If you have questions about the respiratory program, I know of the protocol used by The Family Hope Center to be effective and safe.
On Mon, Jul 14, 2008 at 9:45 AM, lolalini <lauratongi@...> wrote:
Out of curiosity, what is the name of the medication used for
vasolidation therapy?
Thanks,
Laura
--- In BrainInjuredChild@yahoogroups.com, "jtkkidsmom"> lshayward@...
<jtkkidsmom@...> wrote:
>
> I'm curious about the following very similar post on an autism
> support site.
>
> Hello, I am the mother of a 9 year old son with Autism and I would
> like to share my story in the hope that it will help others who are
> suffering with this horrible disorder. I am so very grateful that
> someone shared their story with me and led us on the road to recovery.
>
> We have struggled for many years with many different therapies and
> medications with really no benefits for our son. To say I was
> discouraged was an understatement. In September 2007 I was told about
> a neurologist in Florida who was using vasodilation therapy to treat
> Autism (as well as stroke, brain injury, cerebral palsy, learning
> disorder, migraine etc.) with good success. I was skeptical but
> willing to try anything. My son is high functioning but was told the
> doctor has success with varying degress of disabilities.
> Dr. H has been successfully treating neurological conditions with
> vasodilation therapy for almost 20 years…he is currently the only
> clinician using this in the world but has attracted the attention of
> the neurological community and many believe this will become a
> standard of care for these conditions. People travel from all over to
> see him and the stories are inspirational.
>
> We started our son on the treatment in September of 2007. I did a lot
> of research and the medication is very safe….unlike the other meds he
> has been on in the past. It is actually a very easy program….easier
> than any other we have tried. What we have seen unfold over the past
> 9 months has been amazing. His irritability, raging and obsessive
> behavior is almost completely gone. His coordination and muscle tone
> has improved and we see tremendous gains in his cognitive abilities.
> His teachers have also seen the change in him and have asked for Dr.
> Hammesfahrs information to give to other parents. It is a slow
> process and the changes have been gradual but we have made definite
> progress over the past 9 months. During our meeting with Special
> Services at our school it was recommended that a classroom aid
> replace the personal aid as he no longer needs it.
> When I hear of something that is too good to be true….in past
> experience it usually is, however this therapy for us has been the
> real deal. I have spoken with other people who have also had
> incredible success. A boy with Autism who could not speak and 5 years
> later is enrolled in college and fully verbal…. there are many
> others. Of course nothing works for everyone...
>
> The basis of the therapy is that blood vessels in certain individuals
> are constricted and consequently there is inadequate blood and oxygen
> to certain parts of the brain. (which also explains why hyperbaric
> therapy has been beneficial for many of these patients)
> Vasodilators open these vessels and establish proper blood flow
> within the brain. The cause of damaged, constricted blood vessels are
> many including, birth trauma, genetics, vaccination, oxygen
> deprivation, stroke etc. It can be detected by SPECT CT or Doppler
> Ultrasound. My sons EEG and MRI were completely normal....
>
> I do not want to post his info as it may seem like a marketing ploy
> and I assure you I am must a mom who wants to help others. If you
> would like this docs contact info, please e-mail me at
>
>
> All the best,
> L
> --- In BrainInjuredChild@yahoogroups.com, "lizhayward79"
> <lizhayward79@> wrote:
> >
> > Hello everyone,
> > My name is Liz and I am the mother of an 11 month old son who was
> > born with a brain injury. I would like to share my story in the
> hope
> > that it will help others who are suffering with a brain injury. I
> am
> > so very grateful that someone shared their story with me and led us
> > on the road to recovery.
> >
> > My son Liam was born last July. Due to an undiagnosed condition
> > called Vasa Previa, Liam lost over 55% of his blood when my water
> > broke. Following an emergency C section 20 minutes later, it took
> > over 13 minutes to rescucitate him. His apgars were
> > 0 0 0 2. He was in bad shape and was transferred to Cornell
> Medical
> > Center for head cooling. He had massive seizures, couldn't regulate
> > temperature….etc. etc. Miraculously he survived and came home to
> > us although doctors were not optimistic about his future. The next
> > few weeks confirmed my fears, that Liam was in fact brain damaged.
> > He slept almost 24 hours per day, his muscle tone changed from
> > extremely low (he was like a rag doll) to high…his legs were
> getting
> > very stiff. He hardly ate, gagged and choked when he did and his
> > eyes moved very slowly. I started to see a change in the shape of
> > his head…which I later learned were his skull plates collapsing due
> > to his brain not growing properly. His left pupil was also much
> > bigger than his right. I knew my son was brain damaged.
> >
> > Desperate I began to research alternative treatments since
> > conventional medicine offered us no help. First, we took Liam to
> > China for umbilical stem cell therapy at 3 weeks of age. Following
> > treatment, Liam was more alert etc. and we did see a lot of
> > benefits but we still had a way to go. In the following weeks he
> > started painful back arching, he still had difficulty with
> > temperature regulation, his legs turned purple from inadequate
> blood
> > flow. He was posturing, and his thumbs were fixed in his fists. His
> > left side was affected more than his right. He would barely move
> > his left arm and leg and his left eye drooped slightly.
> >
> > When Liam was a few months old, we were told about a neurologist in
> > Florida who uses vasodilation therapy to treat a variety of
> > neurological conditions including: Stroke, Brain Injury, Cerebral
> > Palsy, Autism, ADHD..etc. The basis of the therapy is that blood
> > vessels in certain individuals are constricted and consequently
> > there is inadequate blood and oxygen to certain parts of the
> brain.
> > (which also explains why hyperbaric therapy has been beneficial for
> > many of these patients). It is visualized by Doppler ultrasound
> and
> > SPECT CT. Vasodilators open these vessels and establish proper
> > blood flow within the brain.
> > .
> > We were skeptical but I kept hearing about these amazing stories
> > of patients recovering from his treatment. Over 2000 patients have
> > been treated and they have documented success…video, news stories
> > etc. Athletes, politicians and people from all over the world have
> > gone there. After a phone consultation, we boarded a flight to
> > begin treatment. I thank God everyday that we did.
> >
> > I was amazed how easy the treatment is…just giving him a medication
> > a few times a week. Within 4 days of starting, Liam brought his
> > left hand to his mouth and over the next several months the
> deficits
> > on his left side have disappeared. His head is now normal….he
> began
> > walking at 9.5 months and you would not be able to tell there is
> > anything different about him from another child his age. This is a
> > baby who doctors thought would be severely impaired. At 2 months
> he
> > was entered into early intervention and physical therapy with gross
> > motor skill deficits…..he is no longer receiving therapy because
> > they don't feel he needs it anymore. His doctors, physical
> > therapists and everyone who knows him is in awe. His pediatrician
> > called him a medical miracle.
> >
> > I can't begin to tell you what an impact this treatment has made in
> > our lives and the lives of many. This doctor is ahead of his time.
> > The neurological community is now starting to recognize the
> > potential benefit of vasodilation but it will take them many years
> > to catch up to his work...he's been doing it for many years.
> > If you would like more info, please contact me. I don't think I
> > can give his info on the site as it may seem like advertising. I
> > assure you I have no affiliation or financial interest in this
> > treatment. Only want to share what has helped us so very much.
> >
> > Feel free to e-mail me lshayward@
> > Liz Hayward
> >
>
--
Donna Bateman
Neurodevelopmental Specialist
www.parentswithpurpose.com
Mom to Clark 23, Katy 21, Preston 19, Annie 17, Kent 15, Callie 12 (cured from dyslexia), Carson 10, Dawson 8 (brain injured--was severe now mild!)