not
right", even for Elise. Has anyone experienced this with their child?
If so, is this the correct diagnosis, and what can be done?
Any help is greatly appreciated. Thanks so much, Cathy

www.babyjellybeans.com
elise
haden

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#13493

From: caradie fritze <carebear9121123f@...>
Date: Mon Jun 12, 2006 8:53 pm
Subject: Re: [B.I.Child] Pathological Laughing and Crying

carebear9121...

Offline

inappropriate laughing is also an autistic trait.

Corbin laughs a lot & my husband thinks something is wrong with him. I'm just glad he's aware enough to understand something is funny. I'm a nut case & Corbie enjoys that about me LOL,___

Caradie mom to
Corbin 2 DOB 3/3/04 HIE 5/22/05 due to choking accident
Austin 10 PDD-NOS & ODD
Noah 8
Hubby Bill

Story & Journal: www.caringbridge.org/visit/babycorbin

Photos: http://groups.msn.com/BabyCorbin

Video clips: http://www.dropshots.com/BabyCorbin

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#13492

From: Susan Jeff <threeboyz@...>
Date: Tue Jun 13, 2006 6:19 pm
Subject: Re: [B.I.Child] Pathological Laughing and Crying

mytwoyearold...

Offline

My son Ryan laughs alot in the morning when he wakes up and screams in delight too, he's wearing an ambulatory EEG right now to rule out seizures.

Connie Bird <conniebird@...> wrote:

Not sure about the crying, but inappropriate laughing is something that is very prevalent in Angelman syndrome. We have had Dr's say our son seems very similar to this syndrome, but he crys alot with not much laughing, and he was genetically ruled out after 2 specific tests for it.

Connie

----- Original Message -----

From: cathyreg

To: BrainInjuredChild@yahoogroups.com

Sent: Sunday, June 11, 2006 10:19 PM

Subject: [B.I.Child] Pathological Laughing and Crying

Hello,
I would like to know if any of your children have developed periods
of uncontrollable laughing, crying, or both. We have researched this
and found something called pathological laughing and crying. Elise
started about a week ago with inappropiate laughing and times of
inappropriate crying that can last hours. She has fits of laughter for
no reason and her crying is that of a child in severe pain. Although
Elise cries more than a normal 21-month-old, this is something totally
different. She also laughs, but this laughter is lasts for a very long
time, sometimes startig at 5 am.
Anyone that hears the laughing or crying can tell that it is "not
right", even for Elise. Has anyone experienced this with their child?
If so, is this the correct diagnosis, and what can be done?
Any help is greatly appreciated. Thanks so much, Cathy

www.babyjellybeans.com
elise
haden

"To accomplish great things, we must not only act, but also dream; not only plan, but also believe." - Anatole France

www.hopeformychild.com

#13491

From: "bootylicious_vaine" <bootylicious_vaine@...>
Date: Tue Jun 13, 2006 4:49 am
Subject: back arching

bootylicious...

Offline

hey all,
   im new to this site. my baby girl had shoulder dystocia and birth
asphyxia and as a result  has feeding problems and back arching.
otherwise she appears ok and moving about. she can hold her head up if
on her tummy,move arms legs, smiles talks... back arching is very
annoying bnut seems to only do it after a feed or if upset,,, we think
she may have cp, but only time will tell i suppose. n e one else out
there got simmilar story?

#13490

From: aleskifine@...
Date: Wed Jun 14, 2006 5:55 am
Subject: Re: [B.I.Child] Re: finally seizure control/Catherine Nguyen/Sharon

karlafine2003

Offline

Thank you Sharon for sharing. Like Catherine says we need to pray to God for these herbs to do the miracle for our kids. Many blessings to you and your family and especially Jason.

Karla

-----Original Message-----
From: SHARON CRUIKSHANK <mag5jas2@...>
To: BrainInjuredChild@yahoogroups.com
Sent: Tue, 13 Jun 2006 07:36:41 -0400
Subject: [B.I.Child] Re: finally seizure control/Catherine Nguyen/Sharon

Hi Karla, no we haven't seen him, we live in Canada. I did talk "to" him (via interpreter) and he is going to send us a month's supply. Jason has an ABI - had large bleeds and lost most of his brain at 5 weeks. Why, we don't know and no one seems to care to find out although I keep pushing - he likely had a problem at birth but I guess it doesn't matter much now as we can't go back. Jason had IS whcih was resolved with Vigabatri at 9 mos, but the spasms are back and we can't get control (6+ months now).

Sharon Cruikshank

Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free.

#13488

From: "SHARON CRUIKSHANK" <mag5jas2@...>
Date: Tue Jun 13, 2006 11:36 am
Subject: Re: finally seizure control/Catherine Nguyen/Sharon

jaseymag

Offline

Sharon Cruikshank

#13482

From: aleskifine@...
Date: Mon Jun 12, 2006 5:59 am
Subject: Re: [B.I.Child] finally seizure control/Catherine Nguyen/Sharon

karlafine2003

Offline

Sharon,

If you don't mind, may I ask these questions? Are you talking about the same herbalist Catherine has been mentioning in her emails? Was your son Jason seen by the herbalist? Were you able to get an appointment? May I ask what your son is being treated for? Sorry for the many questions, I'm considering making an appointment too and just want some additional information.

Thanks a lot.

Karla

-----Original Message-----
From: Sharon Cruikshank <mag5jas2@...>
To: BrainInjuredChild@yahoogroups.com
Sent: Fri, 9 Jun 2006 20:24:57 -0000
Subject: Re: [B.I.Child] finally seizure control/Catherine Nguyen

Hi Catherine - it's Sharon (Jason's mom). Just sent off my money order
for the herb and am so eager to get going with this. Did Lukas
seizures "dry up" or just stop suddenly? Thanks.

Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free.

Reply | Forward | Messages in this Topic (17)

#13462

From: "kplatt@..." <kplatt@...>
Date: Mon Jun 12, 2006 11:42 am
Subject: Re: [B.I.Child] Pathological Laughing and Crying

bluetulip53

Offline

Cathy, Have you done any research into nutrition? If not I think it would benefit you to check it out. This MIGHT be what is happening...If the gut is out of whack with bacteria (and any one that has had antibiotic then their gut is out of whack) has an overgrowth of bad bacteria. Antibiotics kill all the bacteria so if it's not replaced with good, acidolphilus etc., (good ones) the bad over grow. Any time you eat simple carbs such as pretzels,bread, sugar, juice, some fruit, that kind of food, it feeds the yeast and bad bacteria. Then it ferments and can make the person kind of drunk. Laughing inappropriately or crying or even swaying intheir walk. You actually want the fermentation to go on outside of the body and not on the inside. You can look at your childs diet and see what she eats but the symptoms you have seen can actually be caused by the food they are eating. There is information on this if your want further help. Kathy

#13461

From: "Connie Bird" <conniebird@...>
Date: Mon Jun 12, 2006 11:18 am
Subject: Re: [B.I.Child] Pathological Laughing and Crying

cmbird33323

Offline

Not sure about the crying, but inappropriate laughing is something that is very prevalent in Angelman syndrome. We have had Dr's say our son seems very similar to this syndrome, but he crys alot with not much laughing, and he was genetically ruled out after 2 specific tests for it.

Connie

----- Original Message -----

From: cathyreg

To: BrainInjuredChild@yahoogroups.com

Sent: Sunday, June 11, 2006 10:19 PM

Subject: [B.I.Child] Pathological Laughing and Crying

Hello,
I would like to know if any of your children have developed periods
of uncontrollable laughing, crying, or both. We have researched this
and found something called pathological laughing and crying. Elise
started about a week ago with inappropiate laughing and times of
inappropriate crying that can last hours. She has fits of laughter for
no reason and her crying is that of a child in severe pain. Although
Elise cries more than a normal 21-month-old, this is something totally
different. She also laughs, but this laughter is lasts for a very long
time, sometimes startig at 5 am.
Anyone that hears the laughing or crying can tell that it is "not
right", even for Elise. Has anyone experienced this with their child?
If so, is this the correct diagnosis, and what can be done?
Any help is greatly appreciated. Thanks so much, Cathy

www.babyjellybeans.com
elise
haden