My name is Amanda, and I looking foward to being a part of this group. It will
be nice to have someone to talk with, I always have to be so strong for my
family. I have an 18 month old named Aiden. He had meningitus when he was two
months old. He had seizures which left his brain severely damaged. His front and
back of his right side are almost as if they were never there. When you look at
his MRI, it's as if you are looking at a black hole in those places. He has
cortical vision impairment, and they tell me when he is older he will have a
hard time with his decision making abilities. He is still pretty young, so we
can't really tell how much progress he is making. We can tell he is behind on
his speech and is still having a hard time feeding himself. He also has
seizures. They are not as bad as they were, the medicines really seem to be
controlling them. We are so blessed though, he is our little angel. We just want
his life to be as normal as possible.